P_Mom Posted January 19, 2011 Report Posted January 19, 2011 "We are doing great and with your funds hired Dr. Jonathan Zuccolo, the B cell immunologist from a university of Calgary in Canada and he already has excellent data using the funding that you sent. We are using your funds as stated in our application for his salary plus some laboratory supplies..... We planned to use your funding to continue the project as proposed. His study has been very clear about the autoantibodies in humans with the PANDAS type of disease."......Dr. Madeleine Cunningham WE ARE MAKING PROGRESS! Thank you so very much to all who supported Pepsi Refresh Project PANDAS. Special thanks to Vickie. PANDAS, in and of itself, will get the recognition and acknowledgement it deserves. Our kids will get the recognition, acknowledgement and treatment they deserve! Our hard work will not be in vain. Our children's suffering will not be in vain.
nevergiveup Posted January 19, 2011 Report Posted January 19, 2011 Thx Pmom and vicki!!! You have helped so many! Hopefully with all this press and additional research you will be the catalyst to additional funding and treatments.
Fixit Posted January 19, 2011 Report Posted January 19, 2011 Thx Pmom and vicki!!! You have helped so many! Hopefully with all this press and additional research you will be the catalyst to additional funding and treatments. Ditto!
MomWithOCDSon Posted January 19, 2011 Report Posted January 19, 2011 Yes, thanks P.Mom, Vickie, and the countless others who volunteered so many hours toward launching, supporting and driving this project to its successful conclusion! My DH, an avid "New Yorker" subscriber, recently read this article and passed it on to me about a similar warrior mom. Though there are definitely some differences (the disease she's been fighting is not, in any circles, considered a "controversial diagnosis"), I found her story inspiring and validating as we fight to get our kids not only the daily care, but the research and acknowledgement they deserve. She's never given up, and neither should we! I can only find access to an abstract, but perhaps some of you out there are subscribers, or have a friend who subscribes and tends to hang on to copies for a few weeks. Here's a link to the abstract, if you're interested. Pat Furlong's Fight
eljomom Posted January 19, 2011 Report Posted January 19, 2011 Yes--THANK YOU!! I would love to hear what data his study has found, etc....did she give any hints?
P_Mom Posted January 19, 2011 Author Report Posted January 19, 2011 No, she didn't. Sorry, that is all I got.
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