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  1. Hi everyone, Have any of you had a dramatic regression/increase in symptoms from starting Rifampin? To give context, I’m 22 and had untreated PANS for eight years. I got diagnosed at 19 in 2014, had two IVIG’s, a tonsillectomy, a year of steroids, and I went into complete remission by the...
  2. I'm not sure how to deal with this situation. For the past few months, DS has had a flare up every month or so. Whether it's related to the Lyme life cycle or parasites, I don't know, maybe it's both? He flares around the full moon, and so people have brought up the possibility of parasites. His...
  3. In the last week, DS has developed an alarming tic where he tries to bite something/someone. He hasn't bitten anyone yet, but he does bite himself (on the fingers, on the knee) and things like blanket, stuffed animals, toothbrush. I'm wondering if this could be a herx reaction from the Biocidin...
  4. Would some of you please let me know what you've used that's affective in minimizing herx reactions? We just started some new abx, and expecting things might get a bit rough in the next few days. Thanks so much!
  5. Would some of you please let me know what you've used that's affective in minimizing herx reactions? We just started some new abx, and expecting things might get a bit rough in the next few days. Thanks so much!
  6. Our doctor changed our son's (DS 15) antibiotic from Rifampin/Bactrim/Omnicef to Minocycline/Omnicef two days ago. His tics, anxiety and OCD have gotten even worse ever since. Wondering if this is from the change in antibiotics and if so, will it stabilize? Thank you for any guidance.
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