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Found 81 results

  1. lulu648

    Tichelper.com

    Has anyone tried tichelper.com yet? Interested to see if it's helping people. Thank you!
  2. Hi everyone, I am almost 25 and just got diagnosed with PANDAS a couple months ago. When I was six, I had Sydenham’s chorea and was put on prophylactic penicillin, which I continued taking until age 22. For the past few years I have been having increasingly bad symptoms and finally just found out that I have also had PANDAS the entire time. I also scored very high on the Cunningham Panel. Unfortunately, IV steroids made me worse, and the treatment recommended to me is rituximab, which I do not want to do. I feel like I need to figure out the root cause of why I am having an autoimmune problem. My symptoms are the following: -OCD -Mood crashes every few weeks related to OCD -Tics -Sleep disturbances -Social anxiety -Eye problems: My eyes and eyelids start to feel like they are shaking if I try to look at someone for a few seconds straight while trying to concentrate on what they are saying (has anyone else had this??); Occasional throbbing pain above and behind my eyes or pain when moving my eyes; Dilating pupils -Digestive problems -Acid reflux -Achy muscles sometimes -TMJ -Plaque on teeth -Some numbness in arms and legs when lying down at times Things I have tried: -Bactrim (no effect in first week) -Candex (same) -Air purifier for mold -Probiotics -Infrared sauna I am doing 23andMe and am thinking of doing tests for heavy metals, mold, other autoimmune diseases, gut testing, and maybe others. If anyone has any ideas or thoughts, I would be very appreciative. I am pretty desperate to get better 😑 Any recommendations for doctors in the Northern Virginia area would also be helpful.
  3. lulu648

    Touretic OCD

    Has anyone out there heard of Tourettic OCD? I just heard the term today for the first time. Any info appreciated! Thanks!
  4. I have been taking some immune boosters, antivirals, and antifungals for sometime now and notice reduce in tics. However, my thoughts become more scattered and quite frankly psychotic. I get anxious and my personality becomes rather dull when I take them. This has led me to the assumption that I do not have Tourette’s, but rather PANS. What are your experience with immune boosters or immunomodulators? Does it relieve tics at least? Would you have any idea why it may cause psychotic symptoms? I was thinking increased brain inflammation. Does it mean it’s helping rid of the infection causing tics? The list of what most certainly gives me psychotic symptoms Olive leaf extract Oregano Colloidal silver Reishi and other mushrooms Coconut oil, MCT and monolaurin
  5. Hello, I'm 17 years old. Over the past month or two I've noticed some what I believe is tic's. It started when touching a certain part of my body (my nose) caused a tic where my arms would not have any control and my hands would curl into almost like a first involuntarily. That has been going on for about 5 months. Until the last few months they are coming without touching my nose, they come in attacks or "tic attacks". Lasting about 30 min and then they stop. My tic attacks involve my arms almost "flailing" to put into a sense but not as bad, they never extend fully. my head will twitch and turn usually to the right but sometimes the left. My hands do weird gestures like pointing, extending, holding down 1 finger and balling into fists or claw like gesture. It feels like a surge of energy being shot into my body and my body responds automatically with twitching to realse the energy, does that sound like a tic? I tried to research but it told me they come as a small child, And I'm nearly an adult. Some triggers are thinking of a stress full situation, itching my nose haha. But they come sometimes when no identified trigger. Thank you for your time! I'd like to hear your thoughts .
