kmom Posted November 15, 2010 Report Share Posted November 15, 2010 We see an LLMD (not #1 dr. choice but I'm deperate) in 2 days and chomping at the bit. Only have 1 opening for 2 of my children right now b/c got a cancellation. Was picking DD9 at as she hasn't attended school in 6 days. Metldowns slowing down but has foot pain(varies tingling to sharp pains), thumb joint pain, electrical pulses (best description???) from forearms to hands, feels like eyes are going to pop out of head--these are in addition in the past 2 wks to PANDAS symptoms she's had since May. But DS6 is raging BAD these days. Not all day but when it happens, look out. Epsom salt baths are our saving grace...so maybe he belongs at the appt Wed. Huh decisions, decisions...at least moving forard. Anyway, IF turns out to be Lyme and/co-infections, was strep just a part of LD and PANDAS was mis-dx'd or does PANDAS go hand in hand w/ LD? I had a popular PANDAS neuro telling me he only saw 1 case of PANDAS and LD a while back. I know better from forum! Our immunologist overlooked LD b/f IVIg b/c Igenex "appreared" normal but so many of you said see LLMD b/c not cut and dry. Just feel like there is still such missing info between what docs know and we are left to pick up pieces so I thank you all for your advice. Link to comment Share on other sites More sharing options...
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