How about some good news?

[jdude]

My son, age 10, starting OCD symptoms in early May of this year. Spoke w/school psych who mentioned in passing a possible strep connection, but we didn't consider as there is family history (my MIL has phobias, and what I was told was OCD, later determined not to be OCD). On a vacation in July noticed many new tics, extreme clinginess, behavioral regression (acting much younger). My husband said, this must be something medical, I remembered what the school psych said and did a lot of research. Came up with PANDAS-Bingo! Went to our pediatrician, who agreed to run the blood tests. ASO titers were high...he referred me to neurologist. Neuro thought it was Tourettes, said there wasn't really treatment for PANDAS. I knew better because of this forum and Beth Maloney. Looked at doctor list and made appointment w/Dr. Reed here in Ohio. She explained difference between PANDAS and Tourettes and why she felt this was PANDAS (no previous tics, no ADHD). She put us on Zithromax, a 10 day course to start, then 1x week prophylatic. This was end of September. In early October, ticcing was worse, constant. She gave steriod burst and the next week my son's teacher notified me there were two confirmed case of strep (aha-that is why the tics were worse), increased Zithro. As of Halloween...no tics, no OCD. Knock on wood he is doing great. However, when I hear of doctors still questioning the PANDAS diagnosis, I want to shout...look at my son, explain how he is doing so much better now!! I feel so fortunate that this information was available and out there so he could be diagnosed relatively early. Thanks to all of you. I haven't posted much, but the information on this forum proved so valuable to my son and my family!!

[SarahJane]

It's GREAT to hear your good news! Good for you & your family! Here's wishing your son continued health & recovery. Thanks for giving hope to others.

[Tamistwins]

Hi j dude,

I am so happy that your son is doing well!