Mayzoo Posted February 26, 2012 Report Share Posted February 26, 2012 Mayzoo, did you end up getting the MRI on Thurs, and how'd that go? We've actually gotten Allie off all psych meds. Maybe I'll try going off abx again after this polyp/cyst thing in her sinuses is taken care of. Its just that when she flares, its really, really bad- she and her family get pretty beat up, and I'm not just talking emotionally beat up. Eamom- the only imitrex we have is the nasal spray cartridge. When it does work, it does so very quickly. No, we did not get to do the MRI. Her throat is still red and the hospital and I do not want to take the chance (2 hour sedation). Her next pedi appt is on the 29th, and if her rapid culture is still positive (or even if it is negative) I am going to have them send it off to see if anything else grows since we cannot rid of this strep (yet). She tested positive on 1-5 and no telling how long she had it before that because she had no symptoms other than the red throat (I did not know her throat was red ). The hospital says we need to go to an ENT, and if she is still positive we probably will because I am guessing we may need to discuss a T & A even though the tonsils "look fine". I am very glad you got almost everything done that you wanted in the one visit. That makes a huge difference in trauma sustained to the poor kiddos. That is great you were able to get her off the other meds, and it is a good expectation that you should be able to eventually get her off abx, but that will sadly just have to be a trial and error guessing game---seems to be no way around that. Link to comment Share on other sites More sharing options...
mkur Posted February 27, 2012 Report Share Posted February 27, 2012 I hope the sinuses are an easy fix and the answer. It is so stressful not knowing. Hang in there. Link to comment Share on other sites More sharing options...
Mary M Posted February 27, 2012 Report Share Posted February 27, 2012 Peg-you are so strong and courageous and you are such an advocate for Allie. Link to comment Share on other sites More sharing options...
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