  6. To give little history, I've been diagnosed with schizoaffective disorder, which is simply explained as bipolar and schizophrenia together. I've also had tics all my life, mostly blinking, and some OCD. Whenever I take immune boosting supplements my general feel of psychosis and irritability increases, and so does my tics. Any idea as to why? And I'm open to any recommendations on how fixing it. That's it for my question. Below are some indications for those that have the ability to do detective works. Olive leaf extract: gives me energy and temporarily cures tics. Often cause mania, anxiety, some delusional thoughts and dissociative feelings. Coconut oil and MCT oil: irritates my throat. If taken too much I get full blown symptoms of flu, even worse. Temporarily boosts energy and cause mania, but also heightens my anxiety. Cured warts on my feet. Oregano oil: made my tics worse and my head gets locked into thought loops and even with meditation my mind cannot stay clear headed for more than few seconds. This made me look at salicylate sensitivity as well as oxalates. I got a bottle of No-Nenol on the way so let's see. I have once cut out all high sal foods and cosmetics but it didn't seem to help much. But recently I've been consuming a lot of phenolic supplements and since I've cut them out my thoughts seem bit clearer. Some general main symptoms include Constant thought loops that are obsessive and unproductive, even though I frequently meditate (up to two hours daily) Tics and muscle tightening (semi involuntary) Brain fog Delusional feeling and thoughts Ultra ultra rapid cycling mood. Cocaine high - numb and no pleasure - suicidal depressed (recently okay ) Extreme sensitivity to sugar, leading to severe depression and anxiety Mild OCD Anxiety Digestion seems fine since changing my diet. Let me know your thoughts on this!
  7. Hi! im New here. My 9 yo son was diagnosed with minor tics a few weeks ago. It started in November. Head twitch and throat clearing. This week face grimace added. Neurologist said he would probably grow out of it. Went to ND and did a food sensitivities test. We are waiting on results. Have started GF diet for now but hoping for more info when get food sensitivities test back. Did Epsom salt bath this week but 2nd day he had a bit of a rash on his back so stopped that. Will try Nature Calm this weekend. I started charting food this week. I’m feeling overwhelmed and saddened that in the last week it’s not getting better with the GF changes. Do most people eventually find something that works to help with the tics? When the changes occur, do they stay? I just need some hope. Thanks in advance.
  8. lisashny

    Doctor in NY

    Looking for a doctor for my son with tics who is 11. I KNOW it can be controlled with diet and sleep, but my husband does not believe me. I have stopped my son's tics 4 different times over the last 4 years when I was able to help him eat clean and get solid sleep. Looking for a doctor to confirm and do food intolerance testing if possible to show my husband proof. Also, just need a professional that has worked with this, so my husband will believe that it is true and not something that is just made up. Thank you! Anyone else having trouble convincing a spouse? Any suggestions?
  9. For those of you who have tried LDI for strep - what has been your post LDI experience - does your child still get strep infections? if yes, how do they react to these infections - do they get regular strep symptoms (minus flare)? Do you see their immune system fighting these infections? My worry is that if i get my child "sensitized" to strep, his body is going to ignore strep as an antigen - his defenses are going to be lowered as a result of the sensitization. Hope this makes sense.
