Thank You

[KarenF]

Hi everyone,

Thank you so much for your messages and websites to go to. I feel like I am starting to learn about Lymes and that is encouraging. Here is my story and an update on where things are.

 

I am from the Phila area. About three months ago, I got a blood test by Neuroscience done called My Lyme ID. Check out http://www.mdjunction.com/forums/lyme-disease-support-forums/medicine-treatments/2015916-neuroscience-new-id-tm-compre-profile and http://neuroendoimmune.wordpress.com/2010/11/17/ittcytokine-testing-diagnosing-lyme-disease-and-beyond/#comments

 

The reason I got this done is because I was struggling with fatigue and the doctor recommended I get their CytoKine blood test done to see if there were any lowlying infections or inflammations going on at the cellular level. The results recommended I get their My Lyme ID test done because my blood was showing either a past infection with lymes or a current infection.

 

After more of their testing, I was given Ceftin and Diflucan from a doctor at Woodlands to take for two months and then told to come back and re-evaluate. He said I would get better and better on the antibiotic. Within this first month, I was noticing that I started feeling better and then started feeling worse. Since lymes is not Woodland's specialty, I was able to get an appointment with a lymes specialist Dr Braccia. I saw him yesterday and he said it is not his experience that people on oral antibiotics get better. Rather they go up and down because of the herxing and most tend to need to do IV antibiotics as well to hit the inner cell.

 

He said I could continue taking the two months of Ceftin and come back to him at the end of the two months to reassess. He said in the rare cases where the antibiotics work, it takes more than two months to knock the infection out entirely and that the maximum amount of time that you can stay on Ceftin is three months. So he said he would like to see me stay on Ceftin and the Diflucan for three months and take flagyl at the very end to destroy the cysts that might form. After that I could try going off the antibiotics and see if I am better. If not, he would recommend IV antibiotics.

 

I've noticed that I have some profound sadness, weepiness, apathy, lethargy. What started this whole search is fatigue. I am guessing these current symptoms are just exacerbations of the fatigue brought on my herxing. My hope is it doesnt last too too long. My other hope is that the Cat's Claw, Oregano, natural progesterone cream and Probiotic will cause them to be short-lived.

 

Because of all you guys, I learned about Dr Beals. I put a call into their office and am awaiting a return call. In the meantime, I am staying on my antibiotics and hoping for good results. Thanks again for better educating me and steering me in the right direction.

 

Best,

Karen

[philamom]

Hi Karen-

So glad you received some answers. I hope you feel better!

Melinda

[dabel]

I am PMing you.