Paul Harvey

[Guest]

A family member told me about Paul Harvey talking about a 3 year old that was autistic and is no longer autistic and his mom used chelation therapy and a vitamin program. Its on the internet at: http://www.paulharvey.com/ under the saturday noon program. They don't say much on it, but that and about how there forming an international support group. Does anyone have any more information on this. Has anyone had any experience using chelation therapy and are there any ideas on what vitamin program this family might have used?

 

Carolyn

[Guest]

I found an article that says more about it: http://www.sfgate.com/cgi-bin/article.cgi?...BAGU0CU2K71.DTL

 

Carolyn

[kim]

Carolyn,

 

I read the autism/enzyme web site daily. There are several reports of vast improvements, and even full recoveries talked about there. One Mom talked about being at one of the Autism conventions, and people coming up to her and asking for the name of the specialist who cured her kids. She said she told them it was two internet web sites, and one other thing (I believe enzymes) and she said noone believed her, they just thought she did'nt want to share the name of her Dr.

 

You might want to read Andy's posts here. He is doing chelation with his son, and gives some explainatons of the drugs used. I think he refers to the type Claire is working toward with her son also.

 

Kim

 

Here is something I just found on the enzyme web site relating to chelation http://www.enzymestuff.com/discussiondetoxification.htm

[quan_daniel]

Kim,

Great link on enzymes..!!!

 

One scoop of salad for you(natural enzyme) joke..

 

thanks

Carolyn,

 

I read the autism/enzyme web site daily.  There are several reports of vast improvements, and even full recoveries talked about there.  One Mom talked about  being at one of the Autism conventions, and people coming up to her and asking for the name of the specialist who cured her kids.  She said she told them it was two internet web sites, and one other thing (I believe enzymes) and she said noone believed her, they just thought she did'nt want to share the name of her Dr. 

 

You might want to read Andy's posts here.  He is doing chelation with his son, and gives some explainatons of the drugs used. I think he refers to the type Claire is working toward with her son also.

 

Kim

 

Here is something I just found on the enzyme web site relating to chelation http://www.enzymestuff.com/discussiondetoxification.htm

8486[/snapback]

[Sydsmom]

I found an article that says more about it:  http://www.sfgate.com/cgi-bin/article.cgi?...BAGU0CU2K71.DTL

 

Carolyn

8483[/snapback]

 

 

Kim,

My daughter is seeing a DAN doctor in LA. She thinks we will start chelation in late June using the DMPS drops. She is currently on supplements under the doctor's supervision. We also do the GF/CF diet. Have seen great improvements in mood and behaviors but not tics yet. Her hair test was high in metals and we are waiting for her blood test to come back and be reviewed by the doctor. Hoping when the metals are under control so will the tics be under control. We'll see. The diet is hard but it has made such a difference. My daughter is 11 so the hardest part is getting her to cooperate without a fight. I'm lucky to live in an area with some great health food stores.

[kim]

Sydsmom,

 

Hi, it's nice that you decided to post. It would be great to see the results of another child doing this chelation. I sure hope Andy pops in pretty soon with an update. If you are unsure how to check posts by a certain poster, just look for that posters name anywhere, like on the threads page and click on their name and it will take you to a screen with a "view all messages" option. I don't have experience with message boards, so it took me a while to figure out how this works and if you haven't read all of Andy's posts, you would probably find them helpful.

 

It's great that you're seeing results with the GF/CF diet. Just wondering if you have viewed the enzymes website? It appears they can be helpful for slip ups, or even to reintroduce/tolerate some foods. Would like to hear if your DAN Dr. has recommended them to anyone.

 

There is a thread here that Claire started (she's taking a break from posting, and is really missed) that has test results from a handful of people that have had the type of testing your daughter is doing, it may be interesting for you to read, and even posts your results if your comfortable with that. Could you tell me what test your Dr. ordered to test for the deficienceis, that led to the supplements your using? I have been trying to get a Dr. to order the Spectracell 5000 for my youngest son.

 

If your daughers hair test was high in metals, does that suggest that at least she is excreting them? My understanding is with supplements, the body sometimes starts ridding metals, or was the test done prior to starting supplements?

