Last day of 10 day zith abx scared to stop for fear it's all goin

[Ann280]

Is 10 days enough..? I'm terrified my daughter will get an episode again..we had such great changes after two days of abx and 3 days of prednisone. We will be doing zith once a week for a month per Scott smith...

[EAMom]

Is 10 days enough..? I'm terrified my daughter will get an episode again..we had such great changes after two days of abx and 3 days of prednisone. We will be doing zith once a week for a month per Scott smith...

 

If you have some improvement on 10 days worth, but are not at 100%, I would ask Dr. Smith (okay this sounds reasonable to me) if it would be possible to continue at this dose until your dd reaches 100% (or at least plateaus), and then cut back gradually (while watching for a relapse), perhaps to every other day (vs. once a week)?

 

I would be nervous about Azith. 1x weekly, esp. since PANDAS kids don't seem to have a "normal" (good) immune system against strep.

Edited April 15, 2011 by EAMom

[peglem]

I agree w/ EAMom- Relapses are HARD after you've had improvement. We were on a phroph. regimen of zith where we'd do 5 days of zith and then 7 days off. It didn't work- she got strep. It sounds like you're not comfortable with cutting back yet, either.

[SSS]

Yeah, I have talked to Scott Smith (not our Dr.) and I would think he would be completely okay with doing the Azith. every day for a month to get more improvement...I would call him.

[lkaanda]

Do you mind me asking what dosage your daughter was on? My daughter is starting 400mg once a day tomorrow. The pharmacist seemed concerned by that amount. She is 9 and about 50 lbs.. Is that similar to the amount your daughter was on? I am hoping after a few says we will see some relief as well.

[Ann280]

Do you mind me asking what dosage your daughter was on? My daughter is starting 400mg once a day tomorrow. The pharmacist seemed concerned by that amount. She is 9 and about 50 lbs.. Is that similar to the amount your daughter was on? I am hoping after a few says we will see some relief as well.

She was on 200 mg one time a day for 10 days. Then he put her on 500 mg once a week for one month them a recheck and we will see what happens. The 400 sounds allot to me. Geez make sure you give her a high dose of probiotics and important to wait 2 hrs at least to give the probiotics after the antibiotics.

We ended yesterday and of course this am I a get a call from the mom who car pools with my daughter she wanted to let me know that her daughters sister has strep...urggghh I can't believe it but I actually scrapped the bottom of the container of the abx that was still in the fridge and gave it to ava before school..it wasn't a full dose but It made me feel better

[Ann280]

Do you mind me asking what dosage your daughter was on? My daughter is starting 400mg once a day tomorrow. The pharmacist seemed concerned by that amount. She is 9 and about 50 lbs.. Is that similar to the amount your daughter was on? I am hoping after a few says we will see some relief as well.

She was on 200 mg one time a day for 10 days. Then he put her on 500 mg once a week for one month them a recheck and we will see what happens. The 400 sounds allot to me. Geez make sure you give her a high dose of probiotics and important to wait 2 hrs at least to give the probiotics after the antibiotics.

We ended yesterday and of course this am I a get a call from the mom who car pools with my daughter she wanted to let me know that her daughters sister has strep...urggghh I can't believe it but I actually scrapped the bottom of the container of the abx that was still in the fridge and gave it to ava before school..it wasn't a full dose but It made me feel better

 

Also my daughter is 59lbs 10.5 yes old

[lkaanda]

Do you mind me asking what dosage your daughter was on? My daughter is starting 400mg once a day tomorrow. The pharmacist seemed concerned by that amount. She is 9 and about 50 lbs.. Is that similar to the amount your daughter was on? I am hoping after a few says we will see some relief as well.

She was on 200 mg one time a day for 10 days. Then he put her on 500 mg once a week for one month them a recheck and we will see what happens. The 400 sounds allot to me. Geez make sure you give her a high dose of probiotics and important to wait 2 hrs at least to give the probiotics after the antibiotics.

We ended yesterday and of course this am I a get a call from the mom who car pools with my daughter she wanted to let me know that her daughters sister has strep...urggghh I can't believe it but I actually scrapped the bottom of the container of the abx that was still in the fridge and gave it to ava before school..it wasn't a full dose but It made me feel better

 

 

I am not too familiar with probiotics, other than hearing of them in yogurt. What do you reccomend giving her? I thought I read on here once that yogurt is not good for PANDAS kids since there is streptococcus in it?? Any help would be appreciated. Thanks!

[Ann280]

Do you mind me asking what dosage your daughter was on? My daughter is starting 400mg once a day tomorrow. The pharmacist seemed concerned by that amount. She is 9 and about 50 lbs.. Is that similar to the amount your daughter was on? I am hoping after a few says we will see some relief as well.

She was on 200 mg one time a day for 10 days. Then he put her on 500 mg once a week for one month them a recheck and we will see what happens. The 400 sounds allot to me. Geez make sure you give her a high dose of probiotics and important to wait 2 hrs at least to give the probiotics after the antibiotics.

We ended yesterday and of course this am I a get a call from the mom who car pools with my daughter she wanted to let me know that her daughters sister has strep...urggghh I can't believe it but I actually scrapped the bottom of the container of the abx that was still in the fridge and gave it to ava before school..it wasn't a full dose but It made me feel better

 

 

I am not too familiar with probiotics, other than hearing of them in yogurt. What do you reccomend giving her? I thought I read on here once that yogurt is not good for PANDAS kids since there is streptococcus in it?? Any help would be appreciated. Thanks!

I'm not sure about Probiotics not being good for kids with pandas..Scott smith put my daughter on that plus taurine,magneisum,vid d. Melatonin (natural sleep aid) and fish oil ....this is after he read her blood so every child is different ?.but if you out your daughter on that high dose of antibiotics w/o probiotics be prepared for yeast issues, . It works for us..I think?? The probiotics I give is actually a senior version that is time controlled 20billion. Yogurt isn't really worth it to me..plus I have been told the sugar in it just cancels out the good bacteria. What doctor are you working with?

Edited April 16, 2011 by Ann280