Pain, Seizures, Visual Disturbances

[Suzan]

dd9 has her igenex test back already that I have posted about (Band 41+ and IND bands 31 and 34 seeing LLMD next month) and now we are anxiously awaiting my result and my dd8's result. Hopefully it will come back this week. I am getting sicker and sicker as the month goes on and if it's not lyme I don't know what it could be. The symptoms are overwhelmingly suspicious of lyme.

 

dd8, who has had an easier time with PANDAS than dd9 (emotionally anyway), her symptoms are hoarding, age regression and food restriction (for the most part) has all of a sudden started getting arm pain, leg and rib pain, heel pain, headaches and "green squares blocking her eyesight". Her staring seizures are back after being gone for a year (seeing her neurologist at the end of the month and I see seizure meds in our future again ). One thing that I have always noticed about her that I have not had an explanation for is that she can't get the time of day straight (breakfast, lunch, dinner, morning, evening, today, tomorrow, yesterday). I started wondering if this could be lyme after I realized that I can't remember what day it is anymore, pretty much ever.

 

Why am I posting all this? I don't know, just anxious for our tests to come back and to get th the LLMD. I think I've been as patient as I can be and I'm starting to unravel.

 

Susan

Edited October 17, 2010 by Suzan

[sf_mom]

Susan

 

Hang in there. I understand your anxiousness in getting results. Everything you write..... is definitely suspect of Lyme. Did you have the opportunity to see any of the conference yesterday?

 

-Wendy

[philamom]

Susan

 

Hang in there. I understand your anxiousness in getting results. Everything you write..... is definitely suspect of Lyme. Did you have the opportunity to see any of the conference yesterday?

 

-Wendy

Do you mean Friday? I thought it was off-air yesterday and today?

[sf_mom]

Yes, Friday... sorry.

[philamom]

Yes, Friday... sorry.

It must be a lyme moment LOL. Kiddin aside -- hope you and the family are doing well. I just wanted to be sure I wasn't missing out on the rest of the conference. I was only able to catch Dr. Harris, Dr. Bransfield and Dr Gaito on Friday's session.

[philamom]

Suzan- Can you get in any earlier for your appt? If the llmd feels it is lyme, they will begin treatment while waiting for results. Hang in there!

[matis_mom]

I started wondering if this could be lyme after I realized that I can't remember what day it is anymore, pretty much ever.

 

Susan

I can keep the days of the week straigh to a certain extent, but let's say I know we have something out of the routine happening on Wednesday, I will remember on Monday, on Tuesday, but then Wednesday rolls around and I totally miss the event. This keeps happening! I will just have to accept it and count on my calendar more than my brain! The thing is I'm so off track with everything it seems, just getting in the habit of writing things down and checking the calendar seems like an unatainable goal.

 

Hang in there, Susan. You will get to the bottom of this, I just takes time.

[Suzan]

Susan

 

Hang in there. I understand your anxiousness in getting results. Everything you write..... is definitely suspect of Lyme. Did you have the opportunity to see any of the conference yesterday?

 

-Wendy

 

No, I was not able to see any of the conference. I am hoping I can go back and see it later, do you know if that is possible?

 

Susan

[Suzan]

Suzan- Can you get in any earlier for your appt? If the llmd feels it is lyme, they will begin treatment while waiting for results. Hang in there!

 

She could not see us in October due to all the conferences getting her behind so we are going on November. I hope that she will see us all by then. I am sending in my file and dd8's as soon as we get the results in. She really likes to do a full review of medical history, symptoms history and igenex test before doing the physical exam.

 

Susan

[sf_mom]

O.K. I was just got back from the grocery store, went to the chicken aisle to get chicken breast, stood in the aisle, looked around and went home with out it (even when it was on the list)... talk about short term memory loss.

 

Susan: I highly recommend buying the DVD for Dr. Ann Corson talk from ILADS conference. She was fantastic in going over symptom presentation in children, etc. It will help give you confidence you are on the right track for both your girls.

 

http://ilads.org/store/store_lyme_video.html

 

-Wendy

[Suzan]

O.K. I was just got back from the grocery store, went to the chicken aisle to get chicken breast, stood in the aisle, looked around and went home with out it (even when it was on the list)... talk about short term memory loss.

 

Susan: I highly recommend buying the DVD for Dr. Ann Corson talk from ILADS conference. She was fantastic in going over symptom presentation in children, etc. It will help give you confidence you are on the right track for both your girls.

 

http://ilads.org/store/store_lyme_video.html

 

-Wendy

 

I really hate to talk about my lyme symptoms before I find out if I have it or not, but today I forgot I had to put the car back into drive from reverse to go forward. It is not a good feeling so I know your chicken experience!

 

I know my LLMD was at the conference so that makes me feel good. I will look into this DVD. I am really enjoying Cure Unknown and I know I will like to listen to Dr. C's talk too.

 

Susan