Taking steroids prior to IVIG with Lyme

[tpotter]

My kids are getting ready to get IVIG (hopefully...finally...I'll believe it after it has finally happened.) Anyway, they are being treated for Lyme...definitely are herxing. Because one of them got the terrible headache last time, I was told to give them steroids starting 2 days before IVIG, and then going to 1 day after. My other DS has never had IVIG, but, like his brother, had PEX.

 

I know we shouldn't be giving steroids with Lyme, but what about when IVIG is added in. Does anyone have any experience with this...and is this opinion or fact?

 

Thanks. We've been through so much the past few years and even just over the past year with treatments falling through, finding out that it's Lyme we're dealing with (one of my guys was diagnosed by trying the doxy, and he's definitely herxing,) and I certainly want to cause the least problems possible.

 

Thanks.

[sf_mom]

I have heard of some LLMD using short course steroids for specific situations BUT I think it would be better safe than sorry.

 

I would try Motrin every four hours verse steroids.

 

-Wendy

[lyme_mom]

I dont have any experience with ivig but I know there are a number of remedies for inflammation that do not suppress the immune system that might be worth looking into like quercetin, that natural aspirin for head trauma, arnica and possibly others. I had to take these things instead of pain killers after the removal of a root canal and I never had pain. I think it worked because it stopped the swelling.