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Hello! I’m feeling VERY alone because I haven’t seen my doctor at all since BEFORE I was diagnosed and put on an antibiotic! I have been diagnosed with adult PANDAS recently on top of a diagnosis of ADHD, anxiety, hypoglycemia, hypothyroidism, and seizures I began treatment with an antibiotic last month, but I’ve been feeling VERY introverted, irritable, and indifferent for a month now, especially. Does anyone else have these same symptoms? I want to keep to myself and only work on what I need to do most of the time and I get overwhelmed or very irritable when Im in social settings or am made to talk to someone I dont have to talk to or don’t plan on talking to. I’m also very indifferent to most things I do and to most people. I don’t feel like I care about anything. My mother is VERY upset with me that I’m like this because I don’t want to talk to her and I get short with her very easily. It makes me upset that she’s upset because she’s now telling me that I’m not getting better in her eyes and that I’m not so sick that I should keep to myself in this way. In short, I kind of feel as if I dislike everything! What are anyone’s experiences or thoughts on such things with PANDAS? thank you! -
Hi all, My four and a half year old daughter finished a two week prescription Augmentin on Friday night. The improvements we saw in her during that 2 weeks were incredible -- sleeping in own bed 11-12 hours a night (vs. night terrors, or waking up multiple times each night, needing us to sleep in with her, etc), nonexistent rage (vs. daily rage, started after a virus in November), big reduction in OCD behaviors. We saw many wonderful moments of having our "daughter back." Question is, how long is typical to be on antibiotics? The last 2 nights our daughter has woken up a few times overnight. Thankfully no night terrors or screaming. But, as she just completed the antibiotic we are watching her closely for any recurrence of past issues. Is it typical for a kid her age to go on longer than 2 weeks? If she were to have another flare soon, would we expect her dr. to re-up the Augmentin or try a different approach? Thank you in advance.
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Hi all, I have approval from Dr T to try minocycline, but was then told by his staff I'd have to visit him in person before they'd call the rx in. So, in the meantime I'm wondering if anyone knows anything about ordering minocycline online? I found many sites, and from the one below it seems to be the same rx, but for animals. The price is good - but I'm wondering if anyone has done this before? Am I crazy for considering this? Here's the site I'm looking at: http://www.allivet.com Also, here's a patent that was submitted for treating anxiety/ocd with minocycline - interesting! Has anyone tried it for their OCD/PANS? Treatment of anxiety disorders with minocycline: http://www.google.com/patents/WO2008104734A1?cl=en
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Hi there everyone! I'm so happy to have found this forum. I have an 8 year old son who has had tics on and off since about 3 years old. He doesn't fit into the Tourette's diagnosis and I was always told by his Drs. that he'd grow out of his tics, but they're still here! He's had strep a few times and I'm taking him to the dr. soon to talk more about PANDAS. My question is: He has taken antibiotics a couple of times since the tics started, could it still be PANDAS? I don't know if some antibiotics only target certain areas or if any antibiotics that he's taken should have wiped out the strep infection if that's what is causing his tics. Thank you so much for any information!