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Posted

Just wanted to share how our most recent bout with strep has been going. Both of my boys (and myself) were put on Augmentin about 10 days ago. Within 24 hours they were out of the worst of pandas. By day 5 they still had motor tics and mild emotional lability, so I added back the OLE (olive leaf) 500mg, 3x/day. It seems to have done the trick, the emotional lability stopped within 36 hours, and the tics have greatly diminished to basically a subclinical level (although still on the mommy-radar!). They are due to stop the augmentin later this week. I am a little nervous, but if they go downhill I am going to double their OLE...

 

On an unrelated note, they are both on abx for clostridia (ds2 vanco, ds6 flagyl). So everyone is doing very well!!! Can't believe I am saying that and knock on wood, fingers crossed, etc... :D

Posted

Glad to hear the boys are doing better.

 

I wanted to mention we recently switched from Oil of Oregeno to OLE with our oldest (450 m.g. x 2 x twice daily = 1800 m.g. per day). We definitely saw a mild increase in symptoms for about 10 days after starting but he is now trending above his prior baseline. It has helped. He is also on Alinia (cyst buster) and Azithro for Lyme treatment.

 

At the end of the Augmentin/Flagyl would be a great time to test your older son for Lyme if you were thinking about it.

 

-Wendy

Posted

Glad to hear the boys are doing better.

 

I wanted to mention we recently switched from Oil of Oregeno to OLE with our oldest (450 m.g. x 2 x twice daily = 1800 m.g. per day). We definitely saw a mild increase in symptoms for about 10 days after starting but he is now trending above his prior baseline. It has helped. He is also on Alinia (cyst buster) and Azithro for Lyme treatment.

 

At the end of the Augmentin/Flagyl would be a great time to test your older son for Lyme if you were thinking about it.

 

-Wendy

 

I wonder why the increase in symptoms after starting the OLE? Do you think it has something to do with Lyme? Then again, could be underlying viruses.

 

Wendy, I am all set to run the lyme tests, but DH is giving me some resistence due to cost. He thinks I have it and he thinks that we should just test me and if I am positive we just bring the boys straight to a lyme specialist and save the money on the tests. Kind of makes sense, what do you think? Also, I am aware that I could have it and not show up on the test. So, in the end I have a feeling we will eventually look toward lyme treatment either way.

 

 

What doses of OLE are you using for your boys?

 

500mg, 3x/day (standardized to 20% oleuropins). They are 30 and 50 lbs. I and other moms have gone higher than that. You should give it a shot with your little one you have nothing to lose!! Did wonders for my 2yo's autistic symptoms as well. I think it was the final piece of the puzzle for him - who would have thought!?

Posted

Glad to hear the boys are doing better.

 

I wanted to mention we recently switched from Oil of Oregeno to OLE with our oldest (450 m.g. x 2 x twice daily = 1800 m.g. per day). We definitely saw a mild increase in symptoms for about 10 days after starting but he is now trending above his prior baseline. It has helped. He is also on Alinia (cyst buster) and Azithro for Lyme treatment.

 

At the end of the Augmentin/Flagyl would be a great time to test your older son for Lyme if you were thinking about it.

 

-Wendy

 

One more question, Wendy! Are you saying that after aug/flagyl is a good time to test b/c we are breaking cysts and getting a good immune response? Just curious...

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