  10. Hi, I am new to this forum and looking for some guidance and support in regards to my 8-year old son. About 2 years ago (Fall 2012) my son had his adenoids removed (because of constant sinus infections). It helped tremendously. But a few weeks after his surgery, he started clearing his throat quite often. I attributed it to residual irritation from the surgery and the ENT told me that was probably the case. The throat clearing stopped after about 3 months. Then he started with what I can best describe as eye-widening for no reason. I actually called the ENT and asked if that was normal after adenoid removal and he said he never heard of it. But it stopped after a month or two, so I let it go. Then he started with "hand waving." Everything he does, whether it is reading or playing with LEGO or eating, he subtly waves his hand over the food, toy, book, etc. It almost looks like he is casting a spell. That decreased in frequency after a month or two, but still happened on occasion. Then the eye-widening came back in Fall 2013. I took him to his pediatrician and she said neurologically he looked fine, but to see an opthamologist if I was concerned. So I did. He was totally fine. So I went with my instinct and took him to a pediatric neurologist, who told me the eye-widening sounded like a transient tic. We did an EEG to rule out anything else and it came back totally normal. But now the past few weeks, he has had many new tics develop. The eye-widening has almost entirely gone away, but now he is darting his eyes around a lot, like he is overly distracted. The hand-waving is frequent again. He was making a grunting laughing sound for about a week. When that stopped, he started making a grimacing, eye-squinting face. And just the other day he started nodding his head for no reason. It is very upsetting to me to see him do these things. Most people around us (friends, family) don't notice these tics or just attribute them to his "goofy" behavior. But I notice. I am taking him back to the pediatric neurologist this week to discuss my concerns. I worry that this is a sign of Tourettes or something much more serious. In terms of environmental factors, we have been working on a massive home renovation project the past 6 weeks, so I am not sure if that would trigger this new wave of tics. Allergy season is in full swing in our area (although he isn't showing any typical allergy symptoms)--last night I put our HEPA filter into his bedroom to see if that will help. Myself and my daughter have Celiac disease, so he eats 99% gluten free and relatively healthy (no dyes, overly processed foods, etc.). He takes a multivitamin, a probiotic, Vitamin D, calcium and magnesium just about every day. I even tried Epsom salt baths a few times a week for a boost in magnesium, but didn't notice any change. I am going to try and stop screen time for a week or so. Now that the weather is warmer, he will definitely get outside more and increase his activity level. Does anyone have experience with this type of situation, where mild tics occurred on and off then suddenly seemed in increase in variety? I would not consider it a "drastic" increase or affecting his school performance (yet), but it's enough that I notice it and it's worrying me terribly. Thanks.
  11. Hello - have you all heard of and considered Low Dose Immunotherapy (LDI) for your children. There is a very nice YouTube video of Dr Ty explaining the use of LDI for lyme/pandas. He is a very convincing speaker and we are going to talk to him. Wanted to know if you have any feedback for us.
  12. Hi! I'm so, so happy that I found this forum. Just picked up the Natural Treatment for Tics & Tourettes book a few days ago and I'm so glad I did. I am the mother of a 15 month girl, and absolutely frightened because she is exhibiting multiple motor tics. This all started on January 29th, the same day she learned to walk. I was video taping her to show my folks that she was eating with her fork and noticed she did a few odd head jerks. I caught it on video and showed my parents and husband that day but all anyone was focused on was the amazing miracle of our little one walking on her own. I brushed it off, but had a bad feeling about it. I'm with her 24/7 since I took postpartum time off and now I work from home and take care of her, so I feel like I have a very good grasp of her personality and eccentricities. The head jerk tic continued, and she did it while walking as well, almost as if she was trying to balance herself. It continued, so I made an appointment with her pediatrician for Feb 6th. Her doctor viewed the video and said it was a tic, but nothing to be concerned about, that I should cut out all TV time for a week to be safe. Our daughter doesn't really even watch that much TV. 10 minutes tops a day while I change her diaper or clip her nails. This was when she only had one tic. Still, I did what she said, but more tics started to develop, even with zero screen time. She went through several days of very odd long eye blinks which almost seemed to disorient her for a moment while she either ate or walked. She had a head flailing movement which leaned for left. Others came and seem to go since her first tic Jan 29th. I told our pediatrician via a phone call about all of this on the following Tuesday, and mentioned that I had / have OCD (not as bad as when I was between 4-10 years old). The doctor then quickly made a referral. I was referred to CHLA to see the neurologists there and we went Feb 19th. The two neurologist there (very nice, but sadly not helpful), were really surprised that someone this young was indeed exhibiting tics, but had little advice or