Herx or bad side effect?

[tpotter]

I have suddenly started having a terrible pain in one knee, but it is not the joint. It started a few days ago when I tried to stand up, and the tendons in the back of the knee (hamstrings) suddenly tightened up (like sudden spasticity or something), and I almost fell to the floor in pain, plus, I couldn't straighten my knee. The next day, I was still having that occasionally, then my whole knee cap started hurting (particularly one side). By yesterday, I was getting intermittent tightening of the tendons on the back and front of the knee (both upper and lower parts of the knee) and a pain going completely around the entire knee. Today it's not as bad (so far), but still painful.

 

Addiitonally, my hands are getting numb, tingly and painful again. I have not switched medications in a while (currently taking azithromycin and mepron).

 

My DS said he has had similar types of pain in his knee, and both my DS's are having pain in their legs, feet, etc. all of a sudden. I do know that DS15 was probably herxing today when we had to take him to the ER by ambulance, because he couldn't breathe this a.m. (I suspect herxing from a very high dose of articin and metagencs' candibactin (he had horrendous symptoms a few days ago, and I pulled him off both.) His DAN! doctor who I took him to this afternoon after d/c from the ER agreed.

 

Anyway, does anyone know if the pain in the knee is herxing (never had it before) or a side effect I should be dealing with (I stop Mepron on Saturday for a week, per 3 weeks on/1 week off dosing.)

[lyme_mom]

I have suddenly started having a terrible pain in one knee, but it is not the joint. It started a few days ago when I tried to stand up, and the tendons in the back of the knee (hamstrings) suddenly tightened up (like sudden spasticity or something), and I almost fell to the floor in pain, plus, I couldn't straighten my knee. The next day, I was still having that occasionally, then my whole knee cap started hurting (particularly one side). By yesterday, I was getting intermittent tightening of the tendons on the back and front of the knee (both upper and lower parts of the knee) and a pain going completely around the entire knee. Today it's not as bad (so far), but still painful.

 

Addiitonally, my hands are getting numb, tingly and painful again. I have not switched medications in a while (currently taking azithromycin and mepron).

 

My DS said he has had similar types of pain in his knee, and both my DS's are having pain in their legs, feet, etc. all of a sudden. I do know that DS15 was probably herxing today when we had to take him to the ER by ambulance, because he couldn't breathe this a.m. (I suspect herxing from a very high dose of articin and metagencs' candibactin (he had horrendous symptoms a few days ago, and I pulled him off both.) His DAN! doctor who I took him to this afternoon after d/c from the ER agreed.

 

Anyway, does anyone know if the pain in the knee is herxing (never had it before) or a side effect I should be dealing with (I stop Mepron on Saturday for a week, per 3 weeks on/1 week off dosing.)

It sounds like a herx to me. I had that kind of sharp pain once in a while during my lyme treatment.I had it once in my shin. If it is not always the same pain or in the same spot that is what lyme looks like. I also took Mepron and for me it caused me to feel horrible. My llmd said mepron can kill babesia and/or lyme so you can really herx with it, especially as you get to the end of the three week dose of Mepron-the herxing can definitely get worse. The hand stuff sounds like lyme too. I am sorry you all are going through this but hang in there-you will get better and so will your kids!

[Suzan]

I agree, sounds like herxing I've had too. Our retired LLMD recommends heating pad for that type of herx. I have used it with myself and dd's and it really seems to help.

 

Susan

[tpotter]

Thanks. Just needed to be sure.