Nutritionist visit, EMF's & Rife Machine

[kmom]

Today I took my PANDAS/Lyme/Bartonella DD9 to a local nutritionist/wellness center. I actually made an appointment back in June 2010 after PANDAS Dx and her contamination OCD began. The nut allergy she managed for years w/ no problem became a huge issue. Stops her from eating at most restaurants, friends' houses, etc. I ended up postponing that appt back in June b/c I felt that she wasn't mentally there to handle a nutritionist's advice. If this was truly an infection causing the OCD, it was going to be a waste of money. Now that we have progressed to Lyme Dx and DD in a better place--herxing bad at times but it's like things shifted in a way. She/we understand more concretely what is happening (altho perplexed many moments still as you read on here ) We have talked about nutrition, healthy choices and less simple carbohydrates (she addicted it seems!!!). My DD sometimes listens more to specialists than her parents so I called back up the nutritionist so she could help DD w/ food choices and me with all the detox stuff. It was a fantastic visit. The nutritionist was awesome. She was blown away and captivated by our story. She copied lab results, copied Dr. Cunningham's explanation of Cam K/anti-neuronal AB's/molecular mimicry info. She wanted me to talk to her colleague who runs the center and has a radio show b/c her background is in immunology. This nutritionist seemed to know her stuff about Lyme treatment and was just so interested in what we have learned (I talked highly of this forum!) from parents and doctors. She beieves in the use combination of abx's, vitamins and detox. She also had my DD and I use the their Rife Machine or "Biofrequency Machine" was their name for it. She believes it helps. Does anyone else believe that is a helpful addition to treatment? Oh and the EMF talk was overwhelming. If all that is true, I probably THE highest EMF house on this forum. We have wireless EVERYTHING!!! We have wireless laptops, cordless phones, cell phones, the entire house lighting system and some roman shades run wirelessly by remote control or our Apple iTouches (husband is an electronic geek and works for lighting and shade company.) Oh boy! We need some changes!!!

 

SF Mom--before we left DD went into her anxiety mode and histamine reaction--itching,scratching and upset. I gave her Benadryl and told her to get in the car anyway. She settled. Of course in my head I thought, "What if this is b/c we reintroduced the Diflucan b/c dr. and I don't believe it's causing Rx reaction but maybe it is." Oh the 2nd guessing and self doubt! The nutritionist had same thoughts as you about the histamine from "leaky" gut syndrome. She doesn't think it's an Rx reaction either. She had us get homeopathic Histaminum. Not sure it will work like Benadryl but worth a shot.

[sptcmom]

EMF - YES!! we are skeptics turned firm believers in low low tech homes. We got rid of all wireless- routers, remotes, RC toys, Wii, etc, cordless phones gone, cell phones off when DS is home, all not in use stuff plugged out, all plugs out/breaker out in bedrooms, battery operated night light,got EarthCalm for whole house grounding, installed a second ground rod outside for whole house electric panel, got Earthcalm pendant for DS for the school is high tech with a huge wireless lab etc. WHEW!! It was HARD to do, the grounding causes herxing at 1st and then the body adjusts (DS and I both have bartonella).

DH was a hard sell but he's an IT guy and has been using the pendant at work and the effect he feels is miraculous amongst the constant electronic hum/smog he works in.

We blew our Christmas budget but our family understands, so this Christmas I'll be cooking for all instead of gifting and keep it non commercial and low tech.

Oh, also we have DS sit as far away from TV as possible when he's watching and not more than 20 mins on computer at a time.

Good book is "Earthing" by Clinton Ober. He also has some good products as does barefoot creations (on Amazon).

We keep tripping over wires 9DH has yet to organize them!) but it helps so MUCH overall with symptoms, inner calm etc.

Jodie

Edited December 5, 2010 by sptcmom

[MichaelTampa]

I have some interesting experiences with rife and EMF's as well.

 

I was disabled from work for a few months when my employer installed a wireless router, it caused short-term memory problems to the point that I could not have a real conversation. I have got treatment and GiaWellness home harmonizer and pendant and they helped a lot. I have heard good things about the EarthCalm technology as well, though have not used it yet. They may well be different technology and could be helpful in different ways. For anyone having problems, I do encourage trying these things, and not giving up after the first one if it does not help, as not all of these devices use the same technology so results will vary, and of course everyone has different issues and needs.

 

I have found the rife machine somewhat helpful, but not enormously helpful. Before I got the home harmonizer, I could only stand about 20-30 seconds at any given frequency for any given usage. After I got the home harmonizer, I can handle it for minutes at a time. A good reminder that rife machines produce EMF's too, and it's not just the bugs that might be sensitive to them! Still, my use of the machine has really tailed off because of the time and energy it took to use it, compared to the free time I had, and the benefit was much less than other things I could do to help (oxygen concentrator, pills, far infrared sauna, massage, ...). For a couple months though, it was a decent helper in my total treatment. There are some that have gotten enormous benefit from the rife machines, so I do think it is something you'll have to try to judge for yourself.

 

I do think you most people will need to go at the lyme from multiple ways, not just one approach, to get to where they want to go.