PANDAS and skin reaction - blisters

[mbourque22]

Hi, my daughter (who was diagnosed with PANDAS 3 years ago) has been having what I thought was an allergic reaction to something for the past few months. Her hands and arms get red and itchy and sometimes burn. Sometimes her legs and feet get it too. We just went for allergy testing both skin and blood and everything was negative. The Dr said it could possible be an autoimmune response.... She even got blisters the last time on her legs and face.... Has anyone ever heard of something like this or had a similar experience????

Thanks,

Michelle

[WorriedDADNMOM]

My only addition would be our dd7 diagnosed with Pandas had little "eruptions" on her face. Not sure what they were. Assumed lingering impetigo from year earlier. Integrative ped has seen that in many Pandas kids. I do know that immune issues can cause this stuff. IE----herpes on lips when immunity is strained.

 

My 3 dd's all had milk allergy as babies. One had severe eczema, one projectile vomiting and one colic. Same thing, just presented differently. Did not figure it out unitl #3 colic was so bad. Hope this helps.

 

Doing any abx or supplements??????

[vermontmoms]

Since Nov. my son has had skin issues on his face. His look like chickenpox type scabs. He still has them two months later. In the past he had eczema, colic, gastro issues, etc. as a baby too. He is not on any meds right now but he was on plenty in Nov when they started.

[MomtoJake]

My DS has a red blistering rash that comes and goes on his elbows. When it is not flared up it presents as white bumps. He also has a strange red dot on his cheek that flares up and recedes with illness. He never had this until his bout with strep and scarlet fever that led into PANDAS. Now it won't go away. We saw his PANDAS doc, Dr. M yesterday and she is referring us to an allergy/immunologist because of these and high IGE etc I happened to get good pictures of the rash in a flare and she saw the remnants. She said many of her PANDAS kids have the lone red dot/sore thing on their face. So strange.

[butterflymom]

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Edited October 7, 2015 by tampicc

[kim]

MomtoJake,

 

Curious if that lone spot looks like this?

 

http://dermatlas.med.jhmi.edu/derm/indexDisplay.cfm?ImageID=-781380202

[MomtoJake]

MomtoJake,

 

Curious if that lone spot looks like this?

 

http://dermatlas.med...geID=-781380202

 

It does look somewhat like that actually except there is nothing radiating outward from it. Other than that it does look like it. I will read up on it, thanks!!!!

[kim]

I almost said "only not as pronounced on little vessels," actually.

 

Does anyone else here have a child with one? I don't think they're terribly uncommon, I was interested because of the remark

 

She said many of her PANDAS kids have the lone red dot/sore thing on their face.

[sf_mom]

Perhaps Coxsackies otherwise known as "Foot and Mouth" typically sores on face, mouth and feet. You can run for titers via Lab Corp.

[thenmama]

Add us to the club, both of mine have skin issues. They both get bumps like keratosis pilaris. Ds is prone to all sorts of mysterious rashes. One recurrent one is around the mouth (small red bumps but they never erupt and aren't allergy). He also sometimes gets petechial outbreaks on the face/neck (never on body below the nipple line) always linked in timing to illness/exacerbation. He also has two of the spots similar to the picture linked above- but his have the spidery veins spreading out-- and the center seems not so raised.

 

Presently both kids have all sorts of skin stuff going on: keratosis pilaris (lots if that's what it is), pimples (seemed normal for dd due to age/hormones but ds has never had a pimple and seems to have one whitehead on his chin tonight), a few little raised wart-like bumps on dd's finger and hand, etc. And both are flaring up. Dd mildly so. Ds, who is just over stomach bug, is really escalating. But, he's heading toward tonsillectomy and IVIG soon.

 

TH

[MomtoJake]

I almost said "only not as pronounced on little vessels," actually.

 

Does anyone else here have a child with one? I don't think they're terribly uncommon, I was interested because of the remark

 

She said many of her PANDAS kids have the lone red dot/sore thing on their face.

 

 

Kim, exactly! "Only not as pronounced on little vessels" describes it! I looked at it really carefully and it is actually a little raised right now.

[MomtoJake]

Add us to the club, both of mine have skin issues. They both get bumps like keratosis pilaris. Ds is prone to all sorts of mysterious rashes. One recurrent one is around the mouth (small red bumps but they never erupt and aren't allergy). He also sometimes gets petechial outbreaks on the face/neck (never on body below the nipple line) always linked in timing to illness/exacerbation. He also has two of the spots similar to the picture linked above- but his have the spidery veins spreading out-- and the center seems not so raised.

 

TH

 

My son also has petechial oubbreaks on the face, just not on the dot he has. His bumps, when not flared, look like keratosis pilaris, but Dr. M saw then flared and unflared this week and said it was not kp, and gave us a referral to allergy/immunology that is familiar with PANDAS. Seems like we should start a PANDAS photo data base!

[vermontmoms]

My son has everything that you are describing. He has the KP bumps on arms, shoulders, and face. He also has a scab on his cheek that he picks repeatedly. He has had it for at least 2 months now.

 

I never knew it was a PANDAS symptom...I will try to get a picture of my son's for the picture library.

[thenmama]

The strangest thing has happened in the past week with my ds's "keratosis pilaris." He's been on Clinda while we await IVIG b/c he has strep he can't seem to clear and whenever he goes off the strep returns and he goes into exacerbation (he also has immune deficiencies). He gets perianal strep rashes-- usually my first indication it's back. One day last week his OCD shot up again (or farther up, he was already flaring from a virus in Jan). That night, he tells me his bottom is bothering him again and sure enough- there's the trademark rash even though he's still taking his abx. So we go into the ped and she is sure it's the strep returning, too, so she looked up what the treatment options are for resistant strep and added a second abx-- cephalexin (the docs are getting his IVIG setup and authorized now so she wanted to treat the strep while that all takes place). Well, since he began taking the cephalexin last week, his "KP" has almost entirely cleared up! There were still just a few little bumps left yesterday and I forgot to check today. Nothing else is different to explain it.

 

Also-- this is really weird- has anyone else's child gotten flaky scalp? Ds has had it during this period of escalation. It's sort of like cradle cap, but ds is 7. Doc thought it was not fungal based on its appearance, but gave us the Rx shampoo in case. And it doesn't look like typical SD, but who knows...

 

IAs for the gallery of mysterious markings... I've got so many rash pictures I could probably fill it myself! I always document the rashes to show docs.

 

If we really want to establish a pic database I'd be happy to set one up somewhere. I wonder if we should have some sort of "parents library" hosted on another server so we have a place to upload, store, and maintain shared info and resources. I could do that, too if the community wanted it-- web design/development is part of my field. I wouldn't want anything that would compete with or distract/detract from this forum, though, so it'd really have to be like a library or resource/research space-- no talking allowed!

 

MomtoJake-- I'd love to hear what the specialists you see make of the not-KP bumps.

[MomtoJake]

[quote name='thenmama'

MomtoJake-- I'd love to hear what the specialists you see make of the not-KP bumps"

 

Our appointment is March 8, so I will let you know, if indeed there is an answer, you know how that goes! Kim on this thread actually led me to the answer to the "dot" on DS face- spider angioma-- which we actually found several of on his body. Benign in an of themselves but can be indicative of other things going on in the body. It seems like the list of things never ends. It has been on thing after another since Sept. Now DS is getting over the flu and has Reactive Arthritis of some sort.....I know all of you know the deal, constantly waiting for the other shoe to drop. I would love the database btw, and also my DS DOES get a flaky scalp/weird looking scalp lately. Haven't tied it to exacerbation yet, but I will be on the lookout.