Biaxin is Helping

[lynn]

DS15 is one of the unlucky ones that has not had any real help from anything--no major help from Augmentin, azithromycin, omnicef, steroids. Did 2 HDIVIGs, got a couple of good weeks. Bloodwork still indicates something going on with immune system and the Cunningham test put us squarely in PANDAS territory.

 

Eventually, we stopped antibiotics because they didn't seem to be helping the slow downward spiral that DS had entered. As we went into finals and NYS regents exams we were at a just terrible point, with DS unable to study at all, constant rage and depression, and all of our lives deeply horribly affected. We went to guidance counselor and started crying in her office and begged her to fix it so DS wouldn't have all 50s on his freshman year finals. She (bless her sweet heart) went to all the teachers and asked them to skip some exams and give extra study time for others and we limped into regents review time with not too bad a hit, but nowhere near what DS can do when we have our real child present.

 

Meanwhile, we went to visit Dr. T and he gave us some blood work to get tested and suggested that we might want to try biaxin since both DH and I had had pneumonia when DS was younger. We started the biaxin and within a week DS had a 103 degree fever and intense joint pain. I was terrified that he was allergic to it, but after a day or so the fever cleared and the joint pain stopped.

 

And, here is the kicker, two days later DS went into his room and started doing review problems. He is still doing them. Regents are Wednesday and Thursday for Chemistry and Geometry and he is looking like at least high 80's, maybe better, on both. We had been planning the summer with the assumption that both regents would have to be retaken in the fall and that considerable remedial work would have to take place and now (please no jinx) it looks like we may be able to have a real summer.

 

I realize that most abx lose their effectiveness with time and that the puzzle isn't solved, but this interval is such a gift from God. DH and I were holding everything together, but you could see the fray marks and note that we had both gained at least ten pounds and likely were working on liver issues. I am full of hope again.

[MomWithOCDSon]

Great news, Lynn! So happy for you, and will send good thoughts that the improvements continue!

[kimballot]

Lynn - so glad you all have some relief. I hope it continues!

[Dedee]

Lynn,

 

That is such great news. We just switched from Zith to Biaxin. My daughter is positive for Myco P. She took Zith for a month with no real progress. How much is your son taking? My daughter is only seven and is taking 250mg daily. I wondered if this was enough but I am having trouble getting her to take it because it has such a bad after taste. She has only been on it for 5 days. I hope we get some positive results also. Keep us updated.

 

Dedee

[lynn]

Thanks for the good wishes! Hope it sticks for a while!

 

DS is 6'1" and 195 pounds so he gets the adult dose, 500mg twice a day.

[tpotter]

It might help more than you can imagine. Biaxin is one of the drugs that is particularly good for treating mycoplasma pneumonia. If you can get rid of that, and find any other possible infections (since his immune system was affected, there's a good chance that he picked up other "bugs" as well, then getting rid of the infection, and then doing the HDIVIG, may be the way to go.

 

I'm so glad to hear he's doing well.

[Wilma Jenks]

So happy for you!!!