guy123 Posted December 7, 2011 Report Share Posted December 7, 2011 (edited) I just had some bloodwork done and my vitamin D levels are low. They're going to put me on some high dose of Vitamin D for 3 months. Hopefully it won't exacerbate tics. I'm thinking I should build up the dosage slowly and make sure. Edited December 7, 2011 by guy123 Link to comment Share on other sites More sharing options...
Chemar Posted December 7, 2011 Report Share Posted December 7, 2011 Hello Guy my son had low vit D3 as well and supplementing it worked wonders for him! He likes the one by Thorne Research. It helped his Crohn's symptoms very much and had no negative effect on his tics at all. It also helped with OCD/depression/anxiety I know some have said that D supps cause tic increase for them, but my son has definitely not found this, only overall benefits. Also when he has less stress (which is always when OCD etc is dormant) he tics less so if anything, it helps reduce his tics in that way. Link to comment Share on other sites More sharing options...
guy123 Posted December 8, 2011 Author Report Share Posted December 8, 2011 Hello Guy my son had low vit D3 as well and supplementing it worked wonders for him! He likes the one by Thorne Research. It helped his Crohn's symptoms very much and had no negative effect on his tics at all. It also helped with OCD/depression/anxiety I know some have said that D supps cause tic increase for them, but my son has definitely not found this, only overall benefits. Also when he has less stress (which is always when OCD etc is dormant) he tics less so if anything, it helps reduce his tics in that way. I'm glad to hear it worked well for your son. I'll post my experiences here when I start taking it. Link to comment Share on other sites More sharing options...
guy123 Posted December 9, 2011 Author Report Share Posted December 9, 2011 Pretty sure I don't have PANDAS, strep titers were negative. Although I did get the strep test 10 years after my tics started so maybe they wouldn't still show up. I got the pills today. They're 50,000 IU (that's 12,500% RDA) of vitamin D2 (not D3 which is the kind commonly found in supplements) and I'm supposed to take it twice a week. Link to comment Share on other sites More sharing options...
Chemar Posted December 9, 2011 Report Share Posted December 9, 2011 My son was evaluated for possible PANDAS by Dr Murphy at the time when his tics/OCD were at their worst. No indication of any strep, ever. So just because someone has low Vit D3 and responds well to the supplement, is not necessarily indicative of a PANDAS condition?? I know a number of people who take D3 for other diagnosed conditions as well Link to comment Share on other sites More sharing options...
trggirl Posted December 14, 2011 Report Share Posted December 14, 2011 Guy, how did it go with the Vitamin D? Link to comment Share on other sites More sharing options...
guy123 Posted December 15, 2011 Author Report Share Posted December 15, 2011 I haven't started taking the prescription stuff yet but I've been slowly increasing my daily dose of D3 that I got over the counter. Link to comment Share on other sites More sharing options...
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