article about congenital Bartonella

[butterflymom]

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Edited October 5, 2015 by tampicc

[lyme_mom]

Have you guys seen this artice? Interesting. . .

 

 

http://www.newsobserver.com/2010/05/21/492795/the-pain-of-bartonella.html

Thanks for posting this. It is very interesting. I am glad to read that a CDC scientist is taking this seriously. 26 strains of Bartonella-wow! Its catching up with Lyme.

[lfran]

I was diagnosed with Cat Scratch fever in my teens, and we are now treating DS9 for lyme and bartonella -- he showed bart antibodies.

 

He seems to be responding really well to rifampin. I will post more in a couple of days when I have more data points.

 

 

Have you guys seen this artice? Interesting. . .

 

 

http://www.newsobserver.com/2010/05/21/492795/the-pain-of-bartonella.html

Thanks for posting this. It is very interesting. I am glad to read that a CDC scientist is taking this seriously. 26 strains of Bartonella-wow! Its catching up with Lyme.

[mama2alex]

Thanks for posting this!! I may have missed it, but I don't think the article mentioned that Bartonella can be contracted from a tick bite - strange.

[kimballot]

thank you - so interesting. Just realized DH was diagnosed with this a few years back.. now I have some investigating to do!

[rowingmom]

My wonderings: Katie has always been different. She has been extremely sound sensitive since birth - I had to give up playing the piano for years because she would scream and cry whenever I played (I don't think I'm that bad). As an infant she would scream whenever we were travelling in the car. I nursed her until she was 16 months when she looked up at me, shook her head "no" and totally weaned herself at that moment (now I wonder if it had something to do with the oral apraxia which developed after the first MMR - lost words). She has always been emotionally sensitive - crying while listening to nature music (gulls or waves in the background) or sad sounding music. She is very easily frustrated, developed oral apraxia (an inability to control her facial muscles to make speech) after her 15 month MMR which we overcame with 3 years of intensive private speech therapy, has always struggled with motor delays (I had to push her on a tricycle until age 5 when she figured out the peddling motion, now she is a fiend on the bicycle). She had to have OT to figure out how to print and draw (she used to make pictures of people with legs on top of heads etc.). Her art is still pretty primitive. She has a social delay of 2-3 years. She is a smart little bunny. She can remember everything. She could read at 2 yrs (I would point at words when I would read to her when she was little), but couldn't tell me because she couldn't speak. She took piano for two years but managed to memorize everything somehow without reading the notes, so we eventually had to go back and start over reading notes. She has a lot of trouble concentrating and is on an IEP at school which removes her from her class for testing. She has a B+ average, but I have to go over all the concepts with her at home to help her figure them out. Once she figures something out she has it aced, she just has trouble learning it for herself. She has been Dx Aspergers and PANDAS, being treated by LLMD for lyme/bartonella with no Igenex results as of yet.

 

The article on congenital bartonella, and the inability to diagnose it until now, has started me thinking that perhaps that may be the problem. I have been having a lot of trouble with brain-fog and general organization for the last 5 years or so (also into peri-menopause, also a symptom of that) and I wonder if I may have passed something to her that emerged after the MMR did a job on her immune system. I have always been healthy - has my immune system kept it at bay? Her herxing is definately causing her problems and she actually started some autistic-like hand flapping last night - just said she had to, like a tic. Could some autism be congenital bacterial infection, triggered, not caused by, an immune response to the MMR vaccination? Lyme and co-infections began rising in the late 70's, autism began rapidly increasing in the late 70's, Fibromyalgia, CFS, MS, began increasing at that point too. All related to infections that we don't have the capability to test for yet?

[jjl]

There's a great book called "The Lyme-Autism Connection" and it is hosted on aweb site called Lyme Induced Autism (LIA). There is a very large growing movement that Lyme/co-infections are a very large player in autism and the book discussed congenital lyme. John L

 

My wonderings: Katie has always been different. She has been extremely sound sensitive since birth - I had to give up playing the piano for years because she would scream and cry whenever I played (I don't think I'm that bad). As an infant she would scream whenever we were travelling in the car. I nursed her until she was 16 months when she looked up at me, shook her head "no" and totally weaned herself at that moment (now I wonder if it had something to do with the oral apraxia which developed after the first MMR - lost words). She has always been emotionally sensitive - crying while listening to nature music (gulls or waves in the background) or sad sounding music. She is very easily frustrated, developed oral apraxia (an inability to control her facial muscles to make speech) after her 15 month MMR which we overcame with 3 years of intensive private speech therapy, has always struggled with motor delays (I had to push her on a tricycle until age 5 when she figured out the peddling motion, now she is a fiend on the bicycle). She had to have OT to figure out how to print and draw (she used to make pictures of people with legs on top of heads etc.). Her art is still pretty primitive. She has a social delay of 2-3 years. She is a smart little bunny. She can remember everything. She could read at 2 yrs (I would point at words when I would read to her when she was little), but couldn't tell me because she couldn't speak. She took piano for two years but managed to memorize everything somehow without reading the notes, so we eventually had to go back and start over reading notes. She has a lot of trouble concentrating and is on an IEP at school which removes her from her class for testing. She has a B+ average, but I have to go over all the concepts with her at home to help her figure them out. Once she figures something out she has it aced, she just has trouble learning it for herself. She has been Dx Aspergers and PANDAS, being treated by LLMD for lyme/bartonella with no Igenex results as of yet.

 

The article on congenital bartonella, and the inability to diagnose it until now, has started me thinking that perhaps that may be the problem. I have been having a lot of trouble with brain-fog and general organization for the last 5 years or so (also into peri-menopause, also a symptom of that) and I wonder if I may have passed something to her that emerged after the MMR did a job on her immune system. I have always been healthy - has my immune system kept it at bay? Her herxing is definately causing her problems and she actually started some autistic-like hand flapping last night - just said she had to, like a tic. Could some autism be congenital bacterial infection, triggered, not caused by, an immune response to the MMR vaccination? Lyme and co-infections began rising in the late 70's, autism began rapidly increasing in the late 70's, Fibromyalgia, CFS, MS, began increasing at that point too. All related to infections that we don't have the capability to test for yet?