Dr. Drew Show--Le Roy Girls

[EAMom]

Lydia's and Thera's tics look even worse this day.

 

The Dent docs must be playing symptomatic whack-a-mole. At 5:43 the subtitle reads "Lydia is on 9 medications which have helped her symptoms but she now blacks out."

 

http://www.hlntv.com/video/2012/01/21/dr-drew-talks-teens-mystery-illness

[kim]

I didn't even finish watching that interview but I can't help noticing that they described dystonia to a tee. Has anyone heard that mentioned in any of the interviews/articles?

 

I wonder if these parents are aware of Desiree Jenning's story? The cheerleader who develped something very similar after a flu vaccine. Tons of video on line,

 

one found here

http://www.insideedition.com/news/3525/woman-says-flu-shot-triggered-rare-neurological-disorder.aspx

 

I can't believe ANYONE would say on national TV that this is "conversion disorder." The insurance billing info that someone posted, made sense...but your professional reputation???

 

Also, due to a question that someone asked on another thread, I found this paper last nite and it was like popping the top off of the strep cookie jar!

 

Something that really stood out was a statement about only girls developing chorea after puberty??!!

 

http://cmr.asm.org/content/13/3/470.full#xref-ref-509-1

 

Maybe others were aware that info was out there, I wasn't and wondered if that could be a clue as to why an infectious agent wouldn't be affecting boys too.

 

Since something similar happened at a school 4 years ago (all females too according to the reports I'm aware of) it is totally unacceptable that they are acting like this is a closed case of stress induced psyc disorder. Maybe we should all stage a protest in that town and I'm only HALF joking.

[laurenjohnsonsmom]

Hi Kim, I noticed how your link was to a "Inside Edition" piece. I know the editor there, VERY well. As much as they come across as more of a "national enquirer" type. They are very sympathetic to these families and situations and truly want to help. Time will only tell where this ends. Hopefully with these families finding the right docs,right diagnosis and healing such as we did. So frustrating... (((

Edited January 22, 2012 by laurenjohnsonsmom

[T_Mom]

...I found this paper last nite and it was like popping the top off of the strep cookie jar!

 

Something that really stood out was a statement about only girls developing chorea after puberty??!!

 

http://cmr.asm.org/content/13/3/470.full#xref-ref-509-1

 

Maybe others were aware that info was out there, I wasn't and wondered if that could be a clue as to why an infectious agent wouldn't be affecting boys too.

 

Since something similar happened at a school 4 years ago (all females too according to the reports I'm aware of) it is totally unacceptable that they are acting like this is a closed case of stress induced psyc disorder. Maybe we should all stage a protest in that town and I'm only HALF joking.

 

 

Kim--Great find!

 

Here is the quote which you made reference to (in the above noted article) re: Chorea and "GIRLS ONLY" post-puberty!!!

 

"...Other manifestations observed in rheumatic fever are seen less frequently and include subcutaneous nodules, Sydenham's chorea, and erythema marginatum (134). Sydenham's chorea is a neurological disorder causing involuntary movements, muscle weakness, and emotional disturbances. After puberty, chorea is seen only in females (507). Chorea can be the only major manifestation present in rheumatic fever, but in the presence of an elevated ASO or anti-DNase B titer, a diagnosis of rheumatic fever can be ascertained. Antibrain antibodies reactive with neurons of basal ganglia and other brain tissues have been reported in the sera of patients with Sydenham's chorea (82, 254). Experimental therapy by plasma exchange has been reported to be rapidly curative in patients with chorea (512). "

 

SOMEBODY really needs to get that little quote to the Leroy parents that are having a difficult time swallowing the "conversion" disorder diagnosis!

Edited January 23, 2012 by T.Mom

[EAMom]

...I found this paper last nite and it was like popping the top off of the strep cookie jar!

 

Something that really stood out was a statement about only girls developing chorea after puberty??!!

 

http://cmr.asm.org/content/13/3/470.full#xref-ref-509-1

 

Maybe others were aware that info was out there, I wasn't and wondered if that could be a clue as to why an infectious agent wouldn't be affecting boys too.

 

Since something similar happened at a school 4 years ago (all females too according to the reports I'm aware of) it is totally unacceptable that they are acting like this is a closed case of stress induced psyc disorder. Maybe we should all stage a protest in that town and I'm only HALF joking.

 

 

Kim--Great find!

 

Here is the quote which you made reference to (in the above noted article) re: Chorea and "GIRLS ONLY" post-puberty!!!

 

"...Other manifestations observed in rheumatic fever are seen less frequently and include subcutaneous nodules, Sydenham's chorea, and erythema marginatum (134). Sydenham's chorea is a neurological disorder causing involuntary movements, muscle weakness, and emotional disturbances. After puberty, chorea is seen only in females (507). Chorea can be the only major manifestation present in rheumatic fever, but in the presence of an elevated ASO or anti-DNase B titer, a diagnosis of rheumatic fever can be ascertained. Antibrain antibodies reactive with neurons of basal ganglia and other brain tissues have been reported in the sera of patients with Sydenham's chorea (82, 254). Experimental therapy by plasma exchange has been reported to be rapidly curative in patients with chorea (512). "

 

SOMEBODY really needs to get that little quote to the Leroy parents that are having a difficult time swallowing the "conversion" disorder diagnosis!

 

Wow! It's right there in black and white (no pun intended). We also need to get this to Dr. T. Anyone in contact with him?

[EAMom]

Okay, I sent Dr. T. an e-mail. Hopefully he's not overwhelmed with other things, and he'll see it! (Maybe if anyone else talks to him, they can let him know?)

Edited January 23, 2012 by EAMom

[kim]

Thanks for picking up that ball EA&TMom's

 

This is kinda interesting too. A little more than 1/3 of the way down is the info below.

 

http://endo.endojournals.org/content/147/2/659.full

 

Females Heightened Immune Status: Estrogen, T Cells, and Inducible Nitric Oxide Synthase in the Balance

 

 

An interesting observation made by Karpuzoglu et al. is that the exposure to estrogen rendered T cells susceptible to respond to suboptimal levels of anti-CD3 or Concanavalin A. These findings suggest a potential route for initiating an immune response to irrelevant or self antigens that would otherwise be ignored. Such a pathway could contribute to the increased susceptibility of females to autoimmune diseases.

 

 

 

Lynn,

 

I know the editor there, VERY well

 

Can you get them to cover this story and then interview you along with one of the families?

Edited January 23, 2012 by kim