Sleep

[Wilma Jenks]

My child seems to be getting a bit better with the Azith. and Nystatin. I guess this means she had PANDAS. She still does not get tired at night, even with melatoinin and 25mg. of seroquel. Does the childs severe insomnia get better eventually with the abx. Just wodnering what i can expect. Thanks

[formedbrds]

Y

Edited January 16, 2011 by formedbrds

[sptcmom]

If all the underlying infections are treated then yes sleep improves for sure. DS had every 2.5 hours wake ups since 3 years of age and is now finally sleeping thru the night 3/7 days a week. What began as a PANDAs journey for us was acually so many underlying infections which are now finally being addressed by God's grace.

We use Calmes Forte for kids, Valerian Calm by Herbs for kids and yes methyl cyanocobalamin is methylated B12 vitamin and helps with neurological support and stress. Too much B vitamins can cause an increase in energy.

We also found that seriously reducing TV, video games, computer time also helps a lot. We banned all those after 6 PM with great results.With TV we restrictd DS to watching shows with live people and no cartoons which helps keep the craziness down.

A calming detox bath also helps a lot esp with epsom salts, lavender and ginger essential oils few drops.

[Wilma Jenks]

I have tried the magnesium in the past and she seemed to bounce off of the walls, but in retrospect I think her yeast was not being addressed at the time. Perhapas since she is on Nystatin and not so jumpy, I can try the magnesium again. thanks.

[dut]

Hi - my PANDAS dd7 was a terrible sleeper until 3.5 and still gets bad when in exacerbation (night terrors, wakings, night fears, separation anxiety) but has alwasy remitted when out of an episode. This time she hasn't totally remitted and still has to come in bed halway through the night. For us only time has helped. Melatonin will help to reduce falling asleep time but won't keep her asleep.

 

For my PANDAS ds3, he was a great sleeper for his age until 7 months when his sister had her 1st recognised episode. Since then his sleep has gotten bad. He will range from 3 wakings (at best) to waking every 45 minutes, which is where we are at the moment. He had a cold about 2 months ago, got awful behaviours and sleep and although the behaviours went almost straight away, thank god, the 45 minute wakes remain. Melatonin will get him to sleep really fast and most nights, keep him asleep for 3 -4 hours but after that we go to the 45 minute thing. He's too small for a slow release pill.

 

Valerian and magnesium at bedtime seemed to have a paradoxical effect with my ds and made him worse and had little to no effect on my dd. We also use seriphos with our ds as he showed a mucked up night/day rhythm for his cortisol when his adrenals were tested. It felt as though it used to work but I'm not so sure recently.....

 

My dd has some true IgE allergies and both kids have a few IgG sensitivities. I find if I can keep ds free of the 2 biggest sensitivities then he does sleep a little better...

 

Good luck.. keep trying different things.. in addition to treating the PANDAS, it really does seem to be the issue for us though.. I think if we had no PANDAS we'd all get a lot more sleep.