Dare I hope?

[Fixit]

In September Allie began another PANDAS episode- you may recall, I had great difficulty finally getting the rifampin/augmentin treatment that has worked so well to bring her back in the past. We did finally get that treatment at the end of October/beginning of Nov. She improved a little on that but was still having a pretty rough time. Last Friday, we did IVIG a week early because we were planning on being out of town this week (trip was canceled so not doing that now). She seemed a little better on Saturday, even a little more better (ach! listen to my bad grammar!) on Sunday (only one short episode of fixation w/ SIB & aggression). Today after school I'm seeing her revert back to some prior obsessions (spinning things), but not with the intensity we saw previously and no SIBs or aggression w/ it. Communication is returning as well. Could we really, finally be on the mend? I'm daring to hope that's the case and this is not just a "good blip." She's also reverting back to some old videos that she used to obsess over- but again the intensity of it is reduced from the most recent ones (Dionne Warwick's Walk on By). She's laughing and happy right now- that magic laughter, not the manic kind.

 

Peglem....so awesome.... I've only read your posts on this thread!!!! Do you think it was because you did it a week early!??!?!?!.

And you are indeed a very good MOM!!!

[peglem]

In September Allie began another PANDAS episode- you may recall, I had great difficulty finally getting the rifampin/augmentin treatment that has worked so well to bring her back in the past. We did finally get that treatment at the end of October/beginning of Nov. She improved a little on that but was still having a pretty rough time. Last Friday, we did IVIG a week early because we were planning on being out of town this week (trip was canceled so not doing that now). She seemed a little better on Saturday, even a little more better (ach! listen to my bad grammar!) on Sunday (only one short episode of fixation w/ SIB & aggression). Today after school I'm seeing her revert back to some prior obsessions (spinning things), but not with the intensity we saw previously and no SIBs or aggression w/ it. Communication is returning as well. Could we really, finally be on the mend? I'm daring to hope that's the case and this is not just a "good blip." She's also reverting back to some old videos that she used to obsess over- but again the intensity of it is reduced from the most recent ones (Dionne Warwick's Walk on By). She's laughing and happy right now- that magic laughter, not the manic kind.

 

Peglem....so awesome.... I've only read your posts on this thread!!!! Do you think it was because you did it a week early!??!?!?!.

And you are indeed a very good MOM!!!

I don't know, but I'm going to do the next one at 4 weeks again- and decide when I see how that goes, if I should ask the immuno to up the frequency. Frankly, though I know she needs them, those IVIGs are getting a bit tiresome. If she holds steady doing them every 4 weeks, that's often enough for my tastes.