Success with ART

[laure]

I have not been on the forum both because Sophie is doing better (!) and we don't have much access to internet at our summer home in the mountains. I am cautiously optimistic because of this change - when we get back to school we will encounter the real tests - but slowly Sophie seems to be dropping the intensity of her OCD attacks, and is managing in a way that is not disruptive now. She is absolutely following the path Dr. N predicted, and has short herxy periods during the 4 day bursts of Artemisinin, but nothing major or too upsetting, and certainly nothing that keeps her from participating in her VERY active life here. (Last week she hiked 45 miles up the Adirondack mountains, some of those with a huge backpack). Gone are the 8 a day showers, even some days with no shower (yuk!) No question the herbal stuff she takes (Noni, Samento, and Apo-hepat for detox) has a clear impact on her behavior, and she is also on Mepron, Zithromax, and Cefdinar. We return to see Dr. N August 16th, for retesting at that time - he found babesia, bartonella, lyme, XMRV, and some other viruses in June. So...I believe we are on the right path and that she is slowly improving, and I may ask if it is time for CBT training or other meds that might help her to drop the OCD behaviors that might be more habit by now...or it may be too soon, unsure. Babesia takes 7 months to cure I am told.

We have not followed up with our other doctors, and I have to say it is a relief to have just one doctor for now, and one protocol, and not trying to learn everything for myself... although they were there when we needed them and to get us started and for that I am very grateful.

I can't imagine where we would be now were it not for the caring/giving/empathy of the folks on this forum, those who called me out of the blue to push me to lyme diagnosis and more aggressive treatment, and particularly some very smart, generous, and fun ladies who I met in the Rockies! Hope you are all moving ahead as we are!

[SSS]

Wow, so wonderful. Love to hear it, God bless :-)

[philamom]

Hiking 45 miles up the mountains -- that's what I want to hear!! Amazing Laura! Is she on any other detox products besides Apo-hepat? Thanks

Edited August 4, 2011 by philamom

[laure]

Hiking 45 miles up the mountains -- that's what I want to hear!! Amazing Laura! Is she on any other detox products besides Apo-hepat? Thanks

 

No, Apo-Hepat is the only thing she takes, 1/2 tsp 2 x a day. I didn't ask myself, but another mom did, and I think the answer was that her doctor feelis it is important to maintain the alkaline balance in the body, so we stopped the bentonite clay for now. No ill effects that I can see after 2 months. But then she also detoxes through all of the exercise she gets, which of course involves drinking a lot of fluids too, just guessing here.

[philamom]

Hiking 45 miles up the mountains -- that's what I want to hear!! Amazing Laura! Is she on any other detox products besides Apo-hepat? Thanks

 

No, Apo-Hepat is the only thing she takes, 1/2 tsp 2 x a day. I didn't ask myself, but another mom did, and I think the answer was that her doctor feelis it is important to maintain the alkaline balance in the body, so we stopped the bentonite clay for now. No ill effects that I can see after 2 months. But then she also detoxes through all of the exercise she gets, which of course involves drinking a lot of fluids too, just guessing here.

Thanks Laura.