Suzan Posted February 9, 2011 Report Posted February 9, 2011 I can finally start dd8 on her lyme treatment. I knew last week what the basic plan was so I had started her on amoxicillian in addition to her zithromax but I didn't know all the dosing, etc. She is 8 and 50 lbs. 250 mg M-W-F zithromax 1500 mg daily amoxicillian (2am, 1 afternoon) Flagyl 2x day on the 1st and 3rd Sunday of every month Diflucan once a week Nystatin 1 tsp daily My dd9 and I are on a bile binder (clostrid?) so I'm not sure why dd8 didn't get it. Could she be too small? Does she need one? She doesn't have anything to help get rid of toxins. I asked our neurologist about this, but now things are a little confusing while he is learning and taking over from our LLMD and he didn't get back to me about it. She can't swallow pills and so I don't know what to give her to try to help with the detox. I don't think I can get her to drink the clay. Any other thoughts? Our kitchen looks like a pharmacy now. I had my first thought today that I better hide all these bottles. Who knows what someone would think walking into all those pill bottles. Susan
NancyD Posted February 9, 2011 Report Posted February 9, 2011 Hi Susan, I know what you mean about your kitchen looking like a pharmacy. I cleaned out 3 shelves in a closet just to house all our bottles of abx and supplements! I really relate to the scene in Under Our Skin when the guy tosses all of his pill bottles on the floor. I bought six weekly pill trays (3 are one color and the other 3 a different color to differentiate between DD and myself) and I lay out 3 weeks of pills at a time. Then I place one big order by phone for the next 3 weeks. My daughter uses Springreen No. 77 Detoxificant (bentonite). I put one tablespoon in a small glass of cranberry juice (grape juice would also work well) and she cannot taste the bentonite clay at all. It's not that thick so it mixes easily. We've been very happy with it. Nancy I can finally start dd8 on her lyme treatment. I knew last week what the basic plan was so I had started her on amoxicillian in addition to her zithromax but I didn't know all the dosing, etc. She is 8 and 50 lbs. 250 mg M-W-F zithromax 1500 mg daily amoxicillian (2am, 1 afternoon) Flagyl 2x day on the 1st and 3rd Sunday of every month Diflucan once a week Nystatin 1 tsp daily My dd9 and I are on a bile binder (clostrid?) so I'm not sure why dd8 didn't get it. Could she be too small? Does she need one? She doesn't have anything to help get rid of toxins. I asked our neurologist about this, but now things are a little confusing while he is learning and taking over from our LLMD and he didn't get back to me about it. She can't swallow pills and so I don't know what to give her to try to help with the detox. I don't think I can get her to drink the clay. Any other thoughts? Our kitchen looks like a pharmacy now. I had my first thought today that I better hide all these bottles. Who knows what someone would think walking into all those pill bottles. Susan
philamom Posted February 9, 2011 Report Posted February 9, 2011 (edited) Susan- We use Burbur "Detox" from Nutramedix in the morning and evening. We mix it in flavored water. You work your way up to 15 drops am/pm. Can you give some more info. on the bile binder? What is it prescribed for? Melinda edit- we sometimes use bentonite clay mixed in applesauce topped with cinnamon. Edited February 9, 2011 by philamom
sf_mom Posted February 9, 2011 Report Posted February 9, 2011 Burbur in juice. Bentonite in Kefir and little apple/raspberry juice 'tasteless'. -Wendy
Suzan Posted February 9, 2011 Author Report Posted February 9, 2011 The clay does not sound as bad as I expected. She is very resistant of having to take anything else as she already takes a pretty nasty concoction twice a day. I'll look into all these suggestions though. Thanks! Melinda, http://www.drugs.com/cdi/cholestyramine-powder.html This is what we are taking for bile binding. It is my understanding that it helps bind the toxins into the stool so you can get them out of your body instead of reabsorbing. Susan
susie Posted February 9, 2011 Report Posted February 9, 2011 I know the reason we don't use cholestyramine for my DD is that we don't want to lower her cholesterol since it is important to brain function. I'm guessing in your DD the concern would be the same.
Suzan Posted February 11, 2011 Author Report Posted February 11, 2011 I know the reason we don't use cholestyramine for my DD is that we don't want to lower her cholesterol since it is important to brain function. I'm guessing in your DD the concern would be the same. Thanks susie, you are probably right, dd8 is much smaller than dd9 too so maybe this makes a difference but I better follow up and make sure it's OK for dd9 longterm. dd8 yesterday was crying that she hates her life because she has to take too much medicine and she has an itchy rash with bumps that have appeard on her arm and torso. Now I have to figure out what that rash all about. Susan
smartyjones Posted February 11, 2011 Report Posted February 11, 2011 she has an itchy rash with bumps that have appeard on her arm and torso. Now I have to figure out what that rash all about. Susan just fyi -- may not be the same -- about 4 months into treatment for TBI including bartonella, i got a small bartonella rash on my upper leg. around that time, my inner elbow was very itchy when i went to bed. after a week or so, a rash came out in that same area, not due to scratching. dr said he believed due to TBI treatment. it lasted for a long time - maybe 4-6 weeks and at time was very itchy. then it just went away. a few days ago, it's come back -- now just a few small bumps but is itchy. i didn't want to put cortizone on it so used a homeopathic stingstop -- not really the most appropriate -- a calendula cream would probably be better if you wanted to use something natural. i think TBI can include many types of rashes.
