Message for Claire

[Dara]

Claire,

 

I'm technically challanged so please forgive me. I don't know how to write you a post to your email. How come you're not writing on this website anymore??? You were such a big part of this forum.

 

Anyway, I agree with you about the diet changes. As I told you, we definately saw and have seen an improvement in Karl's tics, but they're still there. As far as metal toxicity is concerned, we get the results of Karl's 24 hour urine test back this Thursday. After posting back and forth to Cheri today, she gave me the phone number to a lab in Kansas that does pyroluria testing. I sent away for my kit around noon.

 

The final item....TV, As you remembered from my post back in November, I was going to take it away then. I don't know why I haven't done so yet. It's not that Karl (the 5 year old) or Graham (the 3 1/2 year old) watches that much. I've limited it to 1 hour a day as I told you in a previous post. They would watch it all day long if I let them. It's been such a permanent part of our morning routine. They wake up and I let them watch TV from 7:30am - 8:30am. I guess I just have to do it.

 

I'll write again soon.

 

Dara

[ad_ccl]

Hi Dara,

 

Just to advise - Claire sent out a post a week or so ago advising that due to work commitments she would not be posting for a period of time. I agree she is such a huge support to all those who find this forum. I am sure when she returns she will be able to provide you with a wealth of information.

 

About the tv - I would just have it "break" and you will be amazed how the kids and you will get used to a new morning routine.

[kim]

Dara,

 

Could you share the info you received from Cheri regarding the pyroluria testing? I don't know much about it, but from what I have read it appears it is treated similiar to tics-ie. vit B's, zinc, mag. etc. Could you save me some searching and tell me why people test for this seperately?

 

Thanks,

Kim

[Dara]

Hi Kim,

 

This pyroluria thing is all new to me as of today. It was something that I kept reading about on this forum, but didn't know much about it. I decided to look into it as a possible cause for my sons tics. We've already done a lot of testing (food sensitivities, inhalent allergies, urine tests, etc.) but I'm always looking for other tests out there that I'm not familiar with. Cheri sent me the a post this afternoon which had some good information about what it is and how to obtain a test. You can see her reply to me under the posting called 'New Jersey Mom Needs Encouragement":

 

The website is located at:

 

http://brain.hastypastry.net/forums/showth...ead.php?t=10944,

 

I'm technically challanged and don't know how to paste the shortcut for you. Let me know if you still need help.

 

Thanks,

 

Dara