ideas as to what to do, other than "wait it out." I also showed them a video of my daughter when she was about 7 months old. We had to get an EEG for her because we thought she might be exhibiting seizures, her head was nodding forward almost like she was about to fall asleep, but with her eyes open. Now the neurologists felt like those were actually tics, at 7 months! Our daughter also fell out of our bed January 11th. It was terrifying and she busted open her nose/mouth, we rushed her to the ER. Everyone there reassured us that there was no need to do any scans, and that the best place for her to fall with on her face. Thank goodness she healed quickly. I asked them about Magnesium supplementation and was told that it's a fairly recent topic in their radar. I told them about her ticcing in her sleep. We bedshare, and now are too scared to sleep train out of fear that it will make her tics much worse. I also told them about her terrible sleep since birth, the fact that she's teething with 5-7 teeth coming in (4 of which are molars), and about her HORRIBLE digestive issues. Our daughter is chronically constipated, no matter how organic and well we feed her. She has a good high fiber diet. None of this seemed to worry them, or seem like read flags. I've read about the potential of Dysbiosis, her possibly being allergic to gluten (so we have cut it out but still haven't seen much of a difference), switched to goat milk which she didn't really like, and stopped all her organic pouch foods that have preservatives. Now we only do cold pressed pouch food which we rarely feed her but they at least have zero preservatives. I'm so sorry to post such a long letter, but I'm very worried. I'm just not sure what the next steps for my daughter should be, should we really wait it out?? I am asking specifically if 15 months is way too early to be exhibiting tics (since 3yo seems to be when the are detected earliest), and does this mean that she has a much higher chance of having Tourettes? Does this mean her chances of these tics becoming chronic higher? I can't find anything in the forums here, or anywhere online about a child this young. We have an appointment with an allergist this following Monday and was hoping I can have some help figuring out which tests specifically he should run. Lastly, are there any Naturopathic/holistic doctors or pediatric nutritionists in the Los Angeles area I can be recommended? THANK YOU so so much, and am so happy to find this forum / the incredible books. It seems like tics/tourettes are so under documented and reported and most doctors just don't know much about it. I can't believe that "wait and see if it goes away," and "if it doesn't there are really strong drugs with horrible side effects we can try," is all most of the medical community is willing to do.
  13. My 7 year old developed a head jerk tic a day after falling at school (not sure if related) X-rays were clear . I showed his GP a video of this head jerk and he said it’s behavoural just ignore it will go away. It’s been so hard for me to accept that this is happening. I recently had a baby who is colicky nd cries a lot so that’s one change that’s happened. I have noticed that he has become more sensitive and moody since this tic started he sometimes says things like no one loves me Anymore. Other people don’t seem to notice the tic and I’ve been told I’m overreacting, my husband doesn’t thinks there is a problem he doesn’t notice it that much but he’s quite busy. i don’t discuss the tics with my son unless he mentions them for example today he was doing a funny dance with his head and said ohh mummy it looks like I’m doing this (doing the tic). Then I said ohh so you still do that then he said yes, I asked if it hurts and he said yes and pointed at the back of his neck. I then offered to give massage then he said no thanks , and no to icepack so I have him pain relief instead. I asked why he doesn’t tell me if it hurts then he ignored me ,, he doesn’t like to talk about it I guess. I’m devestated for him I worry for his future. He is on vitamin supplements with magnesium as well as bath salts and a magnesium spray . I have made changes to diet but that’s hard so taking it slowly. He goes to school which he hates , I don’t think other kids have noticed much although the teacher has told me she noticed the tic. he still does his activities he loves swimming , football etc notice him ticking there i still can’t help but worry for his future if it will get worse as I have noticed him doing weired sounds although not loud and also a shoulder shrug. I’m so depressed and I can’t stop googling symptoms.
  14. My son was diagnosed with transient tic disorder around his 4 yo birthday. He repetitively clears his throat, sniffs, and blinks his eyes funny. I have had him allergy tested and found no environmental allergies and just a few food intolerances - none of which were severe. He is moderately allergic to nuts and wheat. He does not eat nuts and we are working on getting wheat out of his diet which is very difficult! He has a short list of foods that he is mildly allergic to and I have not even begun to eliminate those from his diet yet. I treated his first bout of tics (he's had two now) with Natural Calm. It took 3 months, but the tics did finally disappear only to return 3 months later. My question is - are we just treating the symptoms of tics with eliminating allergens and providing magnesium supplementation? What is the root cause of the tics? Could the root cause be that our kids are deficient in magnesium because there is something going on in their bodies that prevent them from absorbing magnesium correctly?
