What to do while we're waiting?

[GraceUnderPressure]

DS18 has an appt with Dr. F in Louisiana on June 20th. Trying to figure out what we should do in the meantime. He says he uses Dr. Crist's protocol. Dr. R in Plano gave my ds a doxycycline Rx to get started though I've been holding off till his gut stabilizes from this recent stomach flu we've had (if there's any stomach upset, I want to know what to blame).

 

We've been on the herb lomatium & are about to finish it - ds18 says that, despite the rash from hades, it has been helpful (nothing earth shattering, but seems to have helped turn him around just when another downward spiral was setting in - that's tremendous to us at this point!) I've noticed that it seems to have blood thinning properties & read yesterday that Dr. Crist likes to use heparin as part of his therapeutic approach in conjunction with abx. Things that make me go hmmm.

 

Anyway, I don't want to lose the little bit of momentum we have gained after all this time & money. If we've managed to knock the lyme back a bit with the lomatium, I don't want to let it bounce back.

 

Dr. R ran some tests for parasites, giardia, gut worms, clostridia etc, that were negative (LabCorp - so not sure how trustworthy the results are). We've got all the Igenex & other tests done. I don't think we need anymore tests. Should we just jump in & start the doxy (+probiotics, of course) or is there something else we should do to prepare?

 

I was told that detox was important when you start, but not sure what we should do other than milk thistle & dandelion root - chlorophyll? Is there a particular brand anyone can recommend? Is Mercola's good?

 

Epsom salt baths ain't happening - he can't get into the shower let alone the bath tub (& it's due to being overwhelmed with tics rather than OCD so it's not something he can try to work thru rationally)

[chodnett]

not to worry.

he checks to see if heparin is needed first.

I was tested and it is not needed for me.

Edited March 15, 2011 by chodnett

[pixiesmommy]

lemon water is supposed to be good

glutathione and vitamin d given together are supposed to help herx too

alka seltzer gold is supposed to help

 

for an alternative to epsom salt baths, if it would work, maybe he could soak his feet in a tub of epsom salt water while watching tv, reading, etc.

[GraceUnderPressure]

Thanks! Naturally, citrus is one of the foods my DS is supposed to avoid. Talked to both DH & DS18 about things - we decided that we have seen enough worthwhile gains with the lomatium that we are going to keep him on it. I'll be curious to see how it affects his coagulation since Dr. F will be checking. Interestingly, he told me today that he has had a dull general muscle ache for as long as he can remember, but that it has been around so long he had stopped noticing it. Now it comes & goes. And all this time since he tested positive, I was thinking how odd that he would have Lyme & never have any kind of muscle aches.

 

I am going to add some chlorella as well (not sure how I ended up typing "chlorophyll" in my OP, I meant chlorella). Then I will start him on the doxycycline & see what happens. I'm thinking - hoping - that should help us keep things at bay till the dr can direct us. (fingers crossed) Love the idea about the foot soak! I will have to check with him & see if he can handle it!

Edited March 17, 2011 by GraceUnderPressure