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Posted

- she was following me screaming at me to not go upstairs. The episode went back and forth from the screaming at me-- trying to control what I was doing/where I was going in the house to just

It went on and on.

Today she's a total mess. She's depressed. Twitchy, jumpy,, crying, anxious, sad and, impulsive, edgy,

 

The few factors that are different/new and coincide with this episode are:

--yesterday a.m. was her first dose of Azith;

 

 

thenmama -- i cannot say that i am saying this is your answer, i will only tell you of our experience. when ds first exhibited pandas symptoms, we were seeking help from many avenues. he had some improvement from a naturopath with treatments aimed at healing gut. we then got the high ASO and positive culture results. our useless ped at the time, threw him on a 5 day course of azith. it was horrible. many symptoms that had some resolution returned with a vengenance. he would follow me all over, whining about the problem of the moment; separation anxiety stepped up; he was anxious, impulsive, very whiny, unhappy and couldn't settle on doing anything.

at the time, i thought it was a reaction to the azith (still could be the reason). i was so happy to get him off that. we finished the 5 days. he improved when off the med. we saw a new ped a few weeks later and he put him on 30 days keflex. a sinus CT showed all cavities infected. he had 100% remission in about 3 days of keflex. unfortunately, that didn't last.

 

due to not complete resolution of symtpoms, we looked for other infections, and found them, including lyme.

 

there's no way to now know what that reaction to azith was. could have been a herx due to lyme. could have been a bad reaction to azith. could have been a just unknown. i do know it would be extremely unlikely for me to ever have him on azith again.

Posted

Hi Thenmama,

I'm so sorry that your dd is going through this...it's so hard on everyone.

Just a thought about the Xanax... It probably won't kick in for about a week. Do read the blurb that came with it, if you haven't already and just be wary of any adverse reactions. Hope things improve soon.

Posted

Hi again. It is short acting for an antidepressant/antianxiety med...often they take weeks to kick in.

I recently found a GP (Biomed/DAN! trained) who is also a homeopath who has a reputation for doing wonders with IBS. Can't help thinking that such integrated doctors have a better handle on some of this stuff.

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