Need advice while waiting for results

[mdmom]

My DS13 has PANDAS confirmed by 5 doctors and most likely has been sick for 9 years.

 

Meanwhile, in seeking treatment (not successfully, yet) for my son, we have started to connect the dots on my DS11's mysterious physical health symptoms.

 

The doctor we are currently seeking help/treatment from is now looking at both of my children for Lyme and Co-Infections.

 

DS11 has a confirmed clinical dx of Bartonella (has 80% of symptoms and the tell-tale stretch-mark rash on her back - which 10 other docs have ignored).

 

Her Quest Lab tests came back with a positive for WA1 (Babesia).

 

She is only reactive to Band 58 on the Western Blot.

 

We are waiting on Lyme results from NeuroScience Labs.

 

Question: Does anyone know if you can have 2 confirmed co-infections without having Lyme?

I will be surprised if her Lyme comes back negative but I would love some feedback in this area.

 

Meanwhile, my son's Quest results are negative for co-infections. But his WBC count is 3.2 (low), Absolute Neutrophils 1555 (low), Absolute Monocytes 198 (low)

 

Question: Is it possible to have such a weakened immune system that you are not fighting co-infections and therefore would not be making antibodies to such infections?

Our next doc appt. is next week, but I am running out of hope and need some encouragement. My son's PANDAS (or Lyme, who knows?) symptoms are so bad right now, he is unable to attend school (and he attends a special-needs school under the diagnosis of Asperger's/OCD). Ugh.

 

Thanks for any help.

[lyme_mom]

It sounds like you are finally on a path to successful treatment. Having the right diagnosis is so important and a high percentage of children diagnosed with pandas have tick borne diseases, especially Bartonella which cause neuropsyche symptoms out of proporttion to other symptoms. A negative test for Lyme means nothing. I would suspect that Lyme is involved most likely if babesia and or bartonella are involved. The bartonella drugs will address Lyme most likely anyway. Mepron, which is used for babesia, can also kill Lyme so it may not matter what the Lyme results are because it will be treated anyway. A good llmd will treat the symptoms not just the test result. I'd be encouraged if I were you. Hang in there.