Update on us...

[lmkmip67]

I think it has been about 3 weeks or so since I found this place and really started to think Ian may be dealing with PANDAS. We got the blood work results back today and everything came back as normal. Not sure what that means for PANDAS or not. Our appointment is 2 weeks out with Dr. B in CT. Ian's 3 or 4 tics have really subsided in the past three weeks, right after school started. He still has many OCD tendencies and tantrums, etc. Still very defiant and all of that. I watched the Tourettes uncovered last night and it freaked me out. I so don't want that for my son. I know, none of us do. But I am so scared that will be him. I can't talk to my husband about it because he is paralyzed with fear about all of this for Ian. I am trying not to think the worst. Days are harder when he is tired, for sure. Homework is a nightmare. His teacher knows what we are dealing with, so that helps. Motrin seemed to help when he had the vocal tic, it make it totally disappear. But now that the vocal tic is gone it is hard to tell if it really helps or not. Oh well, just taking it one day at a time. We had a pretty good couple of weeks. The tics being not so obvious makes it easier to pretend he is fine. But I know he isn't

 

Lisa

[lmkmip67]

I will take a picture of it with my phone, hold on.....too many to type out. I know she refused to order ALL the tests DR. B orders. But she did a lot.

[Fixit]

Lisa..i don't know what tests you ran..but let doc B tell you if they are normal...

the other thing is you may have cleared every infection and its autoimmune where the body takes over and you need to put some brakes on a run away car...

 

i don't know your whole story...i am not deciding what is bad or not bad...as a mom, its all bad..but he sound like he is o.k. right now..so be try to be ok right now too...

 

also there about a thousand other things you may need to persue..

ie lymes, celiacs, chrones, food allergies, vitamin defeciency, thyroid, gut issues..i'm sure there are more...

 

some parents are really versed in areas that seem to effect or trigger their kid...you will get there but it may take a while

[lmkmip67]

Ok, here is the picture of the results. Hopefully it loads.

[lmkmip67]

Lisa..i don't know what tests you ran..but let doc B tell you if they are normal...

the other thing is you may have cleared every infection and its autoimmune where the body takes over and you need to put some brakes on a run away car...

 

i don't know your whole story...i am not deciding what is bad or not bad...as a mom, its all bad..but he sound like he is o.k. right now..so be try to be ok right now too...

 

also there about a thousand other things you may need to persue..

ie lymes, celiacs, chrones, food allergies, vitamin defeciency, thyroid, gut issues..i'm sure there are more...

 

some parents are really versed in areas that seem to effect or trigger their kid...you will get there but it may take a while

 

Well, we tested some of that. we have done all the food allergy tests year because he is allergic to milk. So I know what he is allergic to and what he isn't as far as food. we avoid those things 100%. I am trying to take it one day at a time. i was doing ok with that until i watched that show. last night. lol

[thereishope]

If the Motrin helped with the tics, I would take that as an indicator of possibe PANDAS/PITAND. Have you done the Cunningham test or considered it?

 

I think it has been about 3 weeks or so since I found this place and really started to think Ian may be dealing with PANDAS. We got the blood work results back today and everything came back as normal. Not sure what that means for PANDAS or not. Our appointment is 2 weeks out with Dr. B in CT. Ian's 3 or 4 tics have really subsided in the past three weeks, right after school started. He still has many OCD tendencies and tantrums, etc. Still very defiant and all of that. I watched the Tourettes uncovered last night and it freaked me out. I so don't want that for my son. I know, none of us do. But I am so scared that will be him. I can't talk to my husband about it because he is paralyzed with fear about all of this for Ian. I am trying not to think the worst. Days are harder when he is tired, for sure. Homework is a nightmare. His teacher knows what we are dealing with, so that helps. Motrin seemed to help when he had the vocal tic, it make it totally disappear. But now that the vocal tic is gone it is hard to tell if it really helps or not. Oh well, just taking it one day at a time. We had a pretty good couple of weeks. The tics being not so obvious makes it easier to pretend he is fine. But I know he isn't

 

Lisa

[lmkmip67]

If the Motrin helped with the tics, I would take that as an indicator of possibe PANDAS/PITAND. Have you done the Cunningham test or considered it?

 

I think it has been about 3 weeks or so since I found this place and really started to think Ian may be dealing with PANDAS. We got the blood work results back today and everything came back as normal. Not sure what that means for PANDAS or not. Our appointment is 2 weeks out with Dr. B in CT. Ian's 3 or 4 tics have really subsided in the past three weeks, right after school started. He still has many OCD tendencies and tantrums, etc. Still very defiant and all of that. I watched the Tourettes uncovered last night and it freaked me out. I so don't want that for my son. I know, none of us do. But I am so scared that will be him. I can't talk to my husband about it because he is paralyzed with fear about all of this for Ian. I am trying not to think the worst. Days are harder when he is tired, for sure. Homework is a nightmare. His teacher knows what we are dealing with, so that helps. Motrin seemed to help when he had the vocal tic, it make it totally disappear. But now that the vocal tic is gone it is hard to tell if it really helps or not. Oh well, just taking it one day at a time. We had a pretty good couple of weeks. The tics being not so obvious makes it easier to pretend he is fine. But I know he isn't

 

Lisa

 

We haven't and I am not sure exactly what it is. I will look into it. I am sure Dr. B would order it, huh? The other thing I was thinking about was gluten. Not sure. This is still so very new. But something is going on for sure. I am just starting the journey figuring out what that is and how to deal with it.