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Posted

Got to watch Dr. Rao chew out a Hawthorn drug rep trying to push Abilify for his Autistic patients. It was pretty entertaining.

 

My Suppressor T Cells are functioning at half capacity. My T Cell counts were all fine, they're all just lazy. My Rubella count was 83, which is especially confusing since there's no carrier status for that virus, it's supposed to take all of three days to clear, & my Mumps/Measles counts (yes, I got the dreaded MMR) were both fine. I also totally lost my Diphtheria vaccine & barely have any of my Polio vaccine left.

 

My NKC count was pretty surprising at 87. All of my IgG subclasses were within the "Reference interval". Everything besides the suppressor cell function & the weird vaccines was technically fine but just in the really low range. For example, the RBC interval was 3.9-5.3 & my count was 4.1. Everything was like that. Really, really low but not low enough.

 

When he read the suppressor cells I could see a little lightbulb go off in his head. "We need to test you for EBV, CMV, HHV6, & [another virus I can't remember but I think was HTLV2]!" He mentioned Chronic Fatigue Syndrome briefly but I had already caught on. I let him know as respectfully as possible that I didn't care how many immune abberations came back, how many viruses we found, or if we discovered "CFIDS" written on all of my cells... I wouldn't be going down that road. Having already dealt with Lyme & P.A.N.D.A.S. (not to mention JUST having finished Osler's Web two days ago), there's just no way I'll be committing to myself to perhaps the most perilous condition to find treatment for today. I'll be interested in seeing how they come back though. I'm almost positive that the EBV will be pretty astronomical, seeing as how I'm pretty sure I have Mono as I type this. As for the others, no idea.

 

What immune problems have y'all seen in your kids? & when exactly does one get labeled "immunodeficient"? We're waiting for the results of today's tests, which also included Candida, before pursuing or even discussing any additional treatments but he told me he'd be willing to give me antivirals.

Posted

Em- sounds like a good appt. Here is the elevations in my daughter:

 

Mycoplasma IGG- 1.08

Cytomegalovirus IGG- 1.91

C. Pneumoniae IGG- 1:128

HSV 1 IGG- 4.11

Herpesvirus 6 IGG- 1:80

Epstein Barr Virus (VCA) IGG- 1.20

Epstein Barr Virus (EBNA) IGG- 2.97

Rickettsia IGG - 1:64 (was 1:256)

 

Elevated Cholesterol, Triglycerides, AST, ALT

 

She only mounted a response to two of the 14 Serotypes of S. Pneumoniae. She alos had a low response to H. Influenzae (0.22 L).

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