detox

[abbe]

Hey,

 

So my son , 10 is on his 8th day of azithromycin. His demeanor is like night and day. Is sleeping better than I can ever remember. All night long (he used to literally ask for benedryl to sleep, because he was so desperate to sleep. He not only is sleeping all night but the whole bed time ritual getting up and down 3 times to say goodnight, getting retucked in, anxiety is gone. He is pleasant, cooperative, nice, gentle it's wonderful. He went to see Dr. T. two Friday's ago and we did the bloodwork last Wednesday.He already tested positive for Mycoplasma. I only went looking for Myco and strep prior to Dr. T. So over the weekend and today his back/stomach tic is in full force. He said to me at breakfast "Mom my back tic is back and I haven't had this one in a long time.."

He also is almost "newly" coughing so it really seems to me to be die off. I am not familiar with antibiotic die off only die off from herbs or things like coconut oil. I have been pretty non medicine big on supplements and herbs with my son as well as our whole family. I actually am so scared at the thought of antibiotics because of the yeast and yes I am giving probiotics. I saw some suggestions such as the milk thistle for his liver, not sure why reservatrol was suggested. We started epson salt.. My son's tics have always been my major concern so it is hard for me to watch his tics getting maybe worse before better.

 

I need some support during the die off...

 

thanks

 

abbe

http://www.abbelang.com

0

[JAG10]

Hi Abbe,

 

I read your blog about your experience at CHOP. We were there in 2009, but through Behavioral Health, not Neurology. Dr. Elia was the first to suggest pandas to us and for that I will be eternally grateful. But she was unwilling to treat with abx or immuno-modulation therapy, so we quickly moved on. I'm happy to say my dd12 is soooo much better than she was two years ago. She does still react behaviorally to illness as does my dd8 who has managed with abx only.

 

Does your son respond positively to ibuprofen? I agree about the milk thistle. We've also tried AbsorbMore Toxins which is Bentonite Clay and Activated Charcoal; that's helped. My dd12 recently tested positive for yeast via stool test. She took Diflucan for weeks, got worse initially (we used the absorbmoretoxins then) and then improved after 9 days. We adapted to a low yeast diet and so far so good. But I became more vigilant about the probiotics and I'm still not sure I'm giving enough or what enough really is?

 

I hope he gets some relief soon!

Jill

[abbe]

Jill,

 

I have never tried the ibuprofen. Nick was on a baby aspirin per day from Chop to prevent another stroke but I have taken him off and switched him over to fish oil. I could try it what does it do???? I want to try the detox product you suggested. I won't ever be able to do IVIG with Nick since he has a weakened artery in his neck...too dangerous. At this point I don't know what we are doing besides abx. The pandas is all new to me. I am a bit overwhelmed at times with worry but Nick isn't a severe case I don't think

 

 

Abbe

[abbe]

Jill,

 

I have never tried the ibuprofen. Nick was on a baby aspirin per day from Chop to prevent another stroke but I have taken him off and switched him over to fish oil. I could try it what does it do???? I want to try the detox product you suggested. I won't ever be able to do IVIG with Nick since he has a weakened artery in his neck...too dangerous. At this point I don't know what we are doing besides abx. The pandas is all new to me. I am a bit overwhelmed at times with worry but Nick isn't a severe case I don't think

 

 

Abbe

[PhillyPA]

Abbe-sometimes fish oils cause a bad reaction on pandas kids. If things get worse, it may be the fish oil. That being said, some kids do great on fish oils. I am mentioning it only as a precaution.

 

My son flipped out when on fish oils. Horrible. Horrible. Horrible.

[abbe]

Abbe-sometimes fish oils cause a bad reaction on pandas kids. If things get worse, it may be the fish oil. That being said, some kids do great on fish oils. I am mentioning it only as a precaution.

 

My son flipped out when on fish oils. Horrible. Horrible. Horrible.

 

 

I was so scared to try fish oil with Nick but he has done very well on it and been completely tic free on fish oil. but thanks for the heads up for sure !!

 

abbe