philamom Posted February 11, 2011 Report Posted February 11, 2011 I know the reason we don't use cholestyramine for my DD is that we don't want to lower her cholesterol since it is important to brain function. I'm guessing in your DD the concern would be the same. Thanks susie, you are probably right, dd8 is much smaller than dd9 too so maybe this makes a difference but I better follow up and make sure it's OK for dd9 longterm. dd8 yesterday was crying that she hates her life because she has to take too much medicine and she has an itchy rash with bumps that have appeard on her arm and torso. Now I have to figure out what that rash all about. Susan Oh Susan...it's been a bumpy, bumpy ride here as well...ever since strep wen't through my daughter's classroom and then she caught a cold that went into her sinusus. Beginning of the week things seemed to be turning around, but since starting an after-school program on Wednesday she's been falling apart again. She's so emotional with lots of tears. And now she has a 3 inch circle rash under her armpit thats itchy, so like you, need to figure that out as well. When I took a picture of it this morning, she was crying that she hates her life and me too Hang in there
philamom Posted February 11, 2011 Report Posted February 11, 2011 I know the reason we don't use cholestyramine for my DD is that we don't want to lower her cholesterol since it is important to brain function. I'm guessing in your DD the concern would be the same. Thanks susie, you are probably right, dd8 is much smaller than dd9 too so maybe this makes a difference but I better follow up and make sure it's OK for dd9 longterm. dd8 yesterday was crying that she hates her life because she has to take too much medicine and she has an itchy rash with bumps that have appeard on her arm and torso. Now I have to figure out what that rash all about. Susan Oh Susan...it's been a bumpy, bumpy ride here as well...ever since strep wen't through my daughter's classroom and then she caught a cold that went into her sinusus. Beginning of the week things seemed to be turning around, but since starting an after-school program on Wednesday she's been falling apart again. She's so emotional with lots of tears. And now she has a 3 inch circle rash under her armpit thats itchy, so like you, need to figure that out as well. When I took a picture of it this morning, she was crying that she hates her life and me too Hang in there My daughter's llmd told me to take a picture of it (without flash) and forward it to him. Of course, I used a flash with the pictures I took earlier, now I'll have to struggle to take a few more
philamom Posted February 11, 2011 Report Posted February 11, 2011 (edited) she has an itchy rash with bumps that have appeard on her arm and torso. Now I have to figure out what that rash all about. Susan just fyi -- may not be the same -- about 4 months into treatment for TBI including bartonella, i got a small bartonella rash on my upper leg. around that time, my inner elbow was very itchy when i went to bed. after a week or so, a rash came out in that same area, not due to scratching. dr said he believed due to TBI treatment. it lasted for a long time - maybe 4-6 weeks and at time was very itchy. then it just went away. a few days ago, it's come back -- now just a few small bumps but is itchy. i didn't want to put cortizone on it so used a homeopathic stingstop -- not really the most appropriate -- a calendula cream would probably be better if you wanted to use something natural. i think TBI can include many types of rashes. I missed this post...must've been typing at the same time. I've been putting cortizone cream on an underarm rash my daughter has. Today it's a bright red 3" ring. I forgot that cortizone cream is a steroid, right? Is that why you shouldn't use it? I'll pick up some calendula cream and see if it brings her some relief. My daughter is being treated for Bartonella. Edited February 11, 2011 by philamom
Suzan Posted February 11, 2011 Author Report Posted February 11, 2011 My daughter's llmd told me to take a picture of it (without flash) and forward it to him. Of course, I used a flash with the pictures I took earlier, now I'll have to struggle to take a few more I can't seem to get a good picture without or with the flash. Her's are round too but don't show up much if her body is not warm from the bath or sauna. Very itchy at night. My 9 yr old has the itchy rash at her inside of elbow on her arm. dd8 also doing weird facial grimacing she's never done before last night. It's all freaking me out! Susan
Suzan Posted February 11, 2011 Author Report Posted February 11, 2011 (edited) i think TBI can include many types of rashes. TBI? What does that stand for? Edited February 11, 2011 by Suzan
philamom Posted February 11, 2011 Report Posted February 11, 2011 i think TBI can include many types of rashes. TBI? What does that stand for? Tick Borne Infections
Suzan Posted February 11, 2011 Author Report Posted February 11, 2011 i think TBI can include many types of rashes. TBI? What does that stand for? Tick Borne Infections DUHHHHH. All I could think of was Traumatic Brain Injury!
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