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Posted

My older is in a new episode- which I will post about eventually.....

 

In the meantime, I was wondering if anyone has tried High dose IV steroid treatment.....

 

Thanks!

Posted (edited)

dcmom:

 

I am so sorry to hear about your daughter! Have you checked for other chronic infections?

 

We have never used a long term steroid burst so I cannot give you any advice on this, but my thoughts are with you!

 

Elizabeth

Edited by KeithandElizabeth
Posted

I think we did in my 2yo over the summer, but I can't really comment on the efficacy b/c there was so much going on at that time and so many other meds started at the same time.

 

We used solumedrol dose pak when my 6yo received his IVIG and I can say that it stopped the ivig side-effects (fever, head ache)in their tracks. Can't speak to the efficacy of pandas, again, b/c he had just received IVIG. He definitley still went backwards for 3 weeks.

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