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Posted

I had my DD8 pediatrician, who is not a pandas doctor, perform the ASO, Anti-DNAse B & platelet labs. The results stated:

ASO: 16.3

Anti-DNAse B: <1.6

platelets: 352

 

The pediatrician's nurse called me with the results and said they were fine. Does anyone know how to interpret these results because it is all foreign to me. I am currently waiting for the Cunningham results to come back, so until then I am waiting to see a pandas doctor - trying to get all the pieces together first.

Posted

It appears that there is not an elevation of ASO or AntiDNase B

But don't give up hope...remember 30-40% of PANDAS kids don't have elevated titers. Wait for the Cunningham test.

Kara

Posted (edited)

Lots of PANDAS kids have low titers...and according to Buster's survey, this is especially true in GIRLS. http://www.latitudes.org/forums/index.php?showtopic=9495&start=0&p=79704&

 

fromsearch=1entry79704

 

Only 15% of girls had elevated ASO or Anti-DNAseB over the course of the illness

Whereas 54% of boys had elevated ASO or Anti-DNAseB

 

In addition, 23% of girls did not have a rise in ASO or Anti-DNAseB despite a positive throat culture

whereas 14% of boys had this situation.

 

What I'm raising is that boys were ~4x more likely to have a rise in ASO or Anti-DNAseB

Edited by EAMom
Posted

Wow, thank you for the encouragement Kara! And the chart your sent EAMom was fascinating and very helpful. She had a hard time getting clothes on this morning and it turned into a tantrum and then in the school parking lot she pulled my hair, hit me & threw her shoes at me (for everyone to see). I'm having a hard time deciding if I punish her or if this is the disease that's causing this. Thank you again for all your help

Posted

Theoretically, according to the therapists and books, she should suffer consequences. I know this is hard and I can't say we were super successful with it, but we would try to have the conversation when my dd was not having an episode and tell her that if she hurt anyone or anything, she would have to make reparation in some way. She would normally feel terrible after something happened anyway...

Posted

Cassi

 

It sounds like pandas, many of us have been through that same scenario :(

 

While I agree that you cannot tolerate physical aggression- I also know we had to change the way we parent in order to help me daughters.

 

I strongly suggest seeking a therapist- if even just for you, to help you with strategies to deal with these new behaviors. This was a great help to us. I also recommend learning about OCD and getting the book "what to do when your brain gets stuck: a childs guide to overcoming OCD". We found OCD to be behind most outbursts.

 

Nothing really worked that successfully until we got proper medical treatment.

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