Momonamission, has your son tried the Carnosine? Anyone else?

[Spring]

Hi mom,

 

Thanks for the information! I'll definitely look into Carnicine.

 

Two years ago, my son's heavy metal hair analysis test came out negative. In the beginning of this year, we had our DAN doctor ordered the Great Smokies elemental analysis (for heavy metals), and Spectracell FIA5000 profile (for vitamin deficiencies) for my son. The elemental analysis showed he’s high in mercury, cadmium and antimony. The FIA5000 showed many nutrition deficiencies and low antioxidant level. After 6 months supplements, he's retested this summer. The cadmium and antimony are back to normal, but mercury is still high (drop a little though). His antioxidant level got increased from 28% to 35%. He's continuing his treatment currently. We noticed that he's less sensitive to screens recently. If you can find a DAN doctor in your area, you may want to ask for these tests.

 

Brett,

 

Forgot to mention, chiropractic also helped my son, and the treatment is covered by insurance.

 

 

BTW, I have read some non-positive feedback on Nystatin as Chemar mentioned.

[Spring]

Mom and Brett,

 

FYI. In Claire’s early posts, she recommended the following tests:

 

1). CDSA stool test (for yeast parasites intentional inflammation, etc..)

2). Great Plains urine test (for yeast/casein/gluten...)

3). Great Smokies blood test for Fatty acids (Omegas, etc...)

4). Spectracell blood test for vitamin (or nutrition) deficiencies

5). Great Smokies blood test elemental analysis (mercury)

6). Immunolab blood tests for allergies (IgG--for delayed sensitivies)

 

My son tested for 1), 3), and 5). That’s how we found out that he’s high in mercury and low in nutrition and antioxidant.

 

Hope this helps!

[Chemar]

the stool test for Candida will only show whether there is yeast overgrowth in the GIT. However, as we have recently discovered, Candida can also live in other organs and so a BLOOD TEST or the new ELECTROTRANSDERMAL computerized testing (FDA approved) is possibly a better indication of internal yeast

[mommaonamission]

Chemar,

 

Thanks for the heads up, I have not done any research on Nystatin. I will also look into the others you mentioned. The Carnosine is still working, but this was a hard week.

 

Grandma (not my mother, but his dad's) is a very loving grandma. The biggest problem stemming from this is that she can not tell my son no. She was the same way with his dad, and till this day, he has allot of growing up to do.

 

Since the whole PANDAS and experimenting with his diet, one thing I have made clear to everyone is that caffine and sugar without question will make his tics worse. She agreed with me since he goes over there 3 or so days a week after school until I pick him up. He also frequently spends the weekend of his fathers visitation there. I really need them to be on the same page with me. One day last week, I picked him up and for the first time since the Carnosine, his tics were increased by 70%. I had him go over with me everything he ate that day. He managed to leave out one very important detail that he later admitted that night when he could no longer deny that his tics were back in a bad way. He told me that his grandma gave him a few donuts and said "it was a one time thing to see how he reacted."

 

I am very upset. She expressed to me how concerned she was about this, and then this happened. Kind of like last Christmas when I asked her very nicely not to get him a cell phone...sure enough Christmas day, he calls me on his new cell phone. I don't know what to do. She caters to his every desire and I feel like I am being completely ignored. I know she is not doing it to spite me, but I don't get it! I am so frustrated. They have always helped me so much with my son, especially while I was a single mom. They made up for what his father lacked. I don't know what to do. I feel helpless, and like all the work I have done has been undone. Thanks for letting me vent.

[brett]

Hi Momonamission, it is Brett. I totally understand how you feel. It is very difficult when someone who loves your child and truly wants their best interests at heart does something that they feel is okay, but undermines the plan you have worked so hard to establish. Perhaps you could talk to her, but you can couch your words in a manner like this: "Grandma, I know how much you love grandson, and how important he is to you. You are also so important to him and to me as well. I know how worried you are about him. We all are. It is such a hard time for all of us. We need to work together to help him. I need you to help me help get him better. Your help means so much to me. Let's talk together about what works for him and what doesn't. I know you want to give him everything he asks for, what grandparent doesn't? Let's talk about what works for him the best, and we will be on the same page." etc., etc., something like that? That way you are in it together. Maybe she can agree to give him a special little something once every month, but not spoil him. It is hard for grandma's. My mom is suffering terribly as she loves my son so much.

Anyway, I am sorry about the setback. Life does have these setbacks, we cannot be there all of the time watching over them although we wish we could and worry constantly! Brett

[mommaonamission]

Thank you Brett. I had a talk with his grandad tonight. I'm hoping he can relay it to her in a way that won't hurt her feelings. Yes, the set backs are so frustrating! This is our first one, even though I knew it would happen, it is still a little dissapointing. Our Neurologist appointment is Thursday. We are seeing one of the better ones in the city who is know for trying natural remedies before resorting to meds. This seems to be uncommon for docs now days. Maybe I can gain some more understading and share it on here. Take care.