FIXIT

[P_Mom]

I tried to pm you....in box is full. How are you doing?

[Dedee]

I tried to answer one of your PM's and couldn't get through also.

 

Dedee

[Fixit]

Sorry guys...sometime i just walk away from the computer, leaving it on...

3 kids..one still in episode..trying to get 504..taxes next week and insurance.and other..just running...

 

quick update...ds had gotten to or verging on a 9 on the tic scale...though we had stopped lymes treatment a few weeks earlier..and were already treating for yeast and c.diff....

about 4 days prior to getting to a 9 on the tic scale 3/10/11...we strictly went on gut recovery(vanco, diflucan)...(mind you ds does not bloat, pain, vomit, diahrea...its all observational and testing)..and we added zith back as he responds well at hd(may have had an additional infection and added back the intestinal para/candida cleanse)

i was ready to go to one of pandas docs office and just wait till morning to get a big gun of any sort...

next morning woke up 3/11/11 and things seemed different(you know how you know)and by evening things were a soft 8, and the next day, sat and sun we had dropped to 6-7....stayed there..the rest of next week...

then last thursday 3/17/11...as i felt we may have peaked on abx recovery...i stopped all abx and just doing hd probiotics and detoxing..and for the weekend and currently about a 5-6...not great, as we were a solid 3, proably a 2 prior to starting lymes treatment...but he is not injurning himself and some other things have toned down...

 

i still think he could have lymes..but i am not sure how to procede..or if that is what is keeping him in episode!?!?!?

pollen count went from 220 to 2259 in 24 hour period this week...he is MUCH better than in years past with help of allery shots...

however mild shiners kicked in...mouth itching upon waking and any fruit intake...taking away all fruit again(thought we were better and was able to eat fruit...but with tree pollens being a big problem..tree fruits and tree nuts are agreivating things...so all fruits and nuts are out)

 

will try to get to inbox later today...