A Few different thaughts...

[Doatline]

Hello everybody,

I'm a father of a 7 year old boy with tics that have soon lasted for a year. I'm suspecting Tourette's is what we are facing. I must say, thank you to all of you who have actively participating in this forum. Although I was reading lots(this and other forums), I have hoped that I or we will not be in the same boat as you and never posted myself. I'm sure there are many like me and you should know that you are being received by more people than you think. Unfortunatelly it becomes rather clear that I/we are in the same boat. I am totally crushed by this and I don't know if and how I can cope. My son is my life and it's so tough right now that I can not even explain. I feel for you all who are going through similar emotional crisees. I know some are more positive in their outlook (my wife - thanks God) but for me it's a pain beyond belief.

 

I tried many different things and approaches... diet, supplements, TV/comp game blackout .................... you name it. I have been hopeful at times but I'm still surrounded by ???????????????

 

One thing that I have noticed is the divide between "mainstream medicine" and the "alternative medicine". I wish both "sides" could join forces to try to combat this thing. Are there any MD's out there who have been affected by TS? Do they also have complete faith in the "mainstream med"?

 

That's all for now,

 

I'm sorry for the sad tone of this post.

[Chemar]

Hello Doatline and welcome to the Forum

 

I think we all can understand how you are feeling as it is an emotional place we have all been in and for many, still are in.

Nothing "gets" to a parent more than wanting to make things "right" for their child and feeling helpless to do so. But take heart, as many of us can attest, with trial and perseverance their IS hope that you can make a big difference!

 

also, thankfully, in answer to your last question....YES! many "mainstream" doctors are realising that there is so much more to healing than just prescribing medications that mask symptoms and frequently bring nasty side effects! The Integrative physicians (including DAN doctors) are using their conventional training with the added insight of specialization in alternative/complementary/natural medicine to bring a truly holistic approach to healing, and again, many of us here can attest to just what a difference that has made!

(in case you havent seen it, there is a thread right at the top of this forum to help in finding such medical help)

I hope you will be able to locate such a doctor to guide you and that you too will discover just how much things can improve for your child

 

do stay in touch here....it is so very important to have a support group where you know people will understand what you are going through and who can share the ups and downs with you. I didnt discover this until we were already through the worst, and I know I could have been spared SO much emotional pain had I been able to be part of such a group back then.

[Irena]

Hi,

It is so true what Chemar said in her post.

 

I switched the computer on today only to find the words that I needed so much today, incuding Doatline's. Becasue today again I feel helpless and overburdened with all this. I thought at least one thing I had under control. My son's allergies. After removing foods that were identified as allergens and introducing milk and diary back (negative in IgE and non-IgE test) I watched in amazement how all his skin rashes started to disappear, he stopped scratching himself and his tics diminished so greatly that no-one, except me (always watching - stupid me!) could notice.

 

Ufortunately, for the last two days I've been observing rashes and scratching coming back. So, needless to say, I'm on a rollercoaster heading down again. And I know I shouldn't. In other thread Sydsmom said how big is an impact of our stress on our kids. They can sense our mood perfectly.

 

But I simply know that we will have to withdraw milk (and almonds????). We avoid everything that feeds yeast, we avoid foods that Staś tested allergic to, we avoid foods that are not good for B blood type (e.g. all grains except rice, millet and oat). I've always loved cooking. Now I'm starting to fear the moment I have to decide what to prepare for breakfast, lunch and dinner.

 

But on the other hand, we are nowhere near the place we were when we started this approach. And I try to keep reminding it to myself and be grateful for that. I have noticed that I am in danger when I'm starting to think that I can handle it myself. I cannot and I don't have to! Each time I pray and say to God that it is too much and trust it to Him, I have more peace in my heart. The Pope is in Poland now. Today he said that faith is not accepting some truths but having trust in God in moments of trial. I find it difficult but keep trying.

 

And the last thought. How wonderful it is that many of us - worried, busy desperately trying to find help for our kids, searching the net every day - seem to have a spouse who is more calm about all this. And even if we get angry sometimes (I do) that our husbands/wives, although supportive, do not have our knowledge about yeast, mercury, and so on, let's be grateful for that, maybe it is better this way. At least there is someone that can cool us down and help see things in proper perspective.

 

(sorry for my English )

Irena

[Sydsmom]

When I read these posts I immediately flash back to a time when this was all soooo overwhelming to me. It breaks my heart. But we can't stay in that place. I know for me I often look around at my own friends and see the diabilities their children or other family members have and think "If my daughter had to have something, I'm glad it's TS". It seems every family has something to deal with. Irena - you are so on the money with giving it to God. He is bigger than all of this and it was allowed for reasons we may not ever know. For me, it keeps me clinging to Him so that's a good thing.

 

Doatline - please hang on to the fact that good days are ahead. Keep searching for a good doctor - you're on the right track with your thinking. I've often thought the same thing, more doctors need to mix mainstream med. and alternative. I hope today finds you feeling better. Take care.

 

Lisa

[Andy]

Become pro-active and as you see progress you will slowly get thru it.