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  1. My daughter has had the same combo for most of her two years of bloodwork..we have done every test possible...and they all come up negative. They say her immune system is compromised especially after being treated for pandas and being on so many antibiotics . One blood doctor told us that he is absolutely sure she has some type of fungus in system being that the neutrophils were low and the lymps were high...classic sign. We did stool testing and it came back with crazy amounts of bacteria much much more than a stool would have.. This confirmed his theory. she was put on a non sugar diet a
  2. We started our daughter on buspar about 6weeks ago 5mg once a day for a week then slowly to 10mg. We started to notice some changes in her behavior within two weeks..she definately seemed more at ease no worrying as much not over reactings etc.. Then she has a pandas episode I felt like the buspar helped control the depression that usually comes along with her episodes in the evening but the manic "highs" we're still there. We treated her with a pulse steroid for three days and also with her usuall zith HS e seemed to take much longer for her symptoms to go away this episode...not sure if it
  3. Curious was your child on any meds for the previous diagnosis of bipolar or aspergers?
  4. We've not figured it out either. It took me a couple of years to accept the fact that he was not in control -hmmm, same years that our doctors insisted there was nothing wrong. Until then, we tried everything. Time outs are great if your child will follow direction. I still remember night after night holding him in his room for his time outs. On the positive side, I was getting exercise too. He seems to be over the worst of it so we've not had the severe discipline problems in a while. We did make it very clear to him that if he hurt someone in the family we would take him to a hospital
  5. I'm sure this is late and hopefully you got the answers you needed but pulse dose of prednisone has ace a huge difference in my daughter when her episode was bad. It did however makes things worse before it got better,but I didn't care. I figure what other choice do I have and if it helps for three days I can deal with it and so can her body. My daughter is 62 lbs and she took 3 pills of 10 mg each once a day for three days. Not sure what others dosages are ,but that is what my daughter took which helped. Good luck I feel for you.. This pandas sucks..
  6. My 11 yr daughter sees Scott..we haven't done any dietary changes other than add vitamins to her diet.. Magnesium ,taurine, DHA, vit D. What dairy changes?
  7. I am struggling with figuring out how to punish my daughter for some behavior that is not acceptable. I feel like my husband and I are constantly allowing my daughter to get away with behavior that we would never let our other two non panda kids get away with. We still need to teach our daughter what is or what is not acceptable behavior at times. I'm not talking about when she is having a major episode and she is definately not all together sad, silly, argumentative, defiant etc... I'm talking when she is days into her treatment and she is acting okay most of the time ,but has her moments t
  8. Hi may I ask why? I know the office staff is not all together at times ,but I'm wondering more about your comment and are you referring to his associate as well Scott smith? Thanks
  9. Hi we see Scott smith as well for our daughter...I was looking to connect with some other moms using him for support. I have an 11 year old with pandas diagnosed a year ago. We live near basking ridge.
  10. Thanks for the information.. I will read it.. We came home early from the shore (due to Hurricane on the way)and I am going to call Ped tomorrow and see if he can get tested for strep again and explain the issues.. He has been healthy other than the strep. Everyone in the family is pretty good. DH has MS and I just got over a bout of vertigo but other than that.. everyone is good. No fevers, no colds.. Nothing.. I love my ped and I hope he is on board with all this. He knows My son well and should be able to see the tics and differences himself. What I need to know is ... Is this reco
  11. I totally feel for you. I agree maybe trying a different antibiotic. Have you tried a motrin protocol?or any natural supplements? Its so hard to send kids to school when these episodes happen I have struggled with that many times. Your not alone,hang in there !
  12. This was great info! I sent it out to many people I know. I also sent it to our OT that works in our school for my daughter....great to get the word out. This Pandas needs to be understood and we need to get the word out...so that others can understand what our families have to go through.
  13. Possibly see if he would allow you to tape your session. It's so hard to remember it all even with having another set of ears.
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