  15. I've been dealing with tics since my childhood. I am 24 years old. I've tried tons of methods. I've found 2 good ways by myself to reduce tics. I have Neck moving right and left, breath out many times loudly and tighten my legs etc. So I've tried to push tics away, not responding any pressure any tics but made worse and then I've tried to direct my tics. Let me explain with my poor english. First tip; My goal is reducing "visibility". Because i'm tired stopping tics completely. When I feel the pressure to "breath out or neck moving"(more visible tics) i tighten my legs(less visible side). It's like guied the tics over my legs. I feel like the energy want to comes out so i let the legs do the job until feel relaxed. When I tighten my legs 2 or 3 second the pressure was gone and in public that would be less visible. Second tip; I've directed myself to do all tics "only" at home. I've worked on this about months. I've hold my tics in public or school. If I can't hold the tics anymore. I go to toilet or some place that I can be alone I release my tics and when i feel relaxed i move on. So when I get home I don't do over thinking about tics , I do tics so hard I've never stop any pressure, I do all tics and realesed myself. I am 24 , it took almost 18 years I've reduced %60 percent of my tics. Last of all being overweight and drinking too much coffee increase my tics so i walk 20 minutes everyday and drink coffee once a week.
  16. I should start by saying that is an amazing site. I always feel that I am alone on my anti-pharmaceutical island. My 6 year old was recently diagnosed with Tourettes. I feel like I was left dangling by the pediatrician without any directions on how to proceed. I have an appointment with our nurse practitioner as I want to do blood work to see if there any nutritional deficiencies. Without guidance from a doctor (we dont have a doctor as I didnt vaccinate my children), I need help. What type of nutritional deficiencies should I make sure to test for? Are there any other tests I should request? Bacteria? Can you test for Panada? Allergy testing obviously but anything specific...? Thanks!!!!
  17. My son (11 w/sever autism) has been treated for PANs for two years with antibiotics by an immunologist at MGH. Recently his symptoms worsened with increased anxiety, ocd, aggression, and a new tic disorder. Can anyone recommend doctors in New England who could treat a child like my son? We're feeling quite desperate. Thanks!
  18. Hello to all of the incredible parents and caregivers on this forum. I am new here and found this forum through extensive google searches, which always brought me back here and to several of you who have posted extremely helpful information. I cannot than you enough for sharing your stories. My 5.5 YO son has TS, vocal and motor tics for a year. We have followed similar diets (GF/DF/Nut Free) to many of you here and he also has severe tree nut allergies with anaphylaxis, which seems to be a common thread with TS kids (allergies/OCD/ADHD). We've been on a quest for the past year to find the right cocktail of supplements + diet to help jumpstart his gut biome to function more efficiently. We have a Neurologist, a Pediatrician and the most helpful, a Naturopath who has been with us every step of the way. The non-western path is certainly the one for us, and we've recently noticed a few changes with the introduction of PharmaGaba supplements (2 chewable per day) which have significantly reduced the motor and verbal tics. He's only been on this supplement two days and I notice a difference. Wishful thinking? Or a strong connection? There is a Mt Sinai clinical trial looking at GABA's role in TS with Dr. Vilma Gabbay which many believe to be greatly reduced, up to 50% in TS children. We just sent in our 23andme genetic test for our son, which I'm hoping will also lead us down a more focused path. Not as easy to get a kid to spit in a tube as I would have thought, but we collected enough to process. So much new research out there about the role of GABA and Histamines in TS - sometimes overwhelming. In some cases, kids are not producing enough Histamine and in others, and over-production of histamine and it's not going to the "right" places which from what I can gather is why DAO can be helpful. We see a lot of allergies, food allergies, environmental allergies in our son. I'm convinced my son is allergic to carpet backing and any plastic products that off-gas. Looking at chlorine and pools as another possible trigger, as he has swim class weekly (inside) which we're worried is compounding his symptoms. Anyone else see major environmental effects on