Good article for questions about the Lyme WB and Dot Blot

[P_Mom]

I thought this was good. A research study on the accuracy of the Lyme Western Blot and the Dot Blot. Please note the very high incidence of false positive Elisa's (one study states 90 plus percent...this is the initial screening test)...also, the high false positive results of the study for IGM Western Blot. Another key point is that universally, ALL subjects in this study with PROLONGED illness or Lyme arthritis converted to IGG and all were IGG positive for Lyme. This study supports Cunningham's statements. I can't find a study (not just "this doc or book said"...I mean an actual research study) that shows that people can have persistant IGM elevation with chronic Lyme without the presence of IGG reactivity. I know IGM can persist...but, IGG reactivity should be with it. Am I missing something? (And, like I said...not just "my LLMD said," etc.)

 

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC95608

[wornoutmom]

Thanks for posting the link. I have been looking for information like this. I'm one to want to read both side of a coin before I make decisions...I have to ask though when you say the study supports Dr. Cunningham's statements, what statements those are? Did I miss something?

[P_Mom]

Thanks for posting the link. I have been looking for information like this. I'm one to want to read both side of a coin before I make decisions...I have to ask though when you say the study supports Dr. Cunningham's statements, what statements those are? Did I miss something?

 

 

It is under a thread I posted... "Some Notes From Cunningham." Too tired to figure out how to post the direct link...but, right now it is on page 8. Hope it helps!

 

I also found interesting the fact that many patients with rheumatic diseases tested with a false positive IGM......being that PANDAS has been "likened" to Rheumatic Fever.

Edited January 11, 2011 by P.Mom

[eljomom]

What is the Immunoblot? That sound more accurate...

[P_Mom]

I think Fixit just had that done. Maybe she will chime in.

[P_Mom]

Just FYI...I didn't intend for this to be on the Lyme forum. It got moved.

[Fixit]

Yes..did the dot blot...

 

i think..just like pandas...lyme docs have different views and interpretations of results to these tests...

as with the cunninghame...imo...we just don't REALLY know what the resutls mean..and i hope the docs don't get too wrapped around the printed text...but use it as a possible guide....

 

i have spoken with a few different docs (current panda docs and a lymes doc)about my son results...still waiting to visit a lymes doc...

all the answers i received are possible as..no one knows...

so i have it is showing lyme in the past!??!?!...ok so why is it in his urine currently(this is from lyme doc)...and he could be right..

it is something else that looks and acts like lymes...ok...i buy that too...so if the lymes protocal works...lets just call it SOT for now...and start doing something....(this respnse was from a pandas expert and a lymes doc)

 

maybe lymes will have a new diagnositc cryteria, in cluding TS and OCD....i think they should....

 

and i truly believe ds did and maybe still does have parasites...

because..as i learn more...maybe healing should be in X time...if not move on to next possible invader....

maybe beth maloney...(pleas don't through tomatoes..and this is only part what i believe as it changes regularly)...maybe you only do need abx, if you can figure out what the problem is.....and maybe the rarer cases need ivig and pex....not saying i believe what i just typed...

 

ds is still doing well since he did the internal parasite formula...he is not on abx....

part of me wants to see if his body can learn to heal the rest of the way on his own..because i think that is how he will get the longest and best results...

of course i might change my mind tomorrow.

 

i am still gathering info on ds results and how to intrepet them for him

 

PS...i did start ds on hd vitamin C about a month before parastie thing...i may have had some herxing with that to start..including congestin and ramping...but that is when my new panda ds8 came home with strep...

so when we started with parstie thing..it never got worse...only better

Edited January 11, 2011 by Fixit