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Posted

My son is 7 days into a steriod burst and for the last two nights has been up 7 or 8 times to use the bathroom. Other than that he's had some emotional swings and I'm starting to see some increase in hunger but I'm not seeing him drinking a lot more than normal. I know for a fact that he has not had a lot to drink before bed the last two nights so that's not the issue. He's waking me up to go with him because he's terrified of the dark and typically ends up in our bed (that's a separate issue) but since I'm up I know that he is actually using the restroom every time. Sometimes he has to go again before he can even get back to sleep. He said he isn't having this issue during the day - just at night. Is this normal? I tried to look it up on the internet but just found a site that says call your doctor if you continue to have frequent urination issues. I've called the doctor and left a message.

Posted

We have urinary frequency, the constant feeling of having to go, the constant feeling of being wet down there, and the fear of accidents as a pandas symptom. I think for us, it is a physical issue that snowballs into an OCD thing.

 

Is there any possibility this symptom appearing is pandas and coincidental with the starting of steroids?

Posted

I don't think it's a PANDAS symptom but of course I could be wrong. The reason I think it's something else is because it only happens at night and I'm in the bathroom with him and he's actually going quite a lot - it's not just a feeling. He's not afraid of an accident at night - he has those fairly regularly at night anyway. And unlike the PANDAS OCD..he isn't worried about having to go..he's annoyed that he actually has to go again. I know that urinary frequency is a PANDAS symptom but is that only at night? We've been out an about all day and he's been to the bathroom two times. He's had a drink at lunch and had some a bottle of water and I'm still having to remind him to go today. So no clue what is actually happening or whether I should be concerned.

Posted

Hi Nmom, looks like our sons are on similar tracks right now. My ds 9, is on day 9 of a 45 day high dose steroid taper. We don't have any urinary issues, so sorry, I can't help you . So far, I have not seen any improvement, maybe even a little worse! Strep is in school, I'm afraid he'll get exposed while immunosuppresed. Also, we have to go for BP and blood sugar checks weekly, so far, so good. I'll be interested to see how it goes for your son, keep us posted.

Posted

Yup. The same thing happens to my sons when they are in steroids. They get up to pee in the middle of the night. It is a lot of pee too. Steroids can cause the spilling if sugar. Nothing to worry about. It will stop once the steroids stop.

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