triggers tics - specifically plastics or chlorine? He had a NutraEval test where his MTBE levels were extremely high, which was why we started to look at the carpeting and carpet backing in his room and in the house. My main reason for posting today is about genetic testing. Has genetic testing helped to guide your treatment decisions for how you supplement and/or approach detox, chelation or natural and herbal healing for your TS kids? If so - which genetic mutations or markers were the most common or important markers in TS and how did this impact your treatment path? We get our results back in a few weeks so plenty of time to mine for more information. I'm so eternally grateful to have found this forum. We are warriors, super sleuths, CSI investigators trying to solve this neurological mystery to make life a bit easier for our children and loved ones. I am sending you all a gigantic hug from cyberspace. Your words and wisdom have helped me get through many rough patches. Thank you! Erin
  19. Hi all, my 10 year old daughter started having facial ticks a few weeks ago in the summer holidays apparently triggered by screentime. She moves her eyes to one side, opening them wide and head moves in the opposite direction to eyes - says her eyes feel like they need to stretch. We had a screen detox and the tic went away but has now come back apparently triggered by anxiety and an panic attack (first one ever). The eye thing started again and so arrived some facial twitching and excessive eye blinking. I've now found she also has an abdominal one where she moves her legs towards her and back when sitting/lying (looks like she needs the toilet or something). She also for about a year has this breathing thing where she takes very deep breaths saying she can't get enough air. I took her to docs who said this may also be a tic - just ignore and will probably go away. That's it. My daughter has suffered with an anxiety disorder since she was very young but it seemed to have mostly resolved until this. Just really worried that my daughter will not outgrow this and she has yet another obstical to overcome. I read that with transient tics that disappear it's only one tic at a time which has worried me. I'm concerned about other children bullying her because of it. She starts secondary school next year. I haven't been drawing attention to them and trying my best not to show my own worry about them. Advice and/or reassurance anyone? Thanks in advance
  20. My 16 year old ds has had tics for many years. Most tics include bending his neck sometimes just a quick bend forward but other times he uses his hand to really push his neck down and when standing he sometimes has to bend over. He also stretches his feet. I believe he has some ADHD, too. He had started driving and has been ticcing. My concern is the safety part. While the tic is brief, he is taking his eyes off the road. Any advice from those out there who have gone through this would be greatly appreciated. I know I can't stop the tics but what can I do? San
  21. Hi everyone and anyone My 5 year old son has been experiencing both verbal and motor tics on and off for 1.5 years. Each time, just as they peaked, they quickly went away. However a new "episode" started 1 month ago and the tics have been more frequent and more aggressive. We have seen neurologists and had basic allergies tested (he has anaphylactic allergies to ALL nuts and seeds). We are desperate to find an environmental physician or any expert who can help us find possible causes and triggers, anyone more learned than me. I have spent days and weeks reading everything i can find on the topic ...so i know the tests that i think need to be done but i also know this is'nt my specialty... my son deserves someone who has experience with this.. not just me piecing together various bits of data .He is a very sensitive and gentle boy who is getting progressively more anxious as he struggles to deal with his body jerking hundreds of times per day. would anyone have a recommendation for a doctor or functional clinic in London, UK who can help us? a million thank yous in advance
  22. Hey all, Just a quick question regarding the nature and scope of tic behaviours, and their necessity to making a diagnosis of PANS/PANDAS. With regards to possible movement disorder, over the years I've exhibited a few embarrassing behaviours (mostly self injurious) such as hand biting and clenching the muscles in the throat. I've heard that the distinction between stereotype behaviours and tics are that the former are more habit forming and suppressible, and the latter have the quality of a preminotory urge and are only temporarily suppressible. Another troubling episodic symptom I've experienced (and quite frightening) particularly in stressful times, is that I will feel this wavy sensation behind my eyes (in my head) which will result in an unfocused staring spell (trance) lasting several seconds. I am conscious whilst this occurs, although inattentive, with the exclusion of sight from immediate awareness and it's not suppressible. Could this constitute a tic by definition? Is this inclusive to PANS and has anyone else experienced similar? Apart from this I can't remember ever displaying conventional motor or phonic tics, I just wondered if they were absolutely necessary in diagnosis? Hopefully pursuing treatment soon
  23. Hello. I recently took my 11-year-old son to the pediatrician for OCD symptoms. The doctor put him on 25mg of Zoloft and three days later he is experiencing severe abdominal tics. Has anyone else experienced this? Wondering if it is caused by the Zoloft or is secondary to the OCD. I tried calling the Dr 3 times yesterday and my calls were never returned. I will be changing pediatricians after this experience, but I have no idea whether to leave him on the meds or not. We've never dealt with tics before....
  24. I have been lurking around these forums for about 10 months now. I just signed up now because I wanted to report our experience using Repreeve. I guess my story is no different from anybody else's here. To summarize it is a story of misery, desperation, helplessness, worry, but also determination and perseverance, driven by the deepest love for my DD (who just turned 10). She started having very mild tics when she was in kindergarten. I was sent home multiple times by many, many doctors. She started getting worse in April (2015) when she was 9. She had different tics that continually changed from one to another (head bobbing, abdominal contractions, eye blinking and rolling, neck stretching, and seizure-like tics that were very scary, etc.). We tried diet intervention according to what she tested sensitive to, heavy supplementation, and almost everything else in between, which could be material for a whole book! In November, her tics had changed from motor to vocal ones. She could no longer be under the radar at school. They were constant and SUPER loud. We were so desperate. She had to be kept home from school for an entire month, and she was starting to feel very sad and isolated. Since I have been on "research mode" for the past 10 months, I came across Sheila Rogers' post on those new patches (thank you so, so much Sheila!), and out of desperation I decided to order a sample (which by the way was free). I am very happy to report that even though my daughter's tics are not 100% gone, she is finally doing much better, and has been able to return to school. I am sharing this story to encourage you guys to ask for, and use their sample. Who knows? It might bring some relief for your child, and you have absolutely nothing to lose.I really didn't expect the patches to work for my daughter because she is a PANDAS/PANS child (by the way 9 mos. on antibiotics never made the tics go away either). I also started DD on the Feingold diet on Dec 31 which I know is also helping, but the tics started to diminish while wearing the sample of the patches (5 days before starting the diet). Since she is a PANDAS/PANS kid, the patches are not obviously the only thing we are using around here. So, I do not know if the tics were meant to diminish on their own, but for me, it is too much of a coincidence the almost immediate relief my daughter enjoyed after 9 months of being completely annoyed by her tics. She says the patches are diminishing her urges to tic. I just hope this post can at least help one child and his/her family out there. Good luck everyone!
  25. HI all, I have a fifteen-year-old daughter who has periodically suffered from an eye rolling tic since she was about 6-7. I learned early on that l-carnitine will stop it within a couple of days so it has never been a big issue for us. Every few years it comes back, we give her l-carnitine and that's it for another few years. This last time it came back, however, the l-carnitine hasn't helped. I suspect it's because she needs a much higher dose than before because she has grown so much, but I'm struggling to find the correct dose. She's already up to 4000 mg per day and I'm kind of nervous to go higher. Do any of you have experience using l-carnitine for tics in teens or adults? I don't know her exact weight, but I would guess it to be around 110-115 lbs. Thanks for advice you have.
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