PhillyPA Posted September 14, 2011 Report Posted September 14, 2011 I am passing along information that has helped a friend of mine. Her son was never diagnosed as pandas. However, after repeated strep including peri-anal strep that took several rounds of antibiotics to get rid of - her son developed severe OCD, tics and hoarding issues. Her son was never put on preventative antibiotics. He still is not on them. The only thing that she did was to remove all nightshades from his diet. In her words, this cured him. He has been symptom free for two plus years. He still eats no nightshades. I thought it was an interesting story. I am passing it along to all of you. For the record, I am not doing this diet but I thought some of you might be interested.
Baylor Posted September 14, 2011 Report Posted September 14, 2011 I am passing along information that has helped a friend of mine. Her son was never diagnosed as pandas. However, after repeated strep including peri-anal strep that took several rounds of antibiotics to get rid of - her son developed severe OCD, tics and hoarding issues. Her son was never put on preventative antibiotics. He still is not on them. The only thing that she did was to remove all nightshades from his diet. In her words, this cured him. He has been symptom free for two plus years. He still eats no nightshades. I thought it was an interesting story. I am passing it along to all of you. For the record, I am not doing this diet but I thought some of you might be interested. interesting... I need to look into this..
Baylor Posted September 14, 2011 Report Posted September 14, 2011 I am passing along information that has helped a friend of mine. Her son was never diagnosed as pandas. However, after repeated strep including peri-anal strep that took several rounds of antibiotics to get rid of - her son developed severe OCD, tics and hoarding issues. Her son was never put on preventative antibiotics. He still is not on them. The only thing that she did was to remove all nightshades from his diet. In her words, this cured him. He has been symptom free for two plus years. He still eats no nightshades. I thought it was an interesting story. I am passing it along to all of you. For the record, I am not doing this diet but I thought some of you might be interested. interesting... I need to look into this.. So i found this list.. much more extensive than I thought. Main Offenders: Eggplant Potatoes (sweet potatoes are okay) Sweet and Hot Peppers Tomatoes Alphabetized List: Ascorbyl Palmitate (it’s potatoes) Ashwagandha Baking Powder? (according to this website it says “All baking powder [...] seems to contain potato, though it is not listed on the label.” I don’t know, though… there are some with corn starch instead of potato or the generic “starch” on the label) Banana Peppers Cayenne Chayote Chili Peppers Datil Eggplant Goji Berries Habanero Hot Peppers (hmm, a generic catch-all, I think) Jalapeno Peppers Modified Food Starch (watch out for starch if it doesn’t say where it’s derived from) Palmitate Vitamin A (I found this in margarine and milk, it’s potatoes) Paprika (seems to be in all sorts of things: mayo, hotdogs, mustard, sausage) Pepinos Pickles (I’ve found that most pickles contain peppers :-( ) Pimentos Potatoes (sweet potatoes are okay) Shellac Wax (comes from Lac beetle that feeds on Wolfberry plants, found on shiny fruit and veggies, commonly not listed in ingredients) Solanum Starch (if it doesn’t say where it’s derived from, check with the manufacturer) Sweet Peppers (black pepper is okay) Thai Peppers Tobacco Tobasco Tamarios Tomatillos Tomatoes Vitamin A Palmitate (I’ve found in margerine, milk, ham, heavy cream, whipped cream, cheese - it’s potatoes) Wax Peppers Wolfberries Yeast (according to this website “Most yeast contains potato, both baking yeast and beer yeast. Red Star yeast does not contain potato.”) Herbs / Plants: Banewort (another name for nightshade) Belladonna / Atropa Belladonna (used in Homeopathy, found in Viagra) Bittersweet (Atropine Belladonna) Brugmansia Datura Devil’s Cherries (another name for nightshade) Devil’s Herb (another name for nightshade) Divale (another name for nightshade) Dubiosia Dwale (another name for nightshade) Dwayberry (another name for nightshade) Great Morel (another name for nightshade) Henbane Hyoscyamus Jimson Weed Mandrake Mandragore Nightshade / Deadly Nightshade Petunias (yes, the flower) Unsure of these: Kava Kava – I saw this in a nightshades list somewhere else, but I’m thinking it’s just in the pepper family and not actually a nightshade. If someone could let me know to clear that up, that would be great! Artichokes (I read that they contain solanine, but lost my source) Blueberries (I read that they contain solanine, but lost my source) Cherries, ground (this is “ground cherries” as in cherries that grow close to the ground – not chopped cherries. It was mentioned in a forum somewhere) Huckleberries (I read that they contain solanine, but lost my source) Okra (I read that they contain solanine, but lost my source) Questionable: (check with manufacturer to see where derived from) Cellulose Dextrins Dextrose (can be potatoes, check your salt and baking powder ingredients!) Lactic acid (generally made from fermented corn or potatoes) Magnesium Stearate Maltodextrin / Mdltrin (can be derived from potato or corn) Starch Chemicals / Drugs / Medicines: Acrylamide Aspirin – can contain nightshades? Atropine Chaconine Hyoscine (another name for scopolamine) Nicotine Scopolamine (common in motion sickness meds) Solanine Viagra (contains belladonna) NOT Nightshades: Black Pepper White Pepper Green Peppercorns (not bell pepper) Sichuan Pepper Tasmannia Long Pepper Also toxic: Brazilian Pepper Cauliflower (contains nicotine, I mention this because I want to avoid nicotine) Other Foods that I react to (that are not nightshades… Salicylates?): Radishes – causes swelling and not sleeping well (very high in salicylates) Pink Grapefruit – anaphylaxis (high in salicylates) Pink Lady apples – anaphylaxis (high in salicylates also has Lac Resin on them which is a nightshade) Carrageenan / Agar – causes food addiction. I found it in turkey lunch meat and toothpaste (comes from a red seaweed). I also read that it might cause low blood pressure (I have this problem). Alginate – this is a seaweed as well, so I’m putting it on my list just in case I react to it like carrageenan Irish Moss (Chondrus crispus) – another word for seaweed Carmine (red dye) – causes anaphylaxis. Found in desserts, cosmetics, crayons? Also named E120. Cochineal (red dye) – causes anaphylaxis. Found in grapefruit juice, cosmetics Red Dye #2 – causes anaphylaxis. Used to dye the skin of oranges, used in desserts Bacon – is commonly cured with pepper spices. Sausage – commonly includes pepper spice. Annatto color – comes from the red seeds of the Achiote Tree. There’s that red color again. Mango – ? I have a question mark here because I think it’s what caused a reaction in a lip balm- unsure, though. http://nightshadejournal.com/2010/12/my-complete-listing-of-nightshades-and-foods-that-contain-solanine/
PowPow Posted September 14, 2011 Report Posted September 14, 2011 There is a book, maybe called the anti-inflammatory diet? A family member with AS & another with Crohn's have this book and were going to try it but honestly-- it was too intensive to consider and frankly, went against most of the conventional "healthy diet" thinking. I am not saying that it is not valid in decreasing inflammation-- just too darn difficult to wrap my head around!
Christianmom Posted September 14, 2011 Report Posted September 14, 2011 I am passing along information that has helped a friend of mine. Her son was never diagnosed as pandas. However, after repeated strep including peri-anal strep that took several rounds of antibiotics to get rid of - her son developed severe OCD, tics and hoarding issues. Her son was never put on preventative antibiotics. He still is not on them. The only thing that she did was to remove all nightshades from his diet. In her words, this cured him. He has been symptom free for two plus years. He still eats no nightshades. I thought it was an interesting story. I am passing it along to all of you. For the record, I am not doing this diet but I thought some of you might be interested. Did your friend's son have symptoms of nightshades allergies ("sleepiness, abdominal cramps, diarrhea, in the first hour after ingesting nightshades and often migraine headaches") that made your friend avoid the nightshades for her son? Or did her son just have the severe OCD and tic symptoms?
PhillyPA Posted September 14, 2011 Author Report Posted September 14, 2011 No symptoms of nightshade allergies. Just OCD,especially hording, and tics. Her son was and is completely neuro typical. This was sudden onset.
Christianmom Posted September 14, 2011 Report Posted September 14, 2011 Hi PhillyPA, I mentioned this post to my naturopath and he asked if you could specifically ask this person what foods they avoided that helped. In other words, did avoiding certain nightshade foods help more than others? Thank you.
P_Mom Posted September 14, 2011 Report Posted September 14, 2011 Pam... Do you know if this child has had strep in the past two years?
thereishope Posted September 14, 2011 Report Posted September 14, 2011 To me, it sounds like it was strep induced PANDAS that continued to be aggravated by a possible allergy/sensitivity to nightshades or certain foods. Once they eliminated that allergy/sensitivity, recovery was able to finish. Some kids can go on to be symptom free without antibiotics as long as that foundation of a calm immune system is in place to allow the body to heal. So, even though her child is symptom free and can maintain that without any abx, if strep were to hit any part of his body again, she may see a resurfacing of symptoms. Has her child had strep without any PANDAS symptoms (or I should say PANDAS like symptoms since the child does not have a diagnosis)since the original onset?
PhillyPA Posted September 14, 2011 Author Report Posted September 14, 2011 I will check into all of your questions and get back to you. Her children have always been home schooled so their contact with other kids is minimal.
keeptrying Posted September 14, 2011 Report Posted September 14, 2011 I will check into all of your questions and get back to you. Her children have always been home schooled so their contact with other kids is minimal. it would be great to know too how long it took your friend to see symptoms improve after the removal of the nightshades. Did symptoms stop completely? Thanks for finding out more info for us.
PhillyPA Posted September 15, 2011 Author Report Posted September 15, 2011 This is what she did: Cognitive Behavorial Therapy Naturopathic remedies Diet of little wheat and dairy Removal of ALL nightshades OCD behaviors decreased over 4-5 month period. Still on a reduced dairy, wheat, and nightshade diet but not super strict. No strep since that time. No increased anxiety with illness or colds. She credits the cognitive behavioral therapy as being extremely helpful.
dcmom Posted September 15, 2011 Report Posted September 15, 2011 Interesting. Would be hard to attribute any improvement to diet. Not having strep seems like the best way to prevent recurrence Four to Five months is a long time.....
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