 

Kim

[Sydsmom]

Sydsmom,

 

Hi, it's nice that you decided to post.  It would be great to see the results of another child doing this chelation.  I sure hope Andy pops in pretty soon with an update.  If you are unsure how to check posts by a certain poster, just look for that posters name anywhere, like on the threads page and click on their name and it will take you to a screen with a "view all messages" option. I don't have experience with message boards, so it took me a while to figure out how this works and if you haven't read all of Andy's posts, you would probably find them helpful. 

 

It's great that you're seeing results with the GF/CF diet.  Just wondering if you have viewed the enzymes website?  It appears they can be helpful for slip ups, or even to reintroduce/tolerate some foods.  Would like to hear if your DAN Dr. has recommended them to anyone. 

 

There is a thread here that Claire started (she's taking a break from posting, and is really missed)  that has test results from a handful of people that have had the type of testing your daughter is doing, it may be interesting for you to read, and even posts your results if your comfortable with that. Could you tell me what test your Dr. ordered to test for the deficienceis, that led to the supplements your using?  I have been trying to get a Dr. to order the Spectracell 5000 for my youngest son. 

 

If your daughers hair test was high in metals, does that suggest that at least she is excreting them?  My understanding is with supplements, the body sometimes starts ridding metals, or was the test done prior to starting supplements?

 

Kim

8519[/snapback]

[Sydsmom]

Sydsmom,

 

Hi, it's nice that you decided to post.  It would be great to see the results of another child doing this chelation.  I sure hope Andy pops in pretty soon with an update.  If you are unsure how to check posts by a certain poster, just look for that posters name anywhere, like on the threads page and click on their name and it will take you to a screen with a "view all messages" option. I don't have experience with message boards, so it took me a while to figure out how this works and if you haven't read all of Andy's posts, you would probably find them helpful. 

 

It's great that you're seeing results with the GF/CF diet.  Just wondering if you have viewed the enzymes website?  It appears they can be helpful for slip ups, or even to reintroduce/tolerate some foods.  Would like to hear if your DAN Dr. has recommended them to anyone. 

 

There is a thread here that Claire started (she's taking a break from posting, and is really missed)  that has test results from a handful of people that have had the type of testing your daughter is doing, it may be interesting for you to read, and even posts your results if your comfortable with that. Could you tell me what test your Dr. ordered to test for the deficienceis, that led to the supplements your using?  I have been trying to get a Dr. to order the Spectracell 5000 for my youngest son. 

 

If your daughers hair test was high in metals, does that suggest that at least she is excreting them?  My understanding is with supplements, the body sometimes starts ridding metals, or was the test done prior to starting supplements?

 

Kim

8519[/snapback]

 

 

Kim,

Thanks for the advise.  I can't even figure out how to reply just a normal reply    I ordered a hair test from Direct labs online and it came back with an imbalance of metals which the doctor said shows something is going on with Sydnie.  The doctor wants to take a bunch of tests but at one time all were too expensive.  So to start out she did: General health panel (WHS), RBC minerals, Iron and Ferritin (WHS).  She actually feels Sydnie is on the autism spectrum but very, very high functioning.  Syd does well in school socially and with her grades.  Although grades were poor until we started taking sugar, dyes and milk out of her diet.  That was last fall and by the next report card her grades had increased.  I don't know about Syd excreting metals - the test was done prior to starting supplements.  The supplements she takes now are pretty basic and all are from Kirkman labs - calcium, a digestive vitamin, one called learner's edge, a multi-vitamin and a shot of B12 2 times a week.  My husband's Aunt is very involved in the Autism community and felt Sydnie's issues had something to do with a metals imbalance.  Another doctor I had went to in Jan. also felt that her ticcing could be from an imbalance of metals and that is why I ordered the hair test.  I have been reading Andy's posts and glad he's posting his journey with chelation too.  2 of my husband's grandchildren have been through chelation.  One is highly autistic and one (Brian) was a lot like Sydnie but didn't have tics.  Both have showed significant advances and Brian is fine now.  He had had a ton of behavioral problems.  I found this site last fall and it has been a God send.  I have never posted until now.  I've been processing everything.  Thanks again for your kind words.  P.S.  I'm not sure about enzymes.  I have to see what they are and if they are in the digestive pill or learners edge.  Not sure what an enzyme is. 

