JuliaFaith Posted January 31, 2012 Author Report Posted January 31, 2012 (edited) S- the l-lysine looks intriguing - TQ! Costco puts the Valtrex @ $228 for (30) 500mg pills - (our $6500 deductible means we pay oop for many months- I know you feel my pain). The generic pill is only $80 but it's for the 1 gram dose. Anyone know if the pill can be split w/o losing effectiveness? Have never done thyroid panel but it - and adrenals - are on the list for doc on Thurs. along with new EBV & CBV titers so we can see which direction the titers are moving. Also going to ask about the resveratrol, ATP, anemia...going to be a jam packed 45 min visit. The ATP and l-lysine are in line with my gut - find the basic, underlying "system" issue - the block(s) that are keeping her body from dealing with the EBV/CMV the way her peers do (50% of 5 yr olds have had EBV, 95% of adults have had it - why is it kicking HER butt and no one else's? That's the root issue I want to find and treat). Thank you ALL for your support and ideas. It means a LOT! Another underlying reason can be nagalase enzyme levels too high. Viruses create nagalase so you vitamin D binding protein (that binds vitamin D with macrophages) is not created in the body. Supplying this protein, by injection, or now available homeopathically to tell body to make it, can solve the problem and kill the viruses allowing nagalase levels to eventually return. This protein is known as GcMAF, for use with injection, but recently available as homeopathic, much more affordable and no injection, through BioPure in Europe as Homeo K MAF. If someone is caught in that vicious cycle, it's nothing lysine is going to fix up. Is the homeopathic K MAF really available to us? This is a question I have for our next dr. visit. Thanks Michael. Edited January 31, 2012 by JuliaFaith
JuliaFaith Posted January 31, 2012 Author Report Posted January 31, 2012 (edited) Valtrex- Anyone know if the pill can be split w/o losing effectiveness? My son gets the generic Valtrex: Valacyclovir HCL tabs 1000 mg and we cut them in 1/2. He takes 1/2 with breakfast and 1/2 with dinner. Used to have to wash red food coloring off of them before using but now they are white. Edited January 31, 2012 by JuliaFaith
SSS Posted January 31, 2012 Report Posted January 31, 2012 S- the l-lysine looks intriguing - TQ! Costco puts the Valtrex @ $228 for (30) 500mg pills - (our $6500 deductible means we pay oop for many months- I know you feel my pain). The generic pill is only $80 but it's for the 1 gram dose. Anyone know if the pill can be split w/o losing effectiveness? Have never done thyroid panel but it - and adrenals - are on the list for doc on Thurs. along with new EBV & CBV titers so we can see which direction the titers are moving. Also going to ask about the resveratrol, ATP, anemia...going to be a jam packed 45 min visit. The ATP and l-lysine are in line with my gut - find the basic, underlying "system" issue - the block(s) that are keeping her body from dealing with the EBV/CMV the way her peers do (50% of 5 yr olds have had EBV, 95% of adults have had it - why is it kicking HER butt and no one else's? That's the root issue I want to find and treat). Thank you ALL for your support and ideas. It means a LOT! Another underlying reason can be nagalase enzyme levels too high. Viruses create nagalase so you vitamin D binding protein (that binds vitamin D with macrophages) is not created in the body. Supplying this protein, by injection, or now available homeopathically to tell body to make it, can solve the problem and kill the viruses allowing nagalase levels to eventually return. This protein is known as GcMAF, for use with injection, but recently available as homeopathic, much more affordable and no injection, through BioPure in Europe as Homeo K MAF. If someone is caught in that vicious cycle, it's nothing lysine is going to fix up. **Michael, is this product too new to really say it can fix viral issues once and for all? And the homeopathic version- by putting a watered down (and energized) version of it in the body, that will bring the levels down? Sounds almost too good to be true.
