dd9 is not well again

[Suzan]

dd9 had been in a very good place for the past month or so after starting her lyme treatment. Her nutty PANDAS behavior had basically stopped. So I was very upset to start to see her losing it again yesterday. She's been sick since last Thursday with a cough, sore throat and very stuffy nose. I was assuming it was not strep since she's on so many abx and she was handling the bad cold pretty well. But I could see the manic, out of control girl coming back.

 

I finally took her to the doctor today and he feels its a virus of some sort. He did a new test that is a Respiratory Infection Panel that tests DNA somehow, tests for 26 viral and bacterial infections, have you heard of it? The results should be back tomorrow. Tests for flu and strep and a bunch of other things.

 

She (of course) seemed much better by the time we got back from the doctor's office but by the evening she was having inappropriate laughter and that edge to her humor and behavior and trying to push my buttons that tells me that she does not feel well. She could not sit still or wind down or stop...

 

She also lost a tooth today, I am wondering if that comes into play with all this too. I don't know if it's pandas or lyme or both. Maybe it doesn't matter but I'm worried about sending her to school tomorrow and so is she. She wants to say she doesn't know what I'm talking about but she also says she feels "pandas'y" inside and is worried about going to school tomorrow (doesn't want to get in trouble there). She's not to her worst yet but it's scary to see again.

 

Any advice, help, sympathy for me??

 

Susan

Edited February 8, 2011 by Suzan

[Fixit]

you have alot of variables...

please report on what the lab shows...very curious

No help here...just sending sympathy

[dcmom]

We have seen blips with every tooth loss

 

my girls are pandas/ evaluating Lyme

[laure]

Also it could be a cyclic thing....we have been on cycles of about 10 days, with a hellish day or two every 10 - 12 days or so, and then better for another cycle. Some people cycle a month, others 6 months according to my LLMD. It depends on a lot of things, coinfections which are impossible to test for all of them...also if she is on weekend cyst busters she could have a delayed reaction. It will get better, hopefully, and if it lasts longer than 3 days or so, I would call the doc for reassurance, additional meds, or whatever. Hopefully you are keeping a log, it really helps!

We are with you in this strange strange place...

[NancyD]

Susan,

 

Did you check her D levels? If you haven't checked it recently you should. I have never heard of the test you mentioned. It will be interesting to see what the results show. Keep us posted. Sending you hugs and a lot of sympathy!

 

Nancy

[sf_mom]

I find if they pull out of 'it' rather quickly and nobody in the household gets sick too...... its most likely a herx. Especially if it falls within one of the noted cycles.

 

Definitely flair's with lost teeth though.

 

-Wendy

[Suzan]

Hmmmm, I had not thought of all this as a herx. She had her last round of flagyl around January 22nd. Does not take it again until around Feb 20th. I have not noticed any cycles yet. I better start tracking this better. She started her lyme treatment around mid-December.

 

Thanks for the quick support. It's so scary to see those times coming back. I'm hoping she wakes up feeling much better. I will post the results of the test. Our doc is expecting to see it come back showing just a viral cold type thing, but I guess you never know!

 

Susan

[KeithandElizabeth]

Susan:

 

My son always regressed with loose teeth! He also regressed with viruses and other bacterias (once he went down to only one antibiotic). If your daughter is on two antibiotics right now, I am guessing that her recent illness was viral related and this as well as the loose tooth can definitely cause an increase in symptoms.

 

I know it is so hard to see them regress, but she should rebound again.

 

My thoughts are with you and please update us on her progress.

 

Elizabeth

[Suzan]

She went to school today, felt very good this morning. But she went to the health room about an hour before school was over and took a nap. She is not feeling well now and she seems very on edge but it's not as bad as last night. The test results didn't come back today so I should know the results tomorrow. I don't expect much but I'm still interested in seeing the report.

 

 

Susan

[Suzan]

The test results came back today, negative all around. I am getting a copy of the report anyway since I am interested in the test overall. So I will be able to give more information for you on what it tests for tomorrow.

 

But this was a confusing result since she still has a goopy cough and does not feel well. I am now thinking it was a herx and her lost tooth and of course she could have some virus that is not one of the 26 that they tested for. I don't know how accurate the test is or anything.

 

Susan