jasimon2 Posted October 5, 2011 Report Posted October 5, 2011 Hello. My son has been sick with PANDAS after his strep infection this past January. We were just officially diagnosed in September by Dr. Jean Corbier. Does anyone know of any support groups for PANDAS in the Charlotte, NC area? (My husband saw a car with a P.A.N.D.A.S. bumper sticker on it and almost stalked them! ) Thanks for any information you can provide. This forum is awesome!
MMC Posted October 5, 2011 Report Posted October 5, 2011 We see Dr Corbier, too. We are in the Raleigh area. My wife is in a support group here, but not sure about the Charlotte area. I am sorry to hear about your son, but hopefully he will experience recovery. Some PANDAS kids recover quickly, some have a longer road. Our road has been long, and we are still on it.
VickyLH Posted October 5, 2011 Report Posted October 5, 2011 My son was diagnosed with PANDAS in February and we also see Dr. Corbier (we see him again next week). We live in Greensboro. I have attended the support group in Raleigh once, but it was a little too far to travel every month, especially when my son was in the middle of a PANDAS exacerbation. It was very helpful to share stories amongst other PANDAS parents though. It would be nice if there was a support group closer or a group organized through Dr. Corbier's office.
beeskneesmommy Posted May 20, 2012 Report Posted May 20, 2012 I have a FB group called Carolina Parents P.A.N.D.A.S. Support for parents in the N and S Carolina. Afriend of mine runs a support group every 1st Mon. of each month at a Sarbucks near Raleigh...PM me if you need a link
Kiera Posted May 20, 2012 Report Posted May 20, 2012 You know we really need to get those bumper stickers going again I think it was a fundraiser for pandasnetwork.org a while back. Also the "got strep?" postcards - does anyone know are these cards available anymore??
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