[kim]

Sydsmom,

 

I'm so glad you joined in. You have so much more to share here than I do. It's good to hear that you have Dr.s and family support that feels tic issues are something more than a condition "you just have to live with and hopefully outgrow". Your progression with treatment, will be helpful to all here.

 

I found this group when I was exploding with questions and anger. For 6 years I bought what 1 neuro. told me, which was "live with it, or take prescription drugs. I'm getting over the anger part, and trying to be a little more objective now.

 

My sons condition makes it harder for me to take the necessary steps because they do, do so well with grades friends etc, but I know for the best health and happiness we need to keep going.

 

I have had really amazing success with Bonnie Grimaldi's vitamin program with my 12 year old son. He is basically tic free for a couple of months now. I don't know if your fimiliar with her program, but since you have a DAN Dr. it sounds like your pretty well set in that department.

 

I too feel our kids have at least some things in common with the kids on the Autism Spectrum. At least some of the Dr.s seem to be recognising this also.

 

I think the general health panel probably shows much of the same things my son blood work through their regualar pediatrician showed. Can you tell me if your daughter had high or low magnesium or calcium, zinc? My boys both showed as being on the high end for both mag and cal. This has been a puzzel to me, since mag. cal. and zinc seem to be at the heart, or at least part of the puzzle, for many. I have to assume, my sons are unable to absorb what's in the blood and hate to supplement with more, with out knowing. I'm under the impression that the Spectracell test shows what is in thecell-not just in the blood. Was Sydney tested for yeast? I ordered the yeast test for my youngest son through Direct Labs/Metametrix too. Only test I have ordered. I know some Dr.s think this is a problem, and some don't.

 

Kim

Ps. Just use the reply button under Tourette Syndrom/Tic-not the reply with the " and you will just post your reply

[Sydsmom]

Thanks Kim

 

Sydnie tested high (from hair sample) for Calcium and Magnesium and middle for zinc. I will be talking with the Dr. on June 20th to go over her blood test results. I went back and looked at her supplements and the Digest Right has enzymes in it. Not sure which one. All of the medical lingo and such just escapes me. My husband is better at explaining and comprehending things. I used to be so smart but lately my mind I will post after my talk with the doctor on June 20th. I do know this, whether her tics go away or not, life with Sydnie is soooo much better because of diet and supplements. I also had her neurologist and pediatrician tell me "your daughter has TS you just have to live with it". I just started praying and so my journey began and I feel God has led us on this path. I'm so glad I didn't listen to those doctors. So is Sydnie! She tells me she feels so much better mentally. One of her big things was depression and it is so much more under control. Just normal pre-teen hormones now.

[kim]

Sydsmom,

 

I read something on the Autism/enzyme site about mag. and calcium being excreted in hair sample, but I don't know if the indicated the body wasn't utilizing it, or an overload. I will be anxious to hear what your Dr. Says.

 

The first thing we noticed when I started my son on vitamins was, he stopped aching all over, especially in the morning. His school attendence has improved so much, and therefore his grades. The second thing we had improvement in and eventually stopping completely was the teeth grinding tic. The head shaking was the last to go, and I have to be careful not to get too excited because of the way this thing has of creeping back up, when you think you're home free. We have not done any food elimination (although we have removed a lot of junk from his diet, and increased fresh vegatable intake) with him, but he recently started taking allergy meds, he was so itchy at night. I guess we're going to take the meds at least for a while, as I feel anything that irritates the system, can flair tics. I would love to try a more natural remedy for this as time goes on, and we're only taking 1 and 1/2 pills instead of the three that were recommended. One is a stomach acid reducer, and from what I've read, it sure looks like these kids need their stomach acid to aid in digestion.

 

I am just working my youngest son up on digestive enzymes. I really suspect he has a big issue with dairy. It's interesting your Dr. has your daughter on some type, so he must suspect she could benefit from help in breaking down nutrients. Can you tell me who makes Digest Right? Is it Kirkman also? I would like to look it up and see how it compares to what I'm using.

 

It's great your daughter is feeling better. I think sometimes the moods are worse than the tics for some kids, especially when you throw in the hormones. If you have seen that kind of improvements the tics hopefully are not far behind.

 

Kim

 

*I'm sure you're still very smart. Mom's just have to wear too many hat's in one day most of the time. Also, I'm starting to think brain fog when it comes to Dr.s is some sort of naturally occuring phenomenon.