NEED MORE IMPUT PLEASE PLEASE PLEASE

[Wilma Jenks]

Her OCD seems to be skyrocketing at night. She has been on Vanco. Since Jan 4th. Added Diflucan 3 days ago. During the day she looks less foggy... at night OCD is out the roof. Could it just take time for these to calm down OCD. Do you think the probiotic will help when I add it. And most important. We tried many medictions, and they do not work. The only think that helps a bit is lamictal, but not much. It does help the aggression a bit.

Edited February 13, 2011 by Wilma Jenks

[kimballot]

I need to know if you think I am destroying my child and is it reversible??? It just helps to hear other stories. Her OCD seems to be skyrocketing at night. She has been on Vanco. Since Jan 4th. Added Diflucan 3 days ago. During the day she looks less foggy... at night OCD is out the roof. Could it just take time for these to calm down OCD. Do you think the probiotic will help when I add it. And most importanty...if what I am doing is making her worse, is it reversible???? We tried many medictions, and they do not work. The only think that helps a bit is lamictal, but not much. It does help the aggression a bit.

 

Wilma -

 

You have been through so much with your daughter and you have tried so very many things. When I am feeling that way, it helps me to sit down and make a list of what I am giving my son, when we started it, why we are using it, and how he reacted to it. Then I try to figure out if he is WORSE after starting it or if he just NOT BETTER after starting it.

 

I went back to one of your first posts from December (only 2 months ago). You made a very detailed list of your daughter's problems. I am going to paste that list here. Take a look at it and try to rate each one to see if it is better now, worse now, or the same. That may help you to know if you are moving in the right direction.

 

Let us know what you come up with!

 

 

Doesn’t get what your saying.

• Ticks. Clicks her tongue a lot when agitated.

• Hates her body/herself and people. Scratches off moles.

• Doesn’t like little girls if they are not pretty, and feels very confused about it.

• Everything irritates her. It is like she is in a phone booth with a million flies on her.

• Bumps into everything, like a bull in a china shop.

• Odd sexual behavour. Touching herself and licking fingers

• Firing obsessive thoughts at night (keeps having to say the same thing over and over or she can’t sleep) thoughts come so quickly-that she had to keep saying...I will tell you later….I will tell you later….

• Lots of imaginary friends. Can’t play or talk to other people, because she is so deep with these friends.

• Obsesses about getting old. Gets violent if you tell her she is getting big.

• Worries about parents/herself getting hurt. Won’t try most activities because of this.

• Argues non-stop-can’t take NO for an answer.

• Incredible senses. Can smell her friend down the street. No kidding!

• Gets mean in stores. Confused and agitated.

• Mad when people stare at her. Thinks everyone is looking at her, and hates it.

• Watches TV with door closed, doesn’t want parents or anyone around.

• Sugar level is erratic.

• Can not sit and eat dinner with family…too wiggly.

• HATES change. Won’t even try new movies….most times.

• Doesn’t like grown-ups or teachers.

• Very distorted thinking

• Doesn’t play games

• Can’t do school work

• Teases dog all day. Threw dog down stairs.

• Races all day

• Doubts that we love her.

• Watches TV and colors in shapes on a page with markers. Doing 2 things at once calms her.

• Doesn’t want anyone to know she listen to music. Hides in the closet when she eats.

• Takes hours to get her out of the house

• Bad memory/concentration

• ALL foods make her worse

• Can’t transition. Hates change.

• Switches constantly

• Fine in the morning and then switches and becomes agitated.

• Blurry vision but gone.

• Insomnia. Severe.

• Wet vagina. Constantly wiping. Went away with yeast treatment. OCD or sensory.

• She can eat a grain of sugar (even fruit) and be up all day and night from the high.

• Chemical sensitivities

• at night she always gets worse.

• Early puberty: pubic hair and underarm odor in 1st grade.

• Diagnosed with restless leg syndrome

• Home-schooled because of impulsivity and distorted thinking.

• Dehydrated

• Complained of sore ankles since she could talk.

• Brain won’t stop at night and feels like its on fire she said. (gets to sleep at 1am, most nights)

• Can’t stop washing her hands…. They feel sticky.

• Cutting hair off of legs. Sits home all day and cuts body hair off when not on meds/supplements. Some supplements trigger this off too.

• Attacks me. Spits and scratches.

• Can’t get her off the couch until 5PM.

• She races around the house, breathing heavy and firing off thoughts non-stop..

• Gets all unfocused at ice skating rink if there is too much noise. Same with large groups of children.

• She never ever gets sick. I think she had a cold 2x’s in her life. I was the same way. (her mom). After chelation she started to get sick.

• Can’t shower. Hates feel of water on body.

• Anxiety about horse show. Quits everything she starts if it gets challenging. Anxiety builds.

• Squeezes people.

• Looks for vibrator and is super agitated.

• Screams she is fat, and that moles on her body are ugly.

• Doesn’t follow directions.

• Can’t be looked at.

• Wakes at the drop of a hat.

• Wanted to burn her fingers on the stove

• Feet/toes go a mile a minute

• Looking at her mom irritates her.

•

• Lots of bad thoughts at night.

•

• Wants me to like Demi Lavato, just like she does.

• Can’t touch her yet she likes to play rough.

Edited February 12, 2011 by kimballot

[Wilma Jenks]

THANK YOU VERY MUCH. I WILL.

[Phasmid]

I need to know if you think I am destroying my child and is it reversible??? It just helps to hear other stories. Her OCD seems to be skyrocketing at night. She has been on Vanco. Since Jan 4th. Added Diflucan 3 days ago. During the day she looks less foggy... at night OCD is out the roof. Could it just take time for these to calm down OCD. Do you think the probiotic will help when I add it. And most importanty...if what I am doing is making her worse, is it reversible???? We tried many medictions, and they do not work. The only think that helps a bit is lamictal, but not much. It does help the aggression a bit.

[P_Mom]

Hi...just looked at your list. Please, refresh me a bit. (I don't obsessively read all posts every day like I used too...thankfully)

Was she diagnosed with PANDAS?

Was she evaluated for early puberty? It is not "normal" to have pubic hair in 1st grade. We had to take our son in for evaluation for early puberty in second grade (because there can be some serious causes)....he only had under arm body odor. They thoroughly checked him out....no early puberty...just stinky kid and started deodorant in second grade. His brother followed in his tracks and had to start deodoranr in secong grade as well.

 

 

Any labs that help shed light on things? ASO or antiDNAase b titers? Myco?

Edited February 12, 2011 by P.Mom

[amyjoy]

Just want to offer, in the event your daughter is experiencing a deep inflammatory response or cytokine storm is brewing, you can try the avipaxin by neuroscience. it helped ds14 so so much with the worst times of ocd and tics, just give during the day, though, not at night.