Stephanie2 Posted October 9, 2010 Report Posted October 9, 2010 Silvia, what are your thoughts on Glutathione in the nebulizer? Do you think it is worth it? I have some on hand and thought about doing it the next time we have an exacerbation...
Sylvia Posted October 9, 2010 Author Report Posted October 9, 2010 From what I have read on my various autism groups, nebulized glutathione is the second most effective route after I.V. The major downside I have heard about it is getting kids to comply since it is stinky - glutathione smells like sulphur, so getting some kids to inhale something that smells like rotten eggs can be challenging. But not impossible, especially if they are able to understand why they need to do it. So I think it would be a very good option for a lot of kids. Silvia, what are your thoughts on Glutathione in the nebulizer? Do you think it is worth it? I have some on hand and thought about doing it the next time we have an exacerbation...
NancyD Posted October 9, 2010 Report Posted October 9, 2010 (edited) It is very stinky. My DD could not tolerate the smell. IV was much better for her. For those children who have difficulty with the push IV (my DD was one), consider the drip. Much easier and not that much longer. The push is 10 minutes, the drip is 20 minutes. Edited October 9, 2010 by NancyD
Stephanie2 Posted October 10, 2010 Report Posted October 10, 2010 Well that explains why my 2 year old hates it! We used it before and after his recent surgery to help tolerate the gen anes. I never thought to smell it... From what I have read on my various autism groups, nebulized glutathione is the second most effective route after I.V. The major downside I have heard about it is getting kids to comply since it is stinky - glutathione smells like sulphur, so getting some kids to inhale something that smells like rotten eggs can be challenging. But not impossible, especially if they are able to understand why they need to do it. So I think it would be a very good option for a lot of kids. Silvia, what are your thoughts on Glutathione in the nebulizer? Do you think it is worth it? I have some on hand and thought about doing it the next time we have an exacerbation...
kmom Posted October 11, 2010 Report Posted October 11, 2010 Heard back from my local DAN Dr. about glutathione. He was on board to work with my kids on this. Here's part of his response: Glutathione is a vital piece to the puzzle amongst many of the kids. Believe it or not, most times the level comes back normal when we test, although many kids respond remarkably to it. We can give an empiric trial based on the kids' histories with either topical or nebulized glutathione. The IV Glutathione would have to be administered at another site or by a nurse, since we don't perform that service. Let me know how you'd like to proceed. If you'd like to have the glutathione levels tested, I could order the kits for you. Seems like such good stuff for your body. Maybe I shouold get levels tested! Anyone find their kid's levels weren't considered low but it helped anyway?
Sylvia Posted October 11, 2010 Author Report Posted October 11, 2010 About 5 years ago we did the topical glutathione cream. My oldest son called it "asparagus cream" because of the smell. I guess asparagus was the worst vegatable that he could think of to describe the smell! That always cracks me up when I think about it.... Well that explains why my 2 year old hates it! We used it before and after his recent surgery to help tolerate the gen anes. I never thought to smell it... From what I have read on my various autism groups, nebulized glutathione is the second most effective route after I.V. The major downside I have heard about it is getting kids to comply since it is stinky - glutathione smells like sulphur, so getting some kids to inhale something that smells like rotten eggs can be challenging. But not impossible, especially if they are able to understand why they need to do it. So I think it would be a very good option for a lot of kids. Silvia, what are your thoughts on Glutathione in the nebulizer? Do you think it is worth it? I have some on hand and thought about doing it the next time we have an exacerbation...
Sylvia Posted October 11, 2010 Author Report Posted October 11, 2010 Amongst the autism groups I belong to, most parents don't test glutathione levels. Most of the testing we do is not covered by insurance, and glutathione is one of those things that most kids seem to benefit from, so most skip the testing and just give it a try. There are kids that don't do well with a lot of sulphur supplements, but that is pretty rare. It seems that most kids I hear about have a good response to glutathione. Heard back from my local DAN Dr. about glutathione. He was on board to work with my kids on this. Here's part of his response: Glutathione is a vital piece to the puzzle amongst many of the kids. Believe it or not, most times the level comes back normal when we test, although many kids respond remarkably to it. We can give an empiric trial based on the kids' histories with either topical or nebulized glutathione. The IV Glutathione would have to be administered at another site or by a nurse, since we don't perform that service. Let me know how you'd like to proceed. If you'd like to have the glutathione levels tested, I could order the kits for you. Seems like such good stuff for your body. Maybe I shouold get levels tested! Anyone find their kid's levels weren't considered low but it helped anyway?
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