Family tests positive

[MaggiesMoons]

Whole family tests postive for Strep, and mycoplasma. Now we do 1 5 day z-pack.

Is that enough?

Never would have thought we had anything going on, and now we are affecting my ds, who tests negative.

What a puzzle this is!

[Tamistwins]

I don't think a 5 day supply is sufficient. We see Dr. B in Ct and when my mother tested positive he told her to have her physician give her a 3 week script.

[WorriedDADNMOM]

I will say that my dd7 on Aug 30 tested+ for high IgM titer for Mycoplasma---5.9 H-meaning high.Former ped did not tell us, which is why she is a FORMER.

 

Anyway----- In October, did 5 days Zith with some good improvement but right back to some exacerbation. Then I asked Ped to retest for ASO and Myco again. ASO was neg but still IgM of 3.5 or something close to that. Ped at his own decision did 6 more days of Zith. Much more improvident with it and post abx for about 5 days then comes a low grade fever again with lability. Took her into different Ped in the same group and I asked for 30 days. They pretty much thought I must be a nut. They refused and said she looks normal. Now about 10-12 days post abx, head bob(precursor to the chorea form movements) is coming back. Now going to Pandas literate Ped in early Dec. Won't mess with regular peds until this infection is cleared.

 

I am also getting my myco titer checked as well. Will update if anyone cares.

 

So no, 5 days is not long enough IMHO.

 

Also, a former ped told me last night that she had severe Myco infection in her lungs and her titers always were negative. She said they did a bronchioscope(sp) I think and cultured the tissue or sputum and it was very high in mycoplasma.

 

Keep pushing and keep your spirits up!!!!!!!!

[MaggiesMoons]

I will say that my dd7 on Aug 30 tested+ for high IgM titer for Mycoplasma---5.9 H-meaning high.Former ped did not tell us, which is why she is a FORMER.

 

Anyway----- In October, did 5 days Zith with some good improvement but right back to some exacerbation. Then I asked Ped to retest for ASO and Myco again. ASO was neg but still IgM of 3.5 or something close to that. Ped at his own decision did 6 more days of Zith. Much more improvident with it and post abx for about 5 days then comes a low grade fever again with lability. Took her into different Ped in the same group and I asked for 30 days. They pretty much thought I must be a nut. They refused and said she looks normal. Now about 10-12 days post abx, head bob(precursor to the chorea form movements) is coming back. Now going to Pandas literate Ped in early Dec. Won't mess with regular peds until this infection is cleared.

 

I am also getting my myco titer checked as well. Will update if anyone cares.

 

So no, 5 days is not long enough IMHO.

 

Also, a former ped told me last night that she had severe Myco infection in her lungs and her titers always were negative. She said they did a bronchioscope(sp) I think and cultured the tissue or sputum and it was very high in mycoplasma.

 

Keep pushing and keep your spirits up!!!!!!!!

 

 

The 5 days was a Z-Pac whihc actually works like 10 days. That is what the rest of us are on. My DS is doing a 21 day of Azithro. so far we are 5 days into it and I am seeing a slight increase in the ocd stuff, but everything else is going away. I have read that this will happen to some kids and to stay the course which we are doing!

 

I have given up on regular Peds for help, you are wasting precious time is what I have found. So we head straight for those who are recommended for PANDAS.

 

PS We go to see Dr. M next week~~~YAY! It has been a 4 month wait so I am stoked!

And yes, keep us posted on what you find out about your titers 'WorriedDADNMOM....we do care!