I have Lyme too

[H Mom]

My two children (ages 13 and 15) both tested positive for Lyme in mid-August. I followed up by testing myself for Lyme and found out this morning that I am positive too. We have no idea when or where we got lyme. I have considered the possibility that this is something I have had long term that I passed to the kids congenitally. However, it seems my symptoms and my 15 year olds symptoms both started last Fall. My 13 year old has had OCD symptoms from about age 5 and her Lyme symptoms are very bad. We all four got flu-mist in the Fall and I have heard that that may have triggered inactive lyme. I have heard that Lyme feeds on metals and that is why vaccinations can trigger it. I will probably never know the answer to how we got this or when, but just thought I would throw this out. My husband is now going to get tested.

[JTs-Mom]

Just curious what lab you used and what made you suspect Lyme (or was it suggested by your doc)? Are you seeing an LLMD?

[H Mom]

My kids Lyme tests were ordered by Dr. B as part of his routine panel prior to a Pandas consultation. We did not expect to find Lyme. He sent us the lab work forms and we went to Lab Corp. Dr. B referred us to Dr. Jones and he began working with the kids immediately. I went through Igenex and just got my results today. Dr. Jones only treats children so I need to find a Lyme Doctor. I am in Houston and I do not believe there are any Lyme Doctors here. I am researching now even the possibility of going with a homeopathic approach for both the kids and me. Any thoughts on homeopathic/herbal ART approach vs. traditional heavy long term antibiotic approach would be greatly appreciated.

[matis_mom]

My kids Lyme tests were ordered by Dr. B as part of his routine panel prior to a Pandas consultation. We did not expect to find Lyme. He sent us the lab work forms and we went to Lab Corp. Dr. B referred us to Dr. Jones and he began working with the kids immediately. I went through Igenex and just got my results today. Dr. Jones only treats children so I need to find a Lyme Doctor. I am in Houston and I do not believe there are any Lyme Doctors here. I am researching now even the possibility of going with a homeopathic approach for both the kids and me. Any thoughts on homeopathic/herbal ART approach vs. traditional heavy long term antibiotic approach would be greatly appreciated.

I have it too (based on history of symptoms) but regular labs are negative so I'll have to the Igenex and find a doc too!

I have the feeling many of my kids have it too. So overwhelming...

BTW, does Dr. Jones accept insurance? We live in VA but are going to see dr. B in CT, and maybe we could at least go for a consultation, but with 8 kids, I need to stay with practitioners that will be covered.

[justinekno]

He does not take insurance

 

BTW, does Dr. Jones accept insurance? We live in VA but are going to see dr. B in CT, and maybe we could at least go for a consultation, but with 8 kids, I need to stay with practitioners that will be covered.

Edited September 18, 2010 by justinekno

[pamsboy]

How was Dr Jones so far? We are seeing him on Monday...thanks

[MichaelTampa]

H Mom,

 

There are a couple books I would recommend in terms of considering going the non-abx approach.

 

Insights into Lyme Disease Treatment, by Connie Strasheim

Healing Lyme, by Stephen Buhner

 

Strasheim's book provides a discussion from 13 different doctors, how they treat lyme. Some with abx, some not.

Buhner's book provides an herbal protocol.

 

I imagine a number of people have gotten well without abx, but I think the many people will have difficulty doing that without the abx. The majority struggle to do it any which way they can, and I think many struggle even though they go with abx and herbs. These two books will certainly give you some ideas, regardless of which way you go. Regarding, TX, yes, we hear it is somewhat illegal to seriously treat lyme in Texas, quite a shame!

 

Wishing you the best!

 

Michael