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Posted

Thank you firefly and momonamission. I will definitely find that thread on Carnosine and read it. At this point I am just trying to gather information and do things slowly. My son has not changed for the better or the worse, so I am happy for nothing worse. He still takes the Tenex each day. We started no screens this week to start. I am looking into a natural dr. and food allergy testing. I will do yeast spit test in the a.m. I am holding off on the new antibiotics (Zithromax) for a few days. I assume that I get Carnosine at the drug store? Thanks for all your help. Brett

Posted

I picked up a bottle at Whole Foods/Central Market. At little high at $50 per bottle, but has been worth every dime.

 

Thank you firefly and momonamission. I will definitely find that thread on Carnosine and read it. At this point I am just trying to gather information and do things slowly. My son has not changed for the better or the worse, so I am happy for nothing worse. He still takes the Tenex each day. We started no screens this week to start. I am looking into a natural dr. and food allergy testing. I will do yeast spit test in the a.m. I am holding off on the new antibiotics (Zithromax) for a few days. I assume that I get Carnosine at the drug store? Thanks for all your help. Brett

  • 2 weeks later...
Posted

Hi mommaonamission

 

Thanks for your valuable experience with your son. Thanks also to Firefly

for recommending the Carnosine n bringing hope to us.

 

I understand that you got your Carnosine from Wholefoods..? Do they hv an online

store? i live in Asia and need to order Carnosine online..they don't hv it here in my country

 

thanks

fuschia

 

 

Firefly, it is so funny you should mention that. Before I got online and read your post, I was on the phone with my mother. She is turning into a huge herbal advocate these days and is on board 100% with this whole tics concern. Anyway, I was just explaining to her what a wonderful night my son had last night. Usually, after his father has him for a weekend, I have to work twice as hard to get him back into routine when he gets home (food, discipline, is not monitored there much.) To my surprise, I picked him up with silence! Talking of course, but no shouting. Fifteen minutes down the road, still no tics. Usually once we get home it is a huge struggle to get him into routine. I usually have to tell him at least 3 times, get your bath, pick up your shoes, etc...When he eventually decides to listen, it is always followed by an outburst like...FINE, Gosh! Chores are never done willingly, and he is usuallly very short tempered with the cat. I feel really bad because before I realized these rages were common with tics, I was always fighting with my son. He was always grounded because of his impulsive mouth. No matter the consiquences, it was almost like he could not control the words coming out of his mouth. It was a battle of strong will. This was especially disturbing for my husband since his son is so passive and obediant (he lives with his mother though.)

 

So last night....no back talk, everything done with no questions. Bedtime was not a struggle at all. In the past, if you were to wake him up in the middle of the night by accident, he would be angry and mean. I entered his room last night to turn off his night light, and when he woke up momentarilly, it was "good night mom." Oh, that was music to my ears.

 

I always wondered why he was so angry, he has everything a little boy could want. I was driving down the road the other day in horrible traffic. I needed to be somewhere and people were cutting each other off, I wasn't moving, and there was nothing I could do. I was having horrible road rage and just had to scream outloud in my car. Then I thought about Kevin...he must feel that bottled up pressure all the time. I have since then made allot more effort to be patient with him.

 

I really thing the Carnosine is making the biggest difference. I can't imagine that much progress coming from any kind of medication I could have put him on. Take care everyone!

 

Mommaonamission:

 

I am so glad your son is doing well on Carnosine and the other supplements you are giving him !

While most people focus on the tics problem (understandably), another TS symptom is the explosive, uncontrollable episodes of rage. This could lead to a lot of relationship damage, especially in case of TS adults, if it is not recognized as a TS symptom and dealt with accordingly.

The great thing about Carnosine is that it appears to get rid of the "rage" problem almost completely (in my case and a few others I am aware of).

In case of TS kids, you may observe that the child is calmer, more "reasonable", less on a hair trigger and not given to explosions.

I'd love to hear from moms of Carnosine kids if they notice a calmer personality (apart from the reduction in tics).

 

Good luck to everyone,

Firefly.

Posted

Hi Fushia. Chemar is right, I have seen it at vitamine shoppe too. I really hope this works for you.

 

As I mentioned in earlier posts, within a week of the L-Carnosine I saw very very positive results. Since then we have had a set back. I think he ate a couple of things he might have shouldn't. Plus we've got allot of excitement going on right now with the Holidays. Hopefully, whatever he injested makes it out of his system soon and we get back to the good.

 

I am keeping him on the Carnosine because I know the good results were attributed to that. We will keep working at it.

 

Good luck to you. I really hope you get the same benefits Firefly is seeing. As an adult having delt with it since child hood, you guys certianly deserve some relief. Be well!

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