Just starting out and need direction

[momof3inTN]

I have two wonderful kiddos with PANDAS, maybe. My son, 10 yo, has OCD and his stool sample has Gamma Strep, 4 out of 4 on their scale. My daughter, 9 yo, started throwing major temper tantrums in August after being sick. She has been dx with Tourette's and her dr thinks she has PANDAS also. We did the blood work and it came back negative but as I understand that can happen and she could still have it. She has several major meltdowns (Very angry) a day and I'm afraid she is going to hurt herself or others. We started them on OLE a week ago, 500mg 3x day. Now she is having daily headaches and he is very tired. Not sure if they are reacting to the OLE. My daughter is and has been on GSE to control her yeast, which is getting better. I would love to know if there is something else that we can give her. We go back to the dr on the 9th to talk about the results and possible antibiotics but I would love to start getting this under control with natural cures. She is very out of control and his OCD is taking over his day.

 

Thanks for your help.

[T_Mom]

Hi and welcome. I am glad you found the forum, though sorry you had to--If they found strep are they treating it, right?

 

At the top of the Pandas page is a "helpful threads" site which has FAQs, a flowchart for what most of us have found effective, etc. I think you may find these useful if you have not seen them yet--

 

There are a number of websites with similar info. www.pandasnetwork.org is one I have found to be very useful.

 

In our experience, antibiotics and steroids gave relief. I hope you are able to help your children as quickly as possible.

Edited October 27, 2010 by T.Mom

[Fixit]

I have two wonderful kiddos with PANDAS, maybe. My son, 10 yo, has OCD and his stool sample has Gamma Strep, 4 out of 4 on their scale. My daughter, 9 yo, started throwing major temper tantrums in August after being sick. She has been dx with Tourette's and her dr thinks she has PANDAS also. We did the blood work and it came back negative but as I understand that can happen and she could still have it. She has several major meltdowns (Very angry) a day and I'm afraid she is going to hurt herself or others. We started them on OLE a week ago, 500mg 3x day. Now she is having daily headaches and he is very tired. Not sure if they are reacting to the OLE. My daughter is and has been on GSE to control her yeast, which is getting better. I would love to know if there is something else that we can give her. We go back to the dr on the 9th to talk about the results and possible antibiotics but I would love to start getting this under control with natural cures. She is very out of control and his OCD is taking over his day.

 

Thanks for your help.

 

on recent thread..there is talk of gse ramping up rage....

the pandas can create rage....

not knowing what is going on with your body...that would make me rage...as i believe it does these kids

i would persue all mentioned possible infections, autoimmune conditions, allergies, parasites, immune condition in general..vitamin, mineral panels..there is alot to check...strep titers can be negative and you may have cleared the infection and may have become autoimmune condition

this is not a quick process or elimination process either