Viruses are in the drivers seat now

[JuliaFaith]

Just a recap: Son went back to school and his flare-ups lasted longer and longer after going to school. Now I bring him to the library and the next day he is flaring all day. He gets a little exercise and feels bad the rest of the day. These flares do seem to be a 'bit different' from ones in the past.

 

Had doctors appt. and she said he is muscle testing well, however, his test results show that CMV, MONO (which we never knew he even had), and HHV-6 viruses are not subsiding like they should be. He has been on Valtrex and Viressence (herbal) mixture for close to a year now but is still showing high in these viruses. Doctor has tried twice to get valcyte approved by insurance with no luck. She is going to try a third time and that is all (and she does not usually deal with insurance at all).

 

If insurance does not approve the valcyte ($1-2,000 a month!) she is recommending a new drug called 'GC MAF' which is $900 for 10 injections (once a week) with no insurance coverage. The betterhealthguy.com is trying it and blogging about his experience and has an article on it.

 

Anyone know about these or are trying something similar? I did bring a list of 3 viral meds. that I picked up on this forum (FAMIR, Engystol, & Viragrphis) but she said these were about the same as the ones he has been on for a year.

 

Any ideas would be greatly appreciated.

[MichaelTampa]

I am trying the GcMAF as well. I just took my third weekly injection today. My pendulum says it is very good. For someone who has high nagalase (suppressing production of the GcMAF in one's own body) it is probably well worth the cost with the caution of being careful dosing is not too high. Another thought for viruses might be ozone autohemotherapy, which apparently has the benefits of IV H2O2 without burning the veins like H2O2 can. I just finished a series of 10 treatments, twice a week. I have heard H2O2 is specifically good for viruses. I haven't heard that about the ozone, just that it is better than H2O2 and can do the same things. The ozone treatment involves catheter for about 30-45 minutes each time, so certainly is more painful/nuisance than the GcMAF, which is injection with needle like people give themselves for diabetes/insulin, a very tiny needle.

[sf_mom]

My girlfriend used Valtrex/Engstol/Virographis and had a serious viral outbreak around week 4. I think that particular combo is worth a try until you find out if Valcyte is approved by insurance. Both the Engstol and Viragraphis can be purchased from Pureformulas fairly inexpensive. I've read some very interesting stuff on the Valcyte... didn't look into risk since we are not intending to take it.

 

I spoke with our LLMD about the GC MAF shots... Its my understanding its hard to get, product can vary depending on source, it is a blood product and experimental at this point in terms of Lyme treatment. Our Dr. is treating only 2 individuals with GC MAF. Better Health Guy being one of them. I haven't read Better Health Guy's blog recently on the topic but its my understanding it been giving him a little trouble.

 

Michael I'll be interested to know your long term perspective on the shots so please give us an update if you continue to see benefits.

[MichaelTampa]

My girlfriend used Valtrex/Engstol/Virographis and had a serious viral outbreak around week 4. I think that particular combo is worth a try until you find out if Valcyte is approved by insurance. Both the Engstol and Viragraphis can be purchased from Pureformulas fairly inexpensive. I've read some very interesting stuff on the Valcyte... didn't look into risk since we are not intending to take it.

 

I spoke with our LLMD about the GC MAF shots... Its my understanding its hard to get, product can vary depending on source, it is a blood product and experimental at this point in terms of Lyme treatment. Our Dr. is treating only 2 individuals with GC MAF. Better Health Guy being one of them. I haven't read Better Health Guy's blog recently on the topic but its my understanding it been giving him a little trouble.

 

Michael I'll be interested to know your long term perspective on the shots so please give us an update if you continue to see benefits.

 

 

"Hard to get" is an interesting phrase. No prescription needed, just have to pay. However, my source requires money to be wired, and with my bank it took almost 2 weeks to simply execute getting money to them. That part was certainly frustrating and "hard". But, it is readily available if you can pay. I paid 660 euros for what they recommend to be a 8-week supply. So far, I have been taking less then recommended (per my pendulum testing), so it could potentially last longer than that.

 

My doc just gave me my nagalase results today, it took one month for the results to come in, level is 1.40 which is elevated consistent with the idea that this therapy could help.

 

A potential problem is the inflamation it can cause. Two weeks in I started to energy test that "Nrf2 Activator", a product that can help curb inflamation, would be good to take. If I am lucky that will head off that problem, but we'll see over time.

 

For sure, it is experimental at this time, one of those things that some have great hopes for, but remains to be proven out either way.

[sf_mom]

Hmm, maybe I should have said 'hard to get from reliable source'. I also understand Scott's issue are inflammation related. I had this conversation with our Dr. several months ago. I think he is shying away from treating additional individuals until more concrete results can be determined. Again, would love to know how you feel at the end of treatment. I find it very interesting and understand fairly good results in Autism world.

 

-Wendy

[JuliaFaith]

Thank you for all of your input. The Gc treatment sounds a bit too new for us right now. Hopefully, some other options will present themselves.

 

The autohemotherapy is sure interesting. Will put that on the list to ask dr. about at next visit.

 

Keeping the nebulizer with iodine/garlic going until the viral and babesia load goes down.

Edited December 5, 2011 by JuliaFaith