NancyD Posted January 31, 2012 Report Posted January 31, 2012 Laura, Querciplex consists of Quercitin (333 mg) and Bromelein (100 mg). Quercitin is powerful antioxidant, natural anti-histimine, and anti-inflammatory. Bromelein is an anti-inflammatory. Can you tell me about the querciplex? We tried SAMe briefly but the timing was not right so I pulled it for the time being. Will have to go back and try it again soon. At the time I thought it might be making DD's anxiety/OCD worse. Are you doing anything to support adrenals? That could help with energy. Also, what about B12? Anyone ever done any supplementing with SAMe, ATP or methionine? Feels like these might address both energy and homocysteine/histamine. Also, anyone every treated for issues with ammonia or the Krebs Cycle? Just trolling for ideas.
cobbiemommy Posted January 31, 2012 Report Posted January 31, 2012 This is one of the issues we are facing as well. Ds has elevated titers for EBV, Parvovirus b19, and HHV6. We are hoping that Dr. B can shed some light on this in two weeks. He is sooooooo tired and depressed acting. Who wouldn't be depressed if you were tired all of the time? There is a Youtube page featuring Dr. Jose Montoya of Stanford that is outstanding in explaining what it feels like for patients and the treatments. The video is long, over an hour, but it is very informative. My son has been dragging around (I mean that in a nice way) since his first and only IVIg wore off. He was not even this tired before his IVIg. I am ready to try the Valcyte for him because nothing else, short of IVIg, has worked. Cobbie
MichaelTampa Posted January 31, 2012 Report Posted January 31, 2012 (edited) Is the homeopathic K MAF really available to us? This is a question I have for our next dr. visit. Thanks Michael. I just ordered some this past weekend, I had tried earlier but couldn't find it available, but it is now, on the europe biopure website. Just got an email yesterday that it had shipped. Edited January 31, 2012 by MichaelTampa
MichaelTampa Posted January 31, 2012 Report Posted January 31, 2012 **Michael, is this product too new to really say it can fix viral issues once and for all? And the homeopathic version- by putting a watered down (and energized) version of it in the body, that will bring the levels down? Sounds almost too good to be true. I would say it's use in the lyme community is too new to make any kind of statement like that. First of all, the real GcMAF has just had limited use in the last year in the lyme community here in the US. I know I have been helped tremendously by it, but still at this point, I can't say it has fixed viral issues once and for all. I am still cycling on and off it from energy testing. I know that a number of people have found the product has caused a lot of inflamation. I think this is from it's strength, it's going right at it and helping the body kill lots and lots of stuff. I have not run into that at all, probably helped in part by energy testing and guided on dosage and timing by what the body says is okay, and also I did IV ozone before that should have dramatically cut down the load as well. But it seems understood at least fairly well, if you have viral issues and a high nagalase, until you really using something pretty powerful, it's going to be hard to get out of that cycle. That's why the comment I made to LLM, and I don't know nagalase is an issue in her case, but just saying, in some instances, you can get in this cycle, you're going to need something strong antiviral to do it. Could be IV ozone could do it for some, or Valtrex, I don't know. As much as IV ozone helped, it got me only to a point and the GcMAF much further. The GcMAF really directly gets at the nagalase problem (if you have it), and it may be that IV ozone or Valtrex won't do that, probably we don't know that at this time. GcMAF has been used in Europe for years, for limited experimentalists of course, on cancer, a disease with a strong viral component. The homeopathic version of this GcMAF, I don't know how long it's been around, perhaps a few months, maybe one doc or so has been trying it with a few patients, I am speculating a little, but it's just a new one on the market now. Some are also getting inflamatory responses with this product too, so, again, be careful with it, everybody, but also know this speaks to its power.
SSS Posted January 31, 2012 Report Posted January 31, 2012 Thank you very much Michael for taking the time to explain that- it is very interesting. I have read some testimonies from ASD parents using it, and it does seem strong, and does fight- a child with chronic clostridia was dealing with die off-- I'm not really up for testing for a new possible issue- sure